Literature DB >> 30051759

Men's and Women's Approaches to Disclosure About BRCA-Related Cancer Risks and Family Planning Decision-Making.

Marleah Dean1, Emily A Rauscher2.   

Abstract

Little is known about how men and women who test positive for a BRCA gene mutation or have a strong family history of carrying a BRCA mutation manage disclosures about their BRCA-related cancer risks and family planning decision-making. By conducting interviews with 25 men and 20 women, this study investigated men's and women's approaches to disclosing their BRCA-related cancer risks and family planning decision-making. Guided by the Disclosure Decision-Making Model (DD-MM), this study demonstrates that men and women assess both information and the recipients of disclosures when making disclosure decisions. Theoretical implications for the DD-MM are discussed along with practical implications for hereditary cancer risk and family planning.

Entities:  

Keywords:  United States; breast; cancer; communication; genetics; qualitative interviews; research

Mesh:

Year:  2018        PMID: 30051759     DOI: 10.1177/1049732318788377

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  6 in total

1.  Perceptions and care Recommendations from Previvors: Qualitative analysis of female BRCA1/2 mutation Carriers' experience with genetic testing and counseling.

Authors:  Kate E Dibble; Laura K M Donorfio; Preston A Britner; Keith M Bellizzi
Journal:  Gynecol Oncol Rep       Date:  2022-05-02

2.  Sharing genetic test results with family members of BRCA, PALB2, CHEK2, and ATM carriers.

Authors:  Marleah Dean; Ann L Tezak; Sabrina Johnson; Joy K Pierce; Anne Weidner; Kate Clouse; Tuya Pal; Deborah Cragun
Journal:  Patient Educ Couns       Date:  2021-01-05

3.  Engaging Men With BRCA-Related Cancer Risks: Practical Advice for BRCA Risk Management From Male Stakeholders.

Authors:  Marleah Dean; Gemme Campbell-Salome; Emily A Rauscher
Journal:  Am J Mens Health       Date:  2020 May-Jun

4.  Sex Differences in Attitudes Toward Marriage and Childbearing Based on the Assumption of Being BRCA1/2 Mutation Carriers Among Young People.

Authors:  Jiwon Jeong; Boyoung Park; Dongwon Kim; Jiyoung Kim; Bom-Yi Lee; Junghyun Yoon; Sung-Won Kim
Journal:  J Breast Cancer       Date:  2022-06       Impact factor: 2.922

5.  Barriers to family history knowledge and family communication among LGBTQ+ individuals in the context of hereditary cancer risk assessment.

Authors:  Bradley A Rolf; Jennifer L Schneider; Laura M Amendola; James V Davis; Kathleen F Mittendorf; Mark A Schmidt; Gail P Jarvik; Benjamin S Wilfond; Katrina A B Goddard; Jessica Ezzell Hunter
Journal:  J Genet Couns       Date:  2021-07-23       Impact factor: 2.537

6.  Impact of BRCA Status on Reproductive Decision-Making and Self-Concept: A Mixed-Methods Study Informing the Development of Tailored Interventions.

Authors:  Sharlene Hesse-Biber; Memnun Seven; Jing Jiang; Sara Van Schaik; Andrew A Dwyer
Journal:  Cancers (Basel)       Date:  2022-03-15       Impact factor: 6.639

  6 in total

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