Mary Sano1, Susan Egelko2, Carolyn W Zhu3, Clara Li2, Michael C Donohue4, Steven Ferris5, Jeffrey Kaye6, James C Mundt7, Chung-Kai Sun4, Paul S Aisen4, Howard H Feldman8. 1. Alzheimer Disease Research Center, Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA; James J Peters VAMC, Bronx, NY, USA. Electronic address: mary.sano@mssm.edu. 2. Alzheimer Disease Research Center, Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA. 3. Alzheimer Disease Research Center, Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, NY, USA; James J Peters VAMC, Bronx, NY, USA; Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA. 4. Department of Neurology & Biostatistics, Keck School of Medicine, University of Southern California, Los Angeles, CA, USA. 5. Center for Cognitive Neurology, New York University Langone Medical Center (posthumously), New York, NY, USA. 6. Department of Neurology and Biomedical Engineering, Oregon Health & Science University, Portland, OR, USA. 7. Wisconsin Department of Health Services, Division of Care and Treatment Services, Mauston, WI, USA. 8. Department of Neurosciences, University of California, San Diego, CA, USA.
Abstract
INTRODUCTION: Little is known about factors affecting motivation and satisfaction of participants in dementia prevention trials. METHODS: A Research Satisfaction Survey was administered to 422 nondemented older adults who participated in the Home-Based Assessment trial. RESULTS: Overall satisfaction was high, with means of all individual items near to above a value of 3 on a scale from 1 (worst) to 4 (best). Greater satisfaction was associated with staff-administered interviews versus automated technologies. The most liked aspects of research participation were volunteerism, opportunity to challenge and improve mental function, and positive interactions with staff. The least liked aspect was repetitiveness of the assessments. Participants requested more contact with staff and other older adults and more feedback on performance. DISCUSSION: Older adults' participation in research was primarily motivated by altruism. Methodologies that facilitate human contact, encourage feedback and novelty of tasks should be incorporated into future trial design.
INTRODUCTION: Little is known about factors affecting motivation and satisfaction of participants in dementia prevention trials. METHODS: A Research Satisfaction Survey was administered to 422 nondemented older adults who participated in the Home-Based Assessment trial. RESULTS: Overall satisfaction was high, with means of all individual items near to above a value of 3 on a scale from 1 (worst) to 4 (best). Greater satisfaction was associated with staff-administered interviews versus automated technologies. The most liked aspects of research participation were volunteerism, opportunity to challenge and improve mental function, and positive interactions with staff. The least liked aspect was repetitiveness of the assessments. Participants requested more contact with staff and other older adults and more feedback on performance. DISCUSSION: Older adults' participation in research was primarily motivated by altruism. Methodologies that facilitate human contact, encourage feedback and novelty of tasks should be incorporated into future trial design.
Authors: Maria Loizos; Judith Neugroschl; Carolyn W Zhu; Clara Li; Margaret Sewell; Michael T Kinsella; Amy Aloysi; Hillel Grossman; Corbett Schimming; Jane Martin; Mary Sano Journal: Alzheimer Dis Assoc Disord Date: 2021 Apr-Jun 01 Impact factor: 2.703
Authors: J Kaye; P Aisen; R Amariglio; R Au; C Ballard; M Carrillo; H Fillit; T Iwatsubo; G Jimenez-Maggiora; S Lovestone; F Natanegara; K Papp; M E Soto; M Weiner; B Vellas Journal: J Prev Alzheimers Dis Date: 2021
Authors: Lon S Schneider; Yuqi Qiu; Ronald G Thomas; Carol Evans; Diane M Jacobs; Shelia Jin; Jeffrey A Kaye; Andrea Z LaCroix; Karen Messer; David P Salmon; Mary Sano; Kimberly Schafer; Howard H Feldman Journal: Alzheimers Res Ther Date: 2021-12-20 Impact factor: 6.982
Authors: Siew Siew Lee; Andrea McGrattan; Yee Chang Soh; Mawada Alawad; Tin Tin Su; Uma Devi Palanisamy; Azizah Mat Hussin; Zaid Bin Kassim; Ahmad Nizal Bin Mohd Ghazali; Blossom Christa Maree Stephan; Pascale Allotey; Daniel D Reidpath; Louise Robinson; Devi Mohan; Mario Siervo Journal: Nutrients Date: 2022-01-19 Impact factor: 5.717