Tamay Sertçelik1, Fatoş Alkan2, Şermin Yalın Sapmaz3, Şenol Coşkun2, Erhan Eser4. 1. Department of Pediatrics, Celal Bayar University School of Medicine, Manisa, Turkey. 2. Department of Pediatrics, Division of Pediatric Cardiology, Celal Bayar University School of Medicine, Manisa, Turkey. 3. Department of Child Psychiatry, Celal Bayar University School of Medicine, Manisa, Turkey. 4. Department of Public Health, Celal Bayar University School of Medicine, Manisa, Turkey.
Abstract
AIM: We aimed to evaluate the effects of the severity and symptoms of congenital heart disease and the emotional and behavioral problems of affected children on their quality of life. MATERIAL AND METHODS: The study was performed by interviewing 80 children aged between 6 and 16 years (40 with cyanotic heart disease and 40 with acyanotic disease) and their mothers. A sociodemographic data form, quality of life questionnaire, strength and difficulties questionnaire, and family life and parenting attitudes scale were used in the research. Life quality was the dependent variable of this research. RESULTS: No significant relation was found between age, sex, and education level of the parents and all quality of life subscale scores (p>0.05). In terms of quality of life, total quality of life subscale, emotional well-being and self-esteem subscales were significantly lower in children with cyanotic congenital heart disease (p=0.02, p=0.007, p=0.006, respectively). The total quality of life subscale was significantly lower in children with a medical treatment and surgical history. In terms of clinical symptoms, self-esteem, friendship and school life quality subscales were affected in the presence of dyspnea. As scores from strength and difficulties questionnaire increased, which is used for the assessment of children's psychological symptoms, all quality of life scores were significantly lowered except for school and family subscales. CONCLUSION: It was found that symptoms of congenital heart disease affected the psychosocial quality of life subscales rather than the physical subscales. In addition, it was observed that mental symptoms in both the mother and child negatively affected quality of life rather than disease-related parameters.
AIM: We aimed to evaluate the effects of the severity and symptoms of congenital heart disease and the emotional and behavioral problems of affected children on their quality of life. MATERIAL AND METHODS: The study was performed by interviewing 80 children aged between 6 and 16 years (40 with cyanotic heart disease and 40 with acyanotic disease) and their mothers. A sociodemographic data form, quality of life questionnaire, strength and difficulties questionnaire, and family life and parenting attitudes scale were used in the research. Life quality was the dependent variable of this research. RESULTS: No significant relation was found between age, sex, and education level of the parents and all quality of life subscale scores (p>0.05). In terms of quality of life, total quality of life subscale, emotional well-being and self-esteem subscales were significantly lower in children with cyanotic congenital heart disease (p=0.02, p=0.007, p=0.006, respectively). The total quality of life subscale was significantly lower in children with a medical treatment and surgical history. In terms of clinical symptoms, self-esteem, friendship and school life quality subscales were affected in the presence of dyspnea. As scores from strength and difficulties questionnaire increased, which is used for the assessment of children's psychological symptoms, all quality of life scores were significantly lowered except for school and family subscales. CONCLUSION: It was found that symptoms of congenital heart disease affected the psychosocial quality of life subscales rather than the physical subscales. In addition, it was observed that mental symptoms in both the mother and child negatively affected quality of life rather than disease-related parameters.
Entities:
Keywords:
Congenital; heart disease; quality of life
Authors: Flávio Miguel Teixeira; Rosália Maria Coelho; Cidália Proença; Ana Margarida Silva; Daniela Vieira; Cláudia Vaz; Cláudia Moura; Victor Viana; José Carlos Areias; Maria Emília Guimarães Areias Journal: Pediatr Cardiol Date: 2011-06-28 Impact factor: 1.655
Authors: Erin L Culbert; David A Ashburn; Geraldine Cullen-Dean; Jay A Joseph; William G Williams; Eugene H Blackstone; Brian W McCrindle Journal: Circulation Date: 2003-08-04 Impact factor: 29.690
Authors: Isabela Ribeiro Freitas; Marta Castro; Sofia Lourenço Sarmento; Cláudia Moura; Victor Viana; José Carlos Areias; Maria Emília Guimarães Areias Journal: BMJ Open Date: 2013-01-28 Impact factor: 2.692