| Literature DB >> 30327192 |
Virginie Prevost1, Bénédicte Clarisse2, Natacha Heutte3, Alexandra Leconte2, Cécile Bisson4, Rachel Bignon5, Sonia Cauchin6, Maryline Feuillet7, Sylvie Gehanne7, Maud Gicquère8, Marie-Christine Grach8, Cyril Guillaumé9, Christine Le Gal10, Joelle Le Garrec6, Franck Lecaer11, Isabelle Lepleux12, Anne-Laure Millet11, Marie-Claude Ropartz13, Nathalie Roux9, Virith Sep Hieng5, Carole Van Delook10, Constance Bechet14, Aline Le Chevalier13, Claire Delorme4.
Abstract
Pain, one of the most feared symptoms for patients with cancer, remains insufficiently alleviated and impairs quality of life. Therapeutic patient education (TPE) is a relevant approach to this problem while allowing patients to develop skills to better manage their pain. In the "Basse-Normandie" French region, the management of pain relies on two organized networks, thus allowing proximity and accessibility for all concerned. In this context, our team has begun a broad five-step research program that is part of a regional health policy: (1) training in TPE of 10 doctor/nurse pairs; (2) identification of educational expectations of patients and their relatives in the field of cancer pain; (3) design and optimization of a TPE program dedicated to cancer pain; (4) regional pilot study aiming to assess the feasibility, quality and transferability of the program; (5) evaluation of the TPE program by interventional comparative randomization at the national level. This article aims to present the program which originality and strengths are based on collaborative work between health stakeholders. Objectives, methodology and expected results of the research phase (stages 2, 4, 5) are notably developed. The main expected outcomes are to prove the effectiveness of the program in improving the knowledge and skills of patients in the field of pain cancer in order to promote their adherence to treatment and, consequently, to enable them to better manage it. The long-term objective is to disseminate the educational approach by modifying practices that provide a mutual benefit for caregivers and patients.Entities:
Keywords: Cancer pain; Douleur liée au cancer; Gestion de la douleur; Pain assessment; Pain management; Therapeutic patient education; Éducation thérapeutique du patient; Évaluation de la douleur
Mesh:
Year: 2018 PMID: 30327192 DOI: 10.1016/j.bulcan.2018.08.012
Source DB: PubMed Journal: Bull Cancer ISSN: 0007-4551 Impact factor: 1.276