Gineke Hanzen1, Aly Waninge2, Carla Vlaskamp3, Ruth M A van Nispen4, Annette A J van der Putten3. 1. Royal Dutch Visio - de Brink, Vries, The Netherlands. Electronic address: ginekehanzen@visio.org. 2. Royal Dutch Visio - de Brink, Vries, The Netherlands; Research group Healthy Ageing, Allied Health Care and Nursing, Hanzehogeschool Groningen, The Netherlands. 3. Faculty of Behavioural and Social Sciences, Department of Pedagogy and Educational Sciences, Unit of Special Needs Education and Youth Care, University of Groningen, The Netherlands. 4. Amsterdam UMC, Vrije Universiteit Amsterdam, Ophtalmology, Amsterdam Public Health Research Institute, The Netherlands.
Abstract
BACKGROUND: The extent of participation of adults with visual and severe or profound intellectual disabilities (VSPID) is unclear. AIMS: To explore participation of adults with VSPID and the association between occurrence and importance of aspects of participation. METHODS: Individual support plans (ISPs) of 40 adults with VSPID were analyzed: selected text fragments were categorized according to 125 previously operationalized statements that had different levels of importance and were divided into seven participation clusters. RESULTS: The ISPs contained 2791 text fragments that related to a statement. All clusters were covered: the clusters 'Experience and discover' (91.7%), 'Involvement' (90%), and 'Social relations' (87.5%) were well covered. 'Inclusion' (53.6%) and 'Leisure and recreation' (57.1%) were mentioned less often. Among the 36 high-importance statements, two related to 'Inclusion', 'Involvement' and 'Social Relations' each, three to 'Communication and being understood', and five to 'Self-management and autonomy' had at least 30 text fragments. CONCLUSIONS: The participation domains 'Experience and discover', 'Involvement', and 'Social relations' are well-documented, suggesting that adults with VSPID participate in those areas. However, domains such as 'inclusion in society' and 'leisure in society' were not documented. This overview of participation offers residential facilities the opportunity to determine in which areas participation can be improved.
BACKGROUND: The extent of participation of adults with visual and severe or profound intellectual disabilities (VSPID) is unclear. AIMS: To explore participation of adults with VSPID and the association between occurrence and importance of aspects of participation. METHODS: Individual support plans (ISPs) of 40 adults with VSPID were analyzed: selected text fragments were categorized according to 125 previously operationalized statements that had different levels of importance and were divided into seven participation clusters. RESULTS: The ISPs contained 2791 text fragments that related to a statement. All clusters were covered: the clusters 'Experience and discover' (91.7%), 'Involvement' (90%), and 'Social relations' (87.5%) were well covered. 'Inclusion' (53.6%) and 'Leisure and recreation' (57.1%) were mentioned less often. Among the 36 high-importance statements, two related to 'Inclusion', 'Involvement' and 'Social Relations' each, three to 'Communication and being understood', and five to 'Self-management and autonomy' had at least 30 text fragments. CONCLUSIONS: The participation domains 'Experience and discover', 'Involvement', and 'Social relations' are well-documented, suggesting that adults with VSPID participate in those areas. However, domains such as 'inclusion in society' and 'leisure in society' were not documented. This overview of participation offers residential facilities the opportunity to determine in which areas participation can be improved.
Authors: Giulio E Lancioni; Nirbhay N Singh; Mark F O'Reilly; Jeff Sigafoos; Gloria Alberti; Valeria Chiariello; Francesca Campodonico; Lorenzo Desideri Journal: JMIR Rehabil Assist Technol Date: 2021-11-17
Authors: Gineke Hanzen; Ruth M A van Nispen; Carla Vlaskamp; Eliza L Korevaar; Aly Waninge; Annette A J van der Putten Journal: BMC Health Serv Res Date: 2020-04-16 Impact factor: 2.655
Authors: Gineke Hanzen; Aly Waninge; Ruth M A van Nispen; Carla Vlaskamp; Wendy J Post; Annette A J van der Putten Journal: J Appl Res Intellect Disabil Date: 2020-08-13