Literature DB >> 30270402

Patient-Consent Disconnects in Clinical Research.

Neal W Dickert1,2,3, JoAnne Brabson4, Rodney J Hunter5, Michele Riedford4.   

Abstract

Entities:  

Mesh：

Year:  2018        PMID： 30270402     DOI： 10.1007/s40271-018-0331-7

Source DB:  PubMed          Journal:  Patient        ISSN： 1178-1653            Impact factor:   3.883


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  8 in total

1.  Readability standards for informed-consent forms as compared with actual readability.

Authors:  Michael K Paasche-Orlow; Holly A Taylor; Frederick L Brancati
Journal:  N Engl J Med       Date:  2003-02-20       Impact factor: 91.245

2.  Misunderstanding in clinical research: distinguishing therapeutic misconception, therapeutic misestimation, and therapeutic optimism.

Authors:  Sam Horng; Christine Grady
Journal:  IRB       Date:  2003 Jan-Feb

Review 3.  Interventions to improve research participants' understanding in informed consent for research: a systematic review.

Authors:  James Flory; Ezekiel Emanuel
Journal:  JAMA       Date:  2004-10-06       Impact factor: 56.272

4.  The Common Rule, Updated.

Authors:  Jerry Menikoff; Julie Kaneshiro; Ivor Pritchard
Journal:  N Engl J Med       Date:  2017-01-19       Impact factor: 91.245

5.  Federal Policy for the Protection of Human Subjects. Final rule.

Authors: 
Journal:  Fed Regist       Date:  2017-01-19

6.  Disclosure of financial relationships to participants in clinical research.

Authors:  Kevin P Weinfurt; Mark A Hall; Nancy M P King; Joëlle Y Friedman; Kevin A Schulman; Jeremy Sugarman
Journal:  N Engl J Med       Date:  2009-08-27       Impact factor: 91.245

7.  Linguistic Strategies for Improving Informed Consent in Clinical Trials Among Low Health Literacy Patients.

Authors:  Janice L Krieger; Jordan M Neil; Yulia A Strekalova; Melanie A Sarge
Journal:  J Natl Cancer Inst       Date:  2016-10-28       Impact factor: 13.506

8.  An observational study showed that explaining randomization using gambling-related metaphors and computer-agency descriptions impeded randomized clinical trial recruitment.

Authors:  Marcus Jepson; Daisy Elliott; Carmel Conefrey; Julia Wade; Leila Rooshenas; Caroline Wilson; David Beard; Jane M Blazeby; Alison Birtle; Alison Halliday; Rob Stein; Jenny L Donovan
Journal:  J Clin Epidemiol       Date:  2018-03-02       Impact factor: 6.437
  8 in total
  1 in total

1.  Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.

Authors:  Stephanie A Kraft; Erin Rothwell; Seema K Shah; Devan M Duenas; Hannah Lewis; Kristin Muessig; Douglas J Opel; Katrina A B Goddard; Benjamin S Wilfond
Journal:  J Med Ethics       Date:  2020-10-06       Impact factor: 2.903
  1 in total

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