Literature DB >> 30311203

Whom to Engage in Patient-Engaged Research? Reflection on Selection.

Stephanie R Morain.   

Abstract

Engaging patients in research has come to be viewed as a vital component of high-quality research, and funders now regard engaging patients and other stakeholders as a core criterion for funding decisions. In response, numerous empirical and conceptual papers have emerged to guide the process of engagement. However, as Emily Largent and colleagues rightly note, the inquiry of whom to engage has received less attention. While several teams have suggested that the selection of patients for engagement is an important consideration, researchers generally have little guidance on how to undertake this process. To that end, Largent and colleagues offer an important contribution to the literature. I agree with their argument regarding the centrality of critically examining which patients to engage in research and with their recommendations to maximize the positive goals of patient engagement. However, three issues warrant further consideration.
© 2018 The Hastings Center.

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Year:  2018        PMID: 30311203     DOI: 10.1002/hast.899

Source DB:  PubMed          Journal:  Hastings Cent Rep        ISSN: 0093-0334            Impact factor:   2.683


  4 in total

1.  A proposed framework for patient engagement throughout the broader research enterprise.

Authors:  Camila L Strassle; Steven D Pearson
Journal:  J Comp Eff Res       Date:  2020-04-07       Impact factor: 1.744

2.  Engaging Community Members to Eradicate Health Disparities.

Authors:  Stephanie R Morain
Journal:  Am J Public Health       Date:  2020-02       Impact factor: 9.308

Review 3.  Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.

Authors:  Claire Ludwig; Ian D Graham; Josee Lavoie; Wendy Gifford; Dawn Stacey
Journal:  Res Involv Engagem       Date:  2021-01-31

4.  Patients' and researchers' experiences with a patient board for a clinical trial on urinary tract infections.

Authors:  Imke Schilling; Heike Behrens; Jutta Bleidorn; Ildikó Gágyor; Claudia Hugenschmidt; Hannah Jilani; Guido Schmiemann; Ansgar Gerhardus
Journal:  Res Involv Engagem       Date:  2019-11-28
  4 in total

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