Literature DB >> 30218806

The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review.

Caroline Bradbury-Jones1, Louise Isham2, Julie Taylor3.   

Abstract

Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children's lives, views and needs. So too has a critical agenda about its ethical implications and methodological complexities. One criticism is that the involvement of children who may be considered 'vulnerable' or 'marginalised' has been slower to take root within mainstream participatory practice. This means that there has been less focus on how groups such as disabled children or children affected by abuse or neglect can shape and challenge adult-dominated types of knowledge and decision-making that are likely to affect them. This article reports on the findings of a qualitative systematic literature review of thirteen contemporary papers. The review was undertaken by a UK team in 2017. The included articles explored some core ethical and methodological issues involved in carrying out participatory research with vulnerable children and young people. It reports on three themes: 1) The extent to which participatory spaces could recalibrate opportunities and attention given to marginalised and silenced groups; 2) The ways in which these children and young people could develop skills and exercise political and moral agency through participatory activity, and, 3) How to facilitate meaningful engagement with individuals and groups and reconcile this with a critical appreciation of the important but limited nature of research as means of political and social change. The review provides a unique, contemporary analysis of participatory research with vulnerable children, illuminating in particular its conceptual complexities and contradictions, particularly regarding power, empowerment and voice. Its overall utility and interest is augmented by the disciplinary and geographical breadth of the included articles, rendering it relevant to many contexts and countries.
Copyright © 2018 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Children; Co-research; Empowerment; Engagement; Participatory; Peer-research; Vulnerable; Young people

Mesh:

Year:  2018        PMID: 30218806     DOI: 10.1016/j.socscimed.2018.08.038

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  9 in total

1.  Supporting survivors of sexual violence: protocol for a mixed-methods, co-research study of the role, funding and commissioning of specialist services provided by the voluntary sector in England.

Authors:  Gill Combes; Sarah Damery; Clare Gunby; Jenny Harlock; Louise Isham; Alice Jones; Fay Maxted; Priti Parmar; Jason Schaub; Deb Smith; Julie Taylor; Caroline Bradbury-Jones
Journal:  BMJ Open       Date:  2019-12-17       Impact factor: 2.692

2.  How Do Disadvantaged Children Perceive, Understand and Experience Household Food Insecurity?

Authors:  Stefania Velardo; Christina M Pollard; Jessica Shipman; Sue Booth
Journal:  Int J Environ Res Public Health       Date:  2021-04-12       Impact factor: 3.390

3.  Exploring theoretical mechanisms of community-engaged research: a multilevel cross-sectional national study of structural and relational practices in community-academic partnerships.

Authors:  John G Oetzel; Blake Boursaw; Maya Magarati; Elizabeth Dickson; Shannon Sanchez-Youngman; Leo Morales; Sarah Kastelic; Milton Mickey Eder; Nina Wallerstein
Journal:  Int J Equity Health       Date:  2022-05-02

4.  Are we leaving someone behind? A critical discourse analysis on the understanding of public participation among people with experiences of participatory research.

Authors:  Constanza Jacques-Aviñó; Elena Roel; Laura Medina-Perucha; Jasmine McGhie; Mariona Pons-Vigués; Enriqueta Pujol-Ribera; Irene Turiel; Anna Berenguera
Journal:  PLoS One       Date:  2022-09-02       Impact factor: 3.752

Review 5.  Inclusion of children with disabilities in qualitative health research: A scoping review.

Authors:  Janet Njelesani; Vongai Mlambo; Tsedenia Denekew; Jean Hunleth
Journal:  PLoS One       Date:  2022-09-01       Impact factor: 3.752

Review 6.  Describing adolescents with disabilities' experiences of COVID-19 and other humanitarian emergencies in low- and middle-income countries: a scoping review.

Authors:  Brigitte Rohwerder; Sara Wong; Shraddha Pokharel; Dipesh Khadka; Niraj Poudyal; Sagar Prasai; Nir Shrestha; Mary Wickenden; Joanna Morrison
Journal:  Glob Health Action       Date:  2022-12-31       Impact factor: 2.996

7.  Thetha Nami: participatory development of a peer-navigator intervention to deliver biosocial HIV prevention for adolescents and youth in rural South Africa.

Authors:  Maryam Shahmanesh; Nonhlanhla Okesola; Natsayi Chimbindi; Thembelihle Zuma; Sakhile Mdluli; Nondumiso Mthiyane; Oluwafemi Adeagbo; Jaco Dreyer; Carina Herbst; Nuala McGrath; Guy Harling; Lorraine Sherr; Janet Seeley
Journal:  BMC Public Health       Date:  2021-07-13       Impact factor: 3.295

8.  A specific method for qualitative medical research: the IPSE (Inductive Process to analyze the Structure of lived Experience) approach.

Authors:  Jordan Sibeoni; Laurence Verneuil; Emilie Manolios; Anne Révah-Levy
Journal:  BMC Med Res Methodol       Date:  2020-08-26       Impact factor: 4.615

9.  The generative potential of mess in community-based participatory research with young people who use(d) drugs in Vancouver.

Authors:  Madison Thulien; Haleigh Anderson; Shane Douglas; Rainbow Dykeman; Amanda Horne; Ben Howard; Kali Sedgemore; Reith Charlesworth; Danya Fast
Journal:  Harm Reduct J       Date:  2022-03-25
  9 in total

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