Maarten Cuypers1, Romy E D Lamers2, Paul J M Kil3, Lonneke V van de Poll-Franse4, Marieke de Vries5. 1. Department of Social Psychology, Tilburg University, Tilburg, The Netherlands; Radboud Institute for Health Sciences, Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, The Netherlands. Electronic address: maarten.cuypers@radboudumc.nl. 2. Department of Urology, Elisabeth-Tweesteden Hospital, Tilburg, The Netherlands. Electronic address: R.Lamers@etz.nl. 3. Department of Urology, Elisabeth-Tweesteden Hospital, Tilburg, The Netherlands. Electronic address: P.Kil@etz.nl. 4. CoRPS - Center of Research on Psychology in Somatic Diseases, Department of Medical and Clinical Psychology, Tilburg University, Tilburg, The Netherlands; Department of Research, Comprehensive Cancer Organisation Netherlands, Eindhoven, The Netherlands; Department of Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands. Electronic address: L.vandePoll@iknl.nl. 5. Institute for Computing and Information Sciences (iCIS) & Social and Cultural Psychology, Behavioural Science Institute, Radboud University, Nijmegen, The Netherlands. Electronic address: Marieke.deVries@ru.nl.
Abstract
OBJECTIVE: To investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up. METHODS: Within a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (n = 382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate. RESULTS: After 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction. CONCLUSION: No long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling. PRACTICE IMPLICATIONS: During PCa treatment counseling, healthcare providers should be aware of anxious and depressive symptoms.
RCT Entities:
OBJECTIVE: To investigate the effect of including an online decision aid (DA) during prostate cancer treatment counseling on decisional regret and information satisfaction in a one-year follow-up. METHODS: Within a cluster RCT, 18 Dutch hospitals were randomized to DA counseling or care-as-usual, patients (n = 382) initially completed questionnaires directly after treatment decision making. Six and twelve months later regret (Decisional Regret Scale) and information satisfaction (SCIP-B) were assessed. Anxious and depressive symptoms (HADS) was included as possible covariate. RESULTS: After 12 months, 43 participants (15%) regretted their treatment choice and 105 participants (36%) were dissatisfied with the information that was received at the time of decision-making, regardless of being exposed to the DA. Anxious and depressive symptoms at follow-up were associated with regret and information dissatisfaction. CONCLUSION: No long-term benefical effects emerged from DA usage compared to patients who underwent standard counseling. PRACTICE IMPLICATIONS: During PCa treatment counseling, healthcare providers should be aware of anxious and depressive symptoms.
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