Literature DB >> 30304759

Needs of families of children with cerebral palsy in Bangladesh: A qualitative study.

Reshma Parvin Nuri1, Heather Michelle Aldersey1, Setareh Ghahari1.   

Abstract

PURPOSE: Families of children with disabilities often have needs related to the care of their child with a disability. Although there has been extensive exploration of family needs in high-income contexts, there is little known about this issue in low and middle-income countries like Bangladesh. In this study, we explored the needs of families of children with cerebral palsy in Bangladesh. Such understanding is important as it will help to improve services for children with disabilities and their families.
METHODS: We used a qualitative approach and interviewed 20 family members of children with cerebral palsy who visited the Centre for the Rehabilitation of the Paralysed, Bangladesh. We thematically analyzed data from semistructured interviews.
RESULTS: Five different themes were found on needs of families with children with disabilities: (a) financial needs, (b) needs for disability-related services, (c) needs for family and community cohesion, (d) informational needs, and (e) emotional needs. Participants overwhelmingly reported that financial needs were their highest priority.
CONCLUSION: Needs of families of children with disabilities must be considered in rehabilitation services to improve children's outcomes. Further studies are required to explore needs of families of children with disabilities who do not have access to rehabilitation services.
© 2018 John Wiley & Sons Ltd.

Entities:  

Keywords:  Asia; Bangladesh; cerebral palsy; disability; family needs

Year:  2018        PMID: 30304759     DOI: 10.1111/cch.12624

Source DB:  PubMed          Journal:  Child Care Health Dev        ISSN: 0305-1862            Impact factor:   2.508


  2 in total

1.  Exploring access to government-led support for children with disabilities in Bangladesh.

Authors:  Reshma Parvin Nuri; Setareh Ghahari; Heather Michelle Aldersey; Ahmed Shafiqul Huque
Journal:  PLoS One       Date:  2020-07-02       Impact factor: 3.240

2.  Improving epilepsy control among children with cerebral palsy in rural Bangladesh: a prospective cohort-based study.

Authors:  Tasneem Karim; Manik Chandra Das; Mohammad Muhit; Nadia Badawi; Gulam Khandaker; Shekeeb S Mohammad
Journal:  BMJ Open       Date:  2022-04-05       Impact factor: 2.692

  2 in total

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