M Hartmann1, J Merker2,3, S Schrödl2, M König2, M Georgi2, C Hinze2,4, A Schwirtz3, J-P Haas2. 1. Deutsches Zentrum für Kinder- und Jugendrheumatologie, Gehfeldstr. 24, 82467, Garmisch-Partenkirchen, Deutschland. hartmann.matthias@rheuma-kinderklinik.de. 2. Deutsches Zentrum für Kinder- und Jugendrheumatologie, Gehfeldstr. 24, 82467, Garmisch-Partenkirchen, Deutschland. 3. Professur für Biomechanik im Sport, Fakultät für Sport- und Gesundheitswissenschaften, Technische Universität München, Georg-Brauchle-Ring 60/62, 80992, München, Deutschland. 4. Klinik für Pädiatrische Rheumatologie und Immunologie, Universitätsklinik Münster, Albert-Schweitzer-Campus, 48149, Münster, Deutschland.
Abstract
BACKGROUND: Taking part in physical education is an important element of social participation for children with chronic diseases. Nevertheless, children suffering from rheumatism mostly receive recommendations to stop sport activities either completely or partially, without underlying scientific guidelines. OBJECTIVE: The aim was the development of an IT-tool based on scientific data in order to create individualized recommendations for sport activities plus verification of its practical feasibility. MATERIAL AND METHODS: An interdisciplinary group of experts developed and approved a prototype of the rheumatism and sports compass (Rheuma und Sport Kompass, RSK) based on the literature and own experience. They considered individual health factors and biomechanics of sports functions. The prototype was tested, revised and reconsidered in an interim evaluation. The resulting RSKv1 was evaluated in a clinical observation phase with 61 patients. The results were subsequently incorporated into the final version of RSK during an interdisciplinary decision-making process. This was verified in a feasibility study with a follow-up survey of rheumatic patients with a RSK partial participation certification for physical education including: clinical assessment during 8 lessons of physical education and after 8 lessons of physical education. Teachers rated the RSK online after 8 lessons. The evaluation was descriptive and differences in mean values were tested. RESULTS AND DISCUSSION: In this study 50 patients and 31 teachers were evaluated. The affliction of pain decreased in terms of frequency, amount and duration after physical education with RSK. No worsening in health was reported after participation in sports. The teachers rated the RSK as understandable, practicable and they felt confident to allow the patients to participate in classes. The RSK was rated significantly better than a standard certification text. With the RSK, patients can be advised to safely take part in physical education.
BACKGROUND: Taking part in physical education is an important element of social participation for children with chronic diseases. Nevertheless, children suffering from rheumatism mostly receive recommendations to stop sport activities either completely or partially, without underlying scientific guidelines. OBJECTIVE: The aim was the development of an IT-tool based on scientific data in order to create individualized recommendations for sport activities plus verification of its practical feasibility. MATERIAL AND METHODS: An interdisciplinary group of experts developed and approved a prototype of the rheumatism and sports compass (Rheuma und Sport Kompass, RSK) based on the literature and own experience. They considered individual health factors and biomechanics of sports functions. The prototype was tested, revised and reconsidered in an interim evaluation. The resulting RSKv1 was evaluated in a clinical observation phase with 61 patients. The results were subsequently incorporated into the final version of RSK during an interdisciplinary decision-making process. This was verified in a feasibility study with a follow-up survey of rheumaticpatients with a RSK partial participation certification for physical education including: clinical assessment during 8 lessons of physical education and after 8 lessons of physical education. Teachers rated the RSK online after 8 lessons. The evaluation was descriptive and differences in mean values were tested. RESULTS AND DISCUSSION: In this study 50 patients and 31 teachers were evaluated. The affliction of pain decreased in terms of frequency, amount and duration after physical education with RSK. No worsening in health was reported after participation in sports. The teachers rated the RSK as understandable, practicable and they felt confident to allow the patients to participate in classes. The RSK was rated significantly better than a standard certification text. With the RSK, patients can be advised to safely take part in physical education.
Entities:
Keywords:
Counselling; Health condition; Juvenile idiopathic arthritis; Participation; Pediatric rheumatism
Authors: Otto T H M Lelieveld; Wineke Armbrust; Jan H B Geertzen; Inez de Graaf; Miek A van Leeuwen; Pieter J J Sauer; Ellen van Weert; Jelte Bouma Journal: Arthritis Care Res (Hoboken) Date: 2010-05 Impact factor: 4.794
Authors: Anne M Boonstra; Roy E Stewart; Albère J A Köke; René F A Oosterwijk; Jeannette L Swaan; Karlein M G Schreurs; Henrica R Schiphorst Preuper Journal: Front Psychol Date: 2016-09-30