Literature DB >> 30039777

Abbreviated dignity therapy for adults with advanced-stage cancer and their family caregivers: Qualitative analysis of a pilot study.

Adrienne Beck1, Ann H Cottingham2, Patrick V Stutz3, Rachel Gruber3, Jennifer K Bernat4, Paul R Helft2, Laura Wilhelm5, Karen Schmidt2, Madison E Stout3, Claire Willard2, Shelley A Johns2.   

Abstract

OBJECTIVE: Dignity therapy (DT) is designed to address psychological and existential challenges that terminally ill individuals face. DT guides patients in developing a written legacy project in which they record and share important memories and messages with those they will leave behind. DT has been demonstrated to ease existential concerns for adults with advanced-stage cancer; however, lack of institutional resources limits wide implementation of DT in clinical practice. This study explores qualitative outcomes of an abbreviated, less resource-intensive version of DT among participants with advanced-stage cancer and their legacy project recipients.
METHOD: Qualitative methods were used to analyze postintervention interviews with 11 participants and their legacy recipients as well as the created legacy projects. Direct content analysis was used to assess feedback from the interviews about benefits, barriers, and recommendations regarding abbreviated DT. The legacy projects were coded for expression of core values.ResultFindings suggest that abbreviated DT effectively promotes (1) self-expression, (2) connection with loved ones, (3) sense of purpose, and (4) continuity of self. Participants observed that leading the development of their legacy projects promoted independent reflection, autonomy, and opportunities for family interaction when reviewing and discussing the projects. Consistent with traditional DT, participants expressed "family" as the most common core value in their legacy projects. Expression of "autonomy" was also a notable finding.Significance of resultsAbbreviated DT reduces resource barriers to conducting traditional DT while promoting similar benefits for participants and recipients, making it a promising adaptation warranting further research. The importance that patients place on family and autonomy should be honored as much as possible by those caring for adults with advanced-stage cancer.

Entities:  

Keywords:  Advanced-stage cancer; Autonomy; Dignity therapy; Existential; Palliative care

Mesh:

Year:  2018        PMID: 30039777      PMCID: PMC6345617          DOI: 10.1017/S1478951518000482

Source DB:  PubMed          Journal:  Palliat Support Care        ISSN: 1478-9515


  19 in total

1.  Learning from dying patients during their final days: life reflections gleaned from dignity therapy.

Authors:  Thomas F Hack; Susan E McClement; Harvey M Chochinov; Beverley J Cann; Thomas H Hassard; Linda J Kristjanson; Mike Harlos
Journal:  Palliat Med       Date:  2010-07-06       Impact factor: 4.762

2.  Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life.

Authors:  Harvey Max Chochinov; Thomas Hack; Thomas Hassard; Linda J Kristjanson; Susan McClement; Mike Harlos
Journal:  J Clin Oncol       Date:  2005-08-20       Impact factor: 44.544

3.  Translating dignity therapy into practice: effects and lessons learned.

Authors:  Shelley A Johns
Journal:  Omega (Westport)       Date:  2013

4.  Piloting an abbreviated dignity therapy intervention using a legacy-building web portal for adults with terminal cancer: a feasibility and acceptability study.

Authors:  Jennifer Kim Bernat; Paul R Helft; Laura R Wilhelm; Nancy E Hook; Linda F Brown; Sandra K Althouse; Shelley A Johns
Journal:  Psychooncology       Date:  2015-03-09       Impact factor: 3.894

5.  Effect of dignity therapy on distress and end-of-life experience in terminally ill patients: a randomised controlled trial.

Authors:  Harvey Max Chochinov; Linda J Kristjanson; William Breitbart; Susan McClement; Thomas F Hack; Tom Hassard; Mike Harlos
Journal:  Lancet Oncol       Date:  2011-07-06       Impact factor: 41.316

6.  Dignity therapy implementation in a community-based hospice setting.

Authors:  Lori Montross; Kathryn D Winters; Scott A Irwin
Journal:  J Palliat Med       Date:  2011-05-06       Impact factor: 2.947

7.  Dignity therapy for older people in care homes: a qualitative study of the views of residents and recipients of 'generativity' documents.

Authors:  Cassie Goddard; Peter Speck; Pauline Martin; Sue Hall
Journal:  J Adv Nurs       Date:  2012-04-11       Impact factor: 3.187

8.  Cancer incidence and mortality worldwide: sources, methods and major patterns in GLOBOCAN 2012.

Authors:  Jacques Ferlay; Isabelle Soerjomataram; Rajesh Dikshit; Sultan Eser; Colin Mathers; Marise Rebelo; Donald Maxwell Parkin; David Forman; Freddie Bray
Journal:  Int J Cancer       Date:  2014-10-09       Impact factor: 7.396

9.  Care of the human spirit and the role of dignity therapy: a systematic review of dignity therapy research.

Authors:  George Fitchett; Linda Emanuel; George Handzo; Lara Boyken; Diana J Wilkie
Journal:  BMC Palliat Care       Date:  2015-03-21       Impact factor: 3.234

Review 10.  'Dignity therapy', a promising intervention in palliative care: A comprehensive systematic literature review.

Authors:  Marina Martínez; María Arantzamendi; Alazne Belar; José Miguel Carrasco; Ana Carvajal; María Rullán; Carlos Centeno
Journal:  Palliat Med       Date:  2016-08-26       Impact factor: 4.762

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  3 in total

1.  A systematic scoping review on patients' perceptions of dignity.

Authors:  Keith Zi Yuan Chua; Elaine Li Ying Quah; Yun Xue Lim; Chloe Keyi Goh; Jieyu Lim; Darius Wei Jun Wan; Simone Meiqi Ong; Chi Sum Chong; Kennan Zhi Guang Yeo; Laura Shih Hui Goh; Ray Meng See; Alexia Sze Inn Lee; Yun Ting Ong; Min Chiam; Eng Koon Ong; Jamie Xuelian Zhou; Crystal Lim; Simon Yew Kuang Ong; Lalit Krishna
Journal:  BMC Palliat Care       Date:  2022-07-04       Impact factor: 3.113

2.  Dignity therapy online: Piloting an online psychosocial intervention for people with terminal illness.

Authors:  Brenda Bentley; Moira O'Connor; Anne Williams; Lauren J Breen
Journal:  Digit Health       Date:  2020-09-20

3.  Dignity Therapy for End-of-Life Care Patients: A Literature Review.

Authors:  Pearl Ed Cuevas; Patricia Davidson; Joylyn Mejilla; Tamar Rodney
Journal:  J Patient Exp       Date:  2021-02-25
  3 in total

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