Loren Berman1, Mehul V Raval2, Madelene Ottosen3, Anne Kim Mackow4, Maria Cho5, Adam B Goldin6. 1. Department of Surgery, Division of General Pediatric Surgery, Sidney Kimmel Medical College at Thomas Jefferson University, Philadelphia, PA; Department of Surgery, Division of General Pediatric Surgery, Nemours/Alfred I. duPont Hospital for Children, Wilmington, DE. Electronic address: loren.berman@nemours.org. 2. Department of Surgery, Division of General Pediatric Surgery, Emory University, Children's Healthcare of Atlanta, Atlanta, GA. 3. Department of Surgery, Division of General Pediatric Surgery, University of Texas Houston-Memorial Hermann Center for Healthcare Quality and Safety, Houston, TX. 4. Department of Surgery, Division of General Pediatric Surgery, Rainbow Babies and Children, Cleveland, OH. 5. InsideOut Medicine, Seattle, WA. 6. Department of Surgery, Division of General Pediatric Surgery, Seattle Children's Hospital, University of Washington School of Medicine, Seattle, WA.
Abstract
OBJECTIVE: To explore the parent perspective on discharge home from the neonatal intensive care unit (NICU). STUDY DESIGN: We interviewed parents of NICU graduates with a range of demographic characteristics and medical complexities to explore parent perspectives on readiness for discharge. Interviews were transcribed and coded by a 6-member team. We performed content analysis to identify themes and develop a family-centered conceptual framework around readiness for NICU discharge. RESULTS: We interviewed a total of 15 parents who experienced NICU stays with 18 infants. Parents who have experienced NICU discharge have a spectrum of needs that evolve from the time the child is in the NICU, at time of discharge, and at home afterward. These needs consistently centered around 5 themes-communication, parent role clarity, emotional support, knowledge sources, and financial resources. CONCLUSIONS: Parents described many ways the system could have better prepared them and connected them with essential resources. Summarizing the voices of the parents who participated in this study, we have compiled a series of practical recommendations for clinicians to use in daily practice to help parents feel prepared and confident for the transition home from the NICU.
OBJECTIVE: To explore the parent perspective on discharge home from the neonatal intensive care unit (NICU). STUDY DESIGN: We interviewed parents of NICU graduates with a range of demographic characteristics and medical complexities to explore parent perspectives on readiness for discharge. Interviews were transcribed and coded by a 6-member team. We performed content analysis to identify themes and develop a family-centered conceptual framework around readiness for NICU discharge. RESULTS: We interviewed a total of 15 parents who experienced NICU stays with 18 infants. Parents who have experienced NICU discharge have a spectrum of needs that evolve from the time the child is in the NICU, at time of discharge, and at home afterward. These needs consistently centered around 5 themes-communication, parent role clarity, emotional support, knowledge sources, and financial resources. CONCLUSIONS: Parents described many ways the system could have better prepared them and connected them with essential resources. Summarizing the voices of the parents who participated in this study, we have compiled a series of practical recommendations for clinicians to use in daily practice to help parents feel prepared and confident for the transition home from the NICU.
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