Olalekan Lee Aiyegbusi1, Derek Kyte2, Paul Cockwell3, Tom Marshall4, Mary Dutton5, Natalie Walmsley-Allen6, Ram Auti7, Melanie Calvert8. 1. Centre for Patient-Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, UK; Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, UK. Electronic address: oxa238@bham.ac.uk. 2. Centre for Patient-Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, UK; Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, UK. Electronic address: d.g.kyte@bham.ac.uk. 3. Centre for Patient-Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, UK; Department of Renal Medicine, University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital Birmingham, Mindelsohn Way, Edgbaston, Birmingham, UK. Electronic address: paul.cockwell@uhb.nhs.uk. 4. Centre for Patient-Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, UK; Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, UK. Electronic address: t.p.marshall@bham.ac.uk. 5. Department of Renal Medicine, University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital Birmingham, Mindelsohn Way, Edgbaston, Birmingham, UK. Electronic address: Mary.Dutton@uhb.nhs.uk. 6. Department of Renal Medicine, University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital Birmingham, Mindelsohn Way, Edgbaston, Birmingham, UK. Electronic address: Natalie.Walmsley-Allen@uhb.nhs.uk. 7. Information Technology Services, University Hospitals Birmingham NHS Foundation Trust, Queen Elizabeth Hospital Birmingham, Mindelsohn Way, Edgbaston, Birmingham, UK. Electronic address: Ram.Auti@uhb.nhs.uk. 8. Centre for Patient-Reported Outcomes Research, University of Birmingham, Edgbaston, Birmingham, UK; Institute of Applied Health Research, University of Birmingham, Edgbaston, Birmingham, UK. Electronic address: m.calvert@bham.ac.uk.
Abstract
BACKGROUND: Chronic kidney disease (CKD) is a long-term medical condition associated with symptoms which may negatively impact on patients' health-related quality of life (HRQOL). Patient-reported outcome (PRO) measures or questionnaires may be used to capture symptoms/HRQOL experienced by patients with advanced CKD. METHOD: Two PRO questionnaires were electronically adapted and incorporated in an electronic system developed at University Hospitals Birmingham NHS Foundation Trust (UHB), Birmingham. Usability testing was conducted with patients with advanced CKD. Qualitative methodology was used to elicit participants' views. RESULTS: Participants had a mean age of 64.3 years (range: 36-87 years). All owned electronic devices and had access to the internet. The mean time required to complete the two electronic questionnaires was 15.9 min (range = 8-34 min). Patients who had difficulties with the system were those who had the least experience of using the internet and electronic devices. The average usability and satisfaction score was 4.6 (5-point scale). CONCLUSIONS: Our study suggests that individuals with advanced CKD may find the Renal ePROM system acceptable and easy to use. The use of the Renal ePROM may complement clinician-reported outcomes and assist with the management of patients with advanced CKD.
BACKGROUND:Chronic kidney disease (CKD) is a long-term medical condition associated with symptoms which may negatively impact on patients' health-related quality of life (HRQOL). Patient-reported outcome (PRO) measures or questionnaires may be used to capture symptoms/HRQOL experienced by patients with advanced CKD. METHOD: Two PRO questionnaires were electronically adapted and incorporated in an electronic system developed at University Hospitals Birmingham NHS Foundation Trust (UHB), Birmingham. Usability testing was conducted with patients with advanced CKD. Qualitative methodology was used to elicit participants' views. RESULTS:Participants had a mean age of 64.3 years (range: 36-87 years). All owned electronic devices and had access to the internet. The mean time required to complete the two electronic questionnaires was 15.9 min (range = 8-34 min). Patients who had difficulties with the system were those who had the least experience of using the internet and electronic devices. The average usability and satisfaction score was 4.6 (5-point scale). CONCLUSIONS: Our study suggests that individuals with advanced CKD may find the Renal ePROM system acceptable and easy to use. The use of the Renal ePROM may complement clinician-reported outcomes and assist with the management of patients with advanced CKD.
Authors: Derek Kyte; Nicola Anderson; Ram Auti; Olalekan Lee Aiyegbusi; Jon Bishop; Andrew Bissell; Elizabeth Brettell; Melanie Calvert; Marie Chadburn; Paul Cockwell; Mary Dutton; Helen Eddington; Elliot Forster; Gabby Hadley; Natalie J Ives; Louise Jackson; Sonja O'Brien; Gary Price; Keeley Sharpe; Stephanie Stringer; Gael Stephenson; Rav Verdi; Judi Waters; Adrian Wilcockson; Jim Williams Journal: J Patient Rep Outcomes Date: 2020-07-08