David C G Sainsbury1, Amy Davies2, Yvonne Wren2,3, Lucy Southby4,3,5, Ambika Chadha6, Rona Slator7, Nicola Marie Stock8. 1. 1 Northern & Yorkshire Cleft Lip and Palate Service, Royal Victoria Infirmary, Newcastle upon Tyne, United Kingdom. 2. 2 The Cleft Collective, University of Bristol, Bristol, United Kingdom. 3. 7 Bristol Speech and Language Therapy Research Unit, North Bristol NHS Trust, Bristol, United Kingdom. 4. 3 Cleft.NET.East, Cambridge University Hospitals NHS Foundation Trust, Cambridge, United Kingdom. 5. 8 Centre for Academic Child Health, University of Bristol, Bristol, United Kingdom. 6. 4 South Thames Cleft Service, Evelina Children's Hospital, London, United Kingdom. 7. 5 Birmingham Children's Hospital, Birmingham, United Kingdom. 8. 6 Centre for Appearance Research, University of the West of England, Bristol, United Kingdom.
Abstract
BACKGROUND: As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicenter audit and research projects. The aims of the present article are to outline and discuss the establishment of a multidisciplinary collaborative in the context of cleft lip and/or palate (CL/P). METHODS: The Cleft Multidisciplinary Collaborative (CMC) was formed in April 2016 under the overarching supervision of the National Institute for Health Research. Membership of the CMC is open to all members of the CL/P multidisciplinary team, who are encouraged to submit ideas for new research projects that will benefit clinical practice. RESULTS: To date, 48 clinical participants are involved in the CMC. These participants represent all 17 cleft teams from the United Kingdom and encompass a wide range of disciplines. The CMC has undertaken 2 major projects so far. The first involved collection of phenotype data to support a national cohort study. The second, still in progress, is a systematic review investigating factors associated with outcomes for velopharyngeal competence following cleft palate repair. CONCLUSIONS: The concept of a multidisciplinary collaborative in CL/P has been demonstrated through the generation of a United Kingdom-wide network of committed clinicians and researchers and the effective undertaking of 2 large research projects. As the CMC gathers momentum, it hopes to attract funding to support its activities, to promote more involvement from the allied health and nursing professions, to encourage a more ingrained research culture within the CL/P community, and to promote the wider ambition of a global collaborative.
BACKGROUND: As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicenter audit and research projects. The aims of the present article are to outline and discuss the establishment of a multidisciplinary collaborative in the context of cleft lip and/or palate (CL/P). METHODS: The Cleft Multidisciplinary Collaborative (CMC) was formed in April 2016 under the overarching supervision of the National Institute for Health Research. Membership of the CMC is open to all members of the CL/P multidisciplinary team, who are encouraged to submit ideas for new research projects that will benefit clinical practice. RESULTS: To date, 48 clinical participants are involved in the CMC. These participants represent all 17 cleft teams from the United Kingdom and encompass a wide range of disciplines. The CMC has undertaken 2 major projects so far. The first involved collection of phenotype data to support a national cohort study. The second, still in progress, is a systematic review investigating factors associated with outcomes for velopharyngeal competence following cleft palate repair. CONCLUSIONS: The concept of a multidisciplinary collaborative in CL/P has been demonstrated through the generation of a United Kingdom-wide network of committed clinicians and researchers and the effective undertaking of 2 large research projects. As the CMC gathers momentum, it hopes to attract funding to support its activities, to promote more involvement from the allied health and nursing professions, to encourage a more ingrained research culture within the CL/P community, and to promote the wider ambition of a global collaborative.
Authors: Inês Francisco; Gregory S Antonarakis; Francisco Caramelo; Anabela Baptista Paula; Carlos Miguel Marto; Eunice Carrilho; Maria Helena Fernandes; Francisco Vale Journal: Int J Environ Res Public Health Date: 2022-08-26 Impact factor: 4.614
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