Literature DB >> 30296924

Nothing and Everything: Fibromyalgia as a Diagnosis of Exclusion and Inclusion.

Tiffany Boulton1.   

Abstract

The diagnostic process promises a label that validates patients' embodied experiences and a road map for living with and treating illness. Drawing on 31 qualitative interviews with women and men in Canada and the United Kingdom who have been diagnosed with fibromyalgia (FM), in this article, I examine the participants' experiences of the diagnostic process and how they feel about receiving this label. The interviews reflect that the FM label is plagued by uncertainty because the diagnosis is based on the absence of verifiable pathology. The respondents' narratives also reveal that FM is a vague diagnosis that includes a multitude of symptoms, overlaps with several other diagnoses, and results in feelings of doubt regarding whether it is the correct label. Thus, the participants' narratives reflect that the FM diagnosis is largely an empty promise because it fails to provide definitive answers or confer meaning and legitimacy to their illness experiences.

Entities:  

Keywords:  United Kingdom; diagnosis; fibromyalgia; in-depth qualitative interviews; medically unexplained illness; narrative analysis Canada; sociology of diagnosis; uncertainty

Year:  2018        PMID: 30296924     DOI: 10.1177/1049732318804509

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  7 in total

1.  The Effects of Mindfulness Interventions on Fibromyalgia in Adults aged 65 and Older: A Window to Effective Therapy.

Authors:  Dvir Fonia; Daniela Aisenberg
Journal:  J Clin Psychol Med Settings       Date:  2022-09-26

2.  Experiences of patients with fibromyalgia at a Finnish Health Centre: A qualitative study.

Authors:  Aleksi Varinen; Tiina Vuorio; Elise Kosunen; Tuomas H Koskela
Journal:  Eur J Gen Pract       Date:  2022-12       Impact factor: 3.636

3.  Accuracy, completeness and accessibility of online information on fibromyalgia.

Authors:  Deepika Basavakumar; Mirika Flegg; Jessica Eccles; Pietro Ghezzi
Journal:  Rheumatol Int       Date:  2019-03-06       Impact factor: 2.631

Review 4.  Consequences of a Diagnostic Label: A Systematic Scoping Review and Thematic Framework.

Authors:  Rebecca Sims; Zoe A Michaleff; Paul Glasziou; Rae Thomas
Journal:  Front Public Health       Date:  2021-12-22

5.  Patients' appraisals about a multicomponent intervention for fibromyalgia syndrome in primary care: a focus group study.

Authors:  Victoria Mailen Arfuch; Alessandra Queiroga Gonçalves; Rosa Caballol Angelats; Carina Aguilar Martín; Noèlia Carrasco-Querol; Maria Cinta Sancho Sol; Gemma González Serra; Immaculada Fusté Anguera; Anna Berenguera
Journal:  Int J Qual Stud Health Well-being       Date:  2021-12

Review 6.  Mishel's Model of Uncertainty Describing Categories and Subcategories in Fibromyalgia Patients, a Scoping Review.

Authors:  Ana Fernandez-Araque; Julia Gomez-Castro; Andrea Giaquinta-Aranda; Zoraida Verde; Clara Torres-Ortega
Journal:  Int J Environ Res Public Health       Date:  2020-05-26       Impact factor: 3.390

7.  Sick of the Sick Role: Narratives of What "Recovery" Means to People With CFS/ME.

Authors:  Anna Cheshire; Damien Ridge; Lucy V Clark; Peter D White
Journal:  Qual Health Res       Date:  2020-11-11
  7 in total

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