Literature DB >> 30275256

Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy.

Katherine S Ong1,2, Kathi Kinnett3, Rieza Soelaeman4, Lauren Webb5, Jennifer S Bain4,6, Ann S Martin3, Christina Westfield7, Julie Bolen4, Natalie Street4.   

Abstract

Care Considerations for Duchenne Muscular Dystrophy were published in 2010. However, little is known about the extent to which these considerations were implemented after publication. With this article, we provide direction on evaluating the uptake of the 2018 Duchenne Muscular Dystrophy Care Considerations. We identify key elements of care and present suggestions for their use in evaluation and research.
Copyright © 2018 by the American Academy of Pediatrics.

Entities:  

Mesh：

Year:  2018        PMID： 30275256      PMCID： PMC6298736          DOI： 10.1542/peds.2018-0333N

Source DB:  PubMed          Journal:  Pediatrics        ISSN： 0031-4005            Impact factor:   7.124


  21 in total

1.  Implementation research: what it is and how to do it.

Authors:  David H Peters; Taghreed Adam; Olakunle Alonge; Irene Akua Agyepong; Nhan Tran
Journal:  BMJ       Date:  2013-11-20

2.  Implementation of Duchenne Muscular Dystrophy Care Considerations.

Authors:  Jennifer G Andrews; Kristin Conway; Christina Westfield; Christina Trout; F John Meaney; Katherine Mathews; Emma Ciafaloni; Christopher Cunniff; Deborah J Fox; Dennis Matthews; Shree Pandya
Journal:  Pediatrics       Date:  2018-06-20       Impact factor: 7.124

3.  The muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet): surveillance methodology.

Authors:  Lisa A Miller; Paul A Romitti; Christopher Cunniff; Charlotte Druschel; Katherine D Mathews; F John Meaney; Dennis Matthews; Jiji Kantamneni; Zhen-Fang Feng; Nancy Zemblidge; Timothy M Miller; Jennifer Andrews; Deborah Fox; Emma Ciafaloni; Shree Pandya; April Montgomery; Aileen Kenneson
Journal:  Birth Defects Res A Clin Mol Teratol       Date:  2006-11

Review 4.  Diagnosis and management of Duchenne muscular dystrophy, part 2: respiratory, cardiac, bone health, and orthopaedic management.

Authors:  David J Birnkrant; Katharine Bushby; Carla M Bann; Benjamin A Alman; Susan D Apkon; Angela Blackwell; Laura E Case; Linda Cripe; Stasia Hadjiyannakis; Aaron K Olson; Daniel W Sheehan; Julie Bolen; David R Weber; Leanne M Ward
Journal:  Lancet Neurol       Date:  2018-02-03       Impact factor: 44.182

Review 5.  Diagnosis and management of Duchenne muscular dystrophy, part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan.

Authors:  David J Birnkrant; Katharine Bushby; Carla M Bann; Susan D Apkon; Angela Blackwell; Mary K Colvin; Linda Cripe; Adrienne R Herron; Annie Kennedy; Kathi Kinnett; James Naprawa; Garey Noritz; James Poysky; Natalie Street; Christina J Trout; David R Weber; Leanne M Ward
Journal:  Lancet Neurol       Date:  2018-02-02       Impact factor: 44.182

6.  Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science.

Authors:  Laura J Damschroder; David C Aron; Rosalind E Keith; Susan R Kirsh; Jeffery A Alexander; Julie C Lowery
Journal:  Implement Sci       Date:  2009-08-07       Impact factor: 7.327

Review 7.  Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care.

Authors:  Katharine Bushby; Richard Finkel; David J Birnkrant; Laura E Case; Paula R Clemens; Linda Cripe; Ajay Kaul; Kathi Kinnett; Craig McDonald; Shree Pandya; James Poysky; Frederic Shapiro; Jean Tomezsko; Carolyn Constantin
Journal:  Lancet Neurol       Date:  2009-11-27       Impact factor: 44.182

8.  Attributes of clinical guidelines that influence use of guidelines in general practice: observational study.

Authors:  R Grol; J Dalhuijsen; S Thomas; C Veld; G Rutten; H Mokkink
Journal:  BMJ       Date:  1998-09-26

9.  Compliance to Care Guidelines for Duchenne Muscular Dystrophy.

Authors:  Hanns Lochmüller; Katharine Bushby; Erik Landfeldt; Peter Lindgren; Christopher F Bell; Claude Schmitt; Michela Guglieri; Volker Straub
Journal:  J Neuromuscul Dis       Date:  2015

10.  Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy.

Authors:  Kathi Kinnett; Sunil Rodger; Elizabeth Vroom; Pat Furlong; Annemieke Aartsma-Rus; Kate Bushby
Journal:  PLoS Curr       Date:  2015-08-07
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  4 in total

1.  Variations in native T1 values in patients with Duchenne muscular dystrophy with and without late gadolinium enhancement.

Authors:  Sean M Lang; Tarek Alsaied; Philip R Khoury; Thomas D Ryan; Michael D Taylor
Journal:  Int J Cardiovasc Imaging       Date:  2020-09-20       Impact factor: 2.357

2.  Direct costs of adhering to selected Duchenne muscular dystrophy Care Considerations: Estimates from a midwestern state.

Authors:  Kristin M Conway; Scott D Grosse; Lijing Ouyang; Natalie Street; Paul A Romitti
Journal:  Muscle Nerve       Date:  2022-02-09       Impact factor: 3.852

3.  Conservative gadolinium administration to patients with Duchenne muscular dystrophy: decreasing exposure, cost, and time, without change in medical management.

Authors:  Sean M Lang; Tarek Alsaied; Ryan A Moore; Mantosh Rattan; Thomas D Ryan; Michael D Taylor
Journal:  Int J Cardiovasc Imaging       Date:  2019-07-18       Impact factor: 2.357

4.  The Effect of Adiposity on Cardiovascular Function and Myocardial Fibrosis in Patients With Duchenne Muscular Dystrophy.

Authors:  Sarah E Henson; Sean M Lang; Philip R Khoury; Cuixia Tian; Meilan M Rutter; Elaine M Urbina; Thomas D Ryan; Michael D Taylor; Tarek Alsaied
Journal:  J Am Heart Assoc       Date:  2021-09-25       Impact factor: 5.501
  4 in total

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