Literature DB >> 30232053

Ambivalence in digital health: Co-designing an mHealth platform for HIV care.

Benjamin Marent1, Flis Henwood2, Mary Darking3.   

Abstract

In reaction to polarised views on the benefits or drawbacks of digital health, the notion of 'ambivalence' has recently been proposed as a means to grasp the nuances and complexities at play when digital technologies are embedded within practices of care. This article responds to this proposal by demonstrating how ambivalence can work as a reflexive approach to evaluate the potential implications of digital health. We first outline current theoretical advances in sociology and organisation science and define ambivalence as a relational and multidimensional concept that can increase reflexivity within innovation processes. We then introduce our empirical case and highlight how we engaged with the HIV community to facilitate a co-design space where 97 patients (across five European clinical sites: Antwerp, Barcelona, Brighton, Lisbon, Zagreb) were encouraged to lay out their approaches, imaginations and anticipations towards a prospective mHealth platform for HIV care. Our analysis shows how patients navigated ambivalence within three dimensions of digital health: quantification, connectivity and instantaneity. We provide examples of how potential tensions arising through remote access to quantified data, new connections with care providers or instant health alerts were distinctly approached alongside embodied conditions (e.g. undetectable viral load) and embedded socio-material environments (such as stigma or unemployment). We conclude that ambivalence can counterbalance fatalistic and optimistic accounts of technology and can support social scientists in taking-up their critical role within the configuration of digital health interventions.
Copyright © 2018 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Digital health; Digital sociology; HIV care; Healthcare technology; Participatory design; Self-care; Sociological ambivalence; Sociotechnical practices

Mesh:

Year:  2018        PMID: 30232053     DOI: 10.1016/j.socscimed.2018.09.003

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  12 in total

1.  Experiences With Wearable Activity Data During Self-Care by Chronic Heart Patients: Qualitative Study.

Authors:  Tariq Osman Andersen; Henriette Langstrup; Stine Lomborg
Journal:  J Med Internet Res       Date:  2020-07-20       Impact factor: 5.428

2.  Ambivalence and the biopolitics of HIV pre-exposure prophylaxis (PrEP) implementation.

Authors:  Mark Gaspar; Travis Salway; Daniel Grace
Journal:  Soc Theory Health       Date:  2021-01-14

3.  Attitudes of General Practitioners Toward Prescription of Mobile Health Apps: Qualitative Study.

Authors:  Aline Sarradon-Eck; Tiphanie Bouchez; Lola Auroy; Matthieu Schuers; David Darmon
Journal:  JMIR Mhealth Uhealth       Date:  2021-03-04       Impact factor: 4.773

4.  Digitized HIV/AIDS Treatment Adherence Interventions: A Review of Recent SMS/Texting Mobile Health Applications and Implications for Theory and Practice.

Authors:  Lunthita M Duthely; Alex P Sanchez-Covarrubias
Journal:  Front Commun (Lausanne)       Date:  2020-11-10

Review 5.  Co-production practice and future research priorities in United Kingdom-funded applied health research: a scoping review.

Authors:  Helen Smith; Luke Budworth; Chloe Grindey; Isabel Hague; Natalie Hamer; Roman Kislov; Peter van der Graaf; Joe Langley
Journal:  Health Res Policy Syst       Date:  2022-04-02

6.  Making Digital Health "Solutions" Sustainable in Healthcare Systems: A Practitioner Perspective.

Authors:  Matthew Cripps; Harry Scarbrough
Journal:  Front Digit Health       Date:  2022-03-31

7.  Integrating Natural Language Processing and Interpretive Thematic Analyses to Gain Human-Centered Design Insights on HIV Mobile Health: Proof-of-Concept Analysis.

Authors:  Simone J Skeen; Stephen Scott Jones; Carolyn Marie Cruse; Keith J Horvath
Journal:  JMIR Hum Factors       Date:  2022-07-21

8.  Development of an mHealth platform for HIV Care: Gathering User Perspectives Through Co-Design Workshops and Interviews.

Authors:  Benjamin Marent; Flis Henwood; Mary Darking
Journal:  JMIR Mhealth Uhealth       Date:  2018-10-19       Impact factor: 4.773

9.  Codesigning discharge communication interventions with healthcare providers, youth and parents for emergency practice settings: EDUCATE study protocol.

Authors:  Janet A Curran; Christine Cassidy; Andrea Bishop; Lori Wozney; Amy C Plint; Krista Ritchie; Sharon E Straus; Helen Wong; Amanda Newton; Mona Jabbour; Shannon MacPhee; Sydney Breneol; Emma Burns; Jill Chorney; Jennifer Lawton; Melanie Doyle; Rebecca MacKay; Roger Zemek; Tanya Penney; Jeremy Grimshaw
Journal:  BMJ Open       Date:  2020-05-11       Impact factor: 2.692

10.  EmERGE mHealth Platform: Implementation and Technical Evaluation of a Digital Supported Pathway of Care for Medically Stable HIV.

Authors:  Francisco J Gárate; Paloma Chausa; Jennifer Whetham; Christopher Iain Jones; Felipe García; César Cáceres; Patricia Sánchez-González; Edward Wallitt; Enrique J Gómez
Journal:  Int J Environ Res Public Health       Date:  2021-03-18       Impact factor: 3.390

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