Literature DB >> 30207176

The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care.

Natasja Kingod1.   

Abstract

Danish adults with type 1 diabetes value peer-to-peer interaction through the social media platform Facebook as a way to quickly exchange knowledge on essential everyday self-care for chronic illness. In this praxiographic study, following informants into online and offline social dimensions, I explore how they use Facebook to exchange self-care knowledge based on practical experiments and negotiations between bodies, technologies and daily lives. When in doubt about how to self-care on a daily basis, Danish adults with type 1 diabetes look to Facebook for inspiration and peer support. A synergistic process of online searching and sharing and offline tinkering with self-care generates person-centred knowledge about how to live with illness that is situated to individual needs and unique daily lives. Facebook can be viewed as an emergent space for biosociality through which knowledge about how to self-care become co-constructed by peers based on their pragmatic experiences of self-care on a daily and ongoing basis.

Entities:  

Keywords:  facebook; online biosociality; patient knowledge; praxiography; tinkering; type 1 diabetes

Mesh:

Year:  2018        PMID: 30207176     DOI: 10.1177/1363459318800140

Source DB:  PubMed          Journal:  Health (London)        ISSN: 1363-4593


  6 in total

1.  Device activism and material participation in healthcare: retracing forms of engagement in the #WeAreNotWaiting movement for open-source closed-loop systems in type 1 diabetes self-care.

Authors:  Bianca Jansky; Henriette Langstrup
Journal:  Biosocieties       Date:  2022-04-22

Review 2.  Social Media in the Diabetes Community: a Novel Way to Assess Psychosocial Needs in People with Diabetes and Their Caregivers.

Authors:  Tamara K Oser; Sean M Oser; Jessica A Parascando; Danielle Hessler-Jones; Christopher N Sciamanna; Kerri Sparling; Donald Nease; Michelle L Litchman
Journal:  Curr Diab Rep       Date:  2020-02-20       Impact factor: 4.810

Review 3.  Bipolar patients and creative online practices: Sharing experiences of controversial treatments.

Authors:  Claudia Egher
Journal:  Health (London)       Date:  2019-03-28

4.  A call for better understanding of social media in surveillance and management of noncommunicable diseases.

Authors:  Chi-Wai Lui; Zaimin Wang; Ning Wang; Gabriel Milinovich; Hang Ding; Kerrie Mengersen; Hilary Bambrick; Wenbiao Hu
Journal:  Health Res Policy Syst       Date:  2021-02-10

5.  'Doing' hypertension: Experiential knowledge and practice in the self-management of 'high blood' in the Philippines.

Authors:  Gideon Lasco; Alicia Renedo; Jhaki Mendoza; Maureen L Seguin; Benjamin Palafox; Lia M Palileo-Villanueva; Dina Balabanova; Martin McKee
Journal:  Sociol Health Illn       Date:  2022-08-05

6.  Diabetes and COVID-19: psychosocial consequences of the COVID-19 pandemic in people with diabetes in Denmark-what characterizes people with high levels of COVID-19-related worries?

Authors:  L E Joensen; K P Madsen; L Holm; K A Nielsen; M H Rod; A A Petersen; N H Rod; I Willaing
Journal:  Diabet Med       Date:  2020-05-29       Impact factor: 4.213

  6 in total

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