Anette Alvariza1, Maja Holm2, Inger Benkel3, Maria Norinder4, Gail Ewing5, Gunn Grande6, Cecilia Håkanson7, Joakim Öhlen8, Kristofer Årestedt9. 1. Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stigbergsgatan 30, 116 28, Stockholm, Sweden; Capio Palliative Care Dalen Hospital, Åstorpsringen 6, 121 31 Enskededalen, Sweden. Electronic address: anette.alvariza@esh.se. 2. Department of Nursing Sciences, Sophiahemmet University, Valhallavägen 91, 114 28 Stockholm, Sweden. Electronic address: maja.holm@shh.se. 3. The Palliative Care Unit, Sahlgrenska University Hospital, Blå stråket 5, 413 45 Gothenburg, Sweden; Sahlgrenska Academy, Department of Geriatric Medicine, University of Gothenburg, 405 30 Gothenburg, Sweden. Electronic address: inger.benkel@vgregion.se. 4. Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stigbergsgatan 30, 116 28, Stockholm, Sweden; Capio Palliative Care Dalen Hospital, Åstorpsringen 6, 121 31 Enskededalen, Sweden. Electronic address: maria.norinder@esh.se. 5. Centre for Family Research, University of Cambridge, Downing Street, Cambridge, United Kingdom. Electronic address: ge200@cam.ac.uk. 6. Division of Nursing, Midwifery & Social Care, Faculty of Biology, Medicine and Health, University of Manchester, Oxford Road, Manchester, United Kingdom. Electronic address: gunn.grande@manchester.ac.uk. 7. Sahlgrenska Academy, Department of Geriatric Medicine, University of Gothenburg, 405 30 Gothenburg, Sweden. Electronic address: cecilia.hakanson@shh.se. 8. Institute of Health and Care Sciences and the Centre for Person-Centred Care, Sahlgrenska Academy, University of Gothenburg, Arvid Wallgrens backe 1, 413 46 Gothenburg, Sweden. Electronic address: joakim.ohlen@fhs.gu.se. 9. Faculty of Health and Life Sciences, Linnaeus University, 391 82, Kalmar, Sweden; The Research Section, Kalmar County Council, Lasarettsvägen 1, 392 44 Kalmar, Sweden. Electronic address: kristofer.arestedt@lnu.se.
Abstract
PURPOSE: The Carer Support Needs Assessment Tool (CSNAT) was developed for use among family caregivers in palliative care for assessment of their support needs. The purpose of this study was to translate and evaluate the validity and reliability of the CSNAT in a sample of Swedish family caregivers and nurses in a palliative care context. METHODS: Data for this validation study was collected during 2016 in the context of palliative home care in two larger Swedish cities. The study was conducted in three stages to reach conceptual, semantic, operational and measurement equivalence between the original UK version and the Swedish version. Stage I consisted of translation to Swedish. In Stage II, cognitive interviews were performed with 8 family caregivers and 10 nurses. Data were analyzed based on relevance, clarity and sensitivity. In Stage III, the CSNAT and related self-rating measures (caregiver burden, preparedness for caregiving and quality of life) were completed by 118 family caregivers. Data quality, construct validity and test-retest reliability were evaluated. RESULTS: The CSNAT items were considered relevant and useful to identify areas of support needs. The Swedish CSNAT showed sound psychometric properties with satisfactory data quality and few problems with missing data across items (1.8%-6.1%). All items except one correlated as expected (rho>0.3) with caregiver burden, supporting construct validity. All items had satisfactory test-retest reliability (κw=0.45-0.75). CONCLUSIONS: This study further adds to the validity of the CSNAT and shows in addition that it is reliable and stable for use among family caregivers in palliative care.
PURPOSE: The Carer Support Needs Assessment Tool (CSNAT) was developed for use among family caregivers in palliative care for assessment of their support needs. The purpose of this study was to translate and evaluate the validity and reliability of the CSNAT in a sample of Swedish family caregivers and nurses in a palliative care context. METHODS: Data for this validation study was collected during 2016 in the context of palliative home care in two larger Swedish cities. The study was conducted in three stages to reach conceptual, semantic, operational and measurement equivalence between the original UK version and the Swedish version. Stage I consisted of translation to Swedish. In Stage II, cognitive interviews were performed with 8 family caregivers and 10 nurses. Data were analyzed based on relevance, clarity and sensitivity. In Stage III, the CSNAT and related self-rating measures (caregiver burden, preparedness for caregiving and quality of life) were completed by 118 family caregivers. Data quality, construct validity and test-retest reliability were evaluated. RESULTS: The CSNAT items were considered relevant and useful to identify areas of support needs. The Swedish CSNAT showed sound psychometric properties with satisfactory data quality and few problems with missing data across items (1.8%-6.1%). All items except one correlated as expected (rho>0.3) with caregiver burden, supporting construct validity. All items had satisfactory test-retest reliability (κw=0.45-0.75). CONCLUSIONS: This study further adds to the validity of the CSNAT and shows in addition that it is reliable and stable for use among family caregivers in palliative care.
Authors: Annika M Kisch; Karin Bergkvist; Sólveig Adalsteinsdóttir; Christel Wendt; Anette Alvariza; Jeanette Winterling Journal: Support Care Cancer Date: 2022-08-11 Impact factor: 3.359
Authors: Lena Axelsson; Anette Alvariza; Nina Carlsson; S Robin Cohen; Richard Sawatzky; Kristofer Årestedt Journal: BMC Palliat Care Date: 2020-03-25 Impact factor: 3.234
Authors: Annika M Kisch; Karin Bergkvist; Anette Alvariza; Kristofer Årestedt; Jeanette Winterling Journal: Support Care Cancer Date: 2020-10-30 Impact factor: 3.603