Literature DB >> 30086199

Variations in the management of acute illness in children with congenital adrenal hyperplasia: An audit of three paediatric hospitals.

Georgina L Chrisp1, Ann M Maguire2,3, Maria Quartararo1, Henrik Falhammar4,5,6, Bruce R King7,8, Craig F Munns2,3, David J Torpy9, Shihab Hameed3,10,11, R Louise Rushworth1.   

Abstract

OBJECTIVE: Episodes of acute adrenal insufficiency (AI)/adrenal crises (AC) are a serious consequence of congenital adrenal hyperplasia (CAH). This study aimed to assess morbidity from acute illness in CAH and identify factors associated with use of IV hydrocortisone, admission and diagnosis of an AC.
METHOD: An audit of acute illness presentations among children with CAH to paediatric hospitals in New South Wales, Australia, between 2000 and 2015.
RESULTS: There were 321 acute presentations among 75 children with CAH. Two-thirds (66.7%, n = 214) of these resulted in admission and 49.2% (n = 158) of the patients received intravenous (IV) hydrocortisone. An AC was diagnosed in (9.0%). Prior to presentation, 64.2% (n = 206) had used oral stress dosing and 22.1% (n = 71) had been given intramuscular (IM) hydrocortisone. Vomiting was recorded in 61.1% (n = 196), 32.7% (n = 64) of whom had used IM hydrocortisone. Admission, AC diagnosis and use of stress dosing varied significantly between hospitals. IM use varied from 7.0% in one metropolitan hospital to 45.8% in the regional hospital. Children aged up to 12 months had the lowest levels of stress dosing and IV hydrocortisone administration. Higher numbers of prior hospital attendances for acute illness were associated with increased use of IM hydrocortisone.
CONCLUSION: Prehospital and in-hospital management of children with CAH can vary between health services. Children under 12 months have lower levels of stress dosing prior to hospital than other age groups. Experience with acute episodes improves self-management of CAH in the context of acute illness in educated patient populations.
© 2018 John Wiley & Sons Ltd.

Entities:  

Keywords:  21-hydroxylase deficiency; adrenal crisis; adrenal insufficiency

Mesh:

Substances:

Year:  2018        PMID: 30086199     DOI: 10.1111/cen.13826

Source DB:  PubMed          Journal:  Clin Endocrinol (Oxf)        ISSN: 0300-0664            Impact factor:   3.478


  8 in total

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Journal:  Obstet Med       Date:  2019-06-09

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4.  The impact of adherence and therapy regimens on quality of life in patients with congenital adrenal hyperplasia.

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Journal:  Clin Endocrinol (Oxf)       Date:  2022-01-17       Impact factor: 3.523

5.  Trends in hospital admissions for adrenal insufficiency in adolescents and young adults in the 21st century.

Authors:  Georgina L Chrisp; Maria Quartararo; David J Torpy; Henrik Falhammar; R Louise Rushworth
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7.  Real-World Estimates of Adrenal Insufficiency-Related Adverse Events in Children With Congenital Adrenal Hyperplasia.

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8.  Acute Illness and Death in Children With Adrenal Insufficiency.

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  8 in total

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