Literature DB >> 30035349

Community engagement in global health research that advances health equity.

Bridget Pratt, Jantina de Vries.   

Abstract

Community engagement is gaining prominence in global health research. So far, a philosophical rationale for why researchers should perform community engagement during such research has not been provided by ethics scholars. Its absence means that conducting community engagement is still often viewed as no more than a 'good idea' or 'good practice' rather than ethically required. In this article, we argue that shared health governance can establish grounds for requiring the engagement of low- and middle-income country (LMIC) community members in global health research, where such research aims to help reduce health disparities. This philosophical basis has important implications for the ethical goals ascribed to engagement and the approach adopted to undertake it. We suggest the ethical goals of engagement in equity-oriented global health research should include: (a) generating research topics and questions that reflect the key problems disadvantaged groups face in accessing healthcare, services and broader social determinants of health and (b) promoting the translation of research findings into policy and practice in ways that benefit the health of disadvantaged groups. We propose engagement practice should have the following features: deliberation with LMIC community members to make a range of project decisions, beginning with setting research topics and questions; inclusion of members of disadvantaged groups and those with the power to change policy and practice to benefit them; and purposeful structuring of deliberations to minimize the impact of power disparities between LMIC community members. Finally, we reflect on how these features differ from those typical of much current community engagement practice in LMICs.
© 2018 John Wiley & Sons Ltd.

Keywords:  community engagement; disadvantage; ethics; global health research; health equity; justice

Mesh:

Year:  2018        PMID: 30035349     DOI: 10.1111/bioe.12465

Source DB:  PubMed          Journal:  Bioethics        ISSN: 0269-9702            Impact factor:   1.898


  17 in total

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Authors:  Meredith P Fort; Alejandra Paniagua-Avila; Andrea Beratarrechea; Sayra Cardona; Juan Carlos Figueroa; Kevin Martinez-Folgar; Daniela Moyano; Edgar Barrios; Bernardo Eliu Mazariegos; Eduardo Palacios; Vilma Irazola; Jiang He; Manuel Ramirez-Zea
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2.  Managing community engagement in research in Uganda: insights from practices in HIV/AIDS research.

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Review 3.  Considering culture, context and community in mhGAP implementation and training: challenges and recommendations from the field.

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Journal:  Int J Ment Health Syst       Date:  2019-08-24

4.  Clinical trials in low-resource settings: the perspectives of caregivers of paediatric participants from Uganda, Tanzania and Kenya.

Authors:  Machteld van den Berg; Bernhards Ogutu; Nelson K Sewankambo; Sonja Merten; Nikola Biller-Andorno; Marcel Tanner
Journal:  Trop Med Int Health       Date:  2019-07-01       Impact factor: 2.622

Review 5.  Research for Health Justice: an ethical framework linking global health research to health equity.

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Review 6.  Mapping experiences and perspectives of equity in international health collaborations: a scoping review.

Authors:  Marlyn C Faure; Nchangwi S Munung; Ntobeko A B Ntusi; Bridget Pratt; Jantina de Vries
Journal:  Int J Equity Health       Date:  2021-01-09

Review 7.  Evaluating the promise of inclusion of African ancestry populations in genomics.

Authors:  Amy R Bentley; Shawneequa L Callier; Charles N Rotimi
Journal:  NPJ Genom Med       Date:  2020-02-25       Impact factor: 8.617

8.  Developing a toolkit for engagement practice: sharing power with communities in priority-setting for global health research projects.

Authors:  Bridget Pratt
Journal:  BMC Med Ethics       Date:  2020-03-14       Impact factor: 2.652

9.  Solidarity and Community Engagement in Global Health Research.

Authors:  Bridget Pratt; Phaik Yeong Cheah; Vicki Marsh
Journal:  Am J Bioeth       Date:  2020-06       Impact factor: 14.676

10.  A qualitative analysis of vaccine decision makers' conceptualization and fostering of 'community engagement' in India.

Authors:  Tapati Dutta; Beth E Meyerson; Jon Agley; Priscilla A Barnes; Catherine Sherwood-Laughlin; Jill Nicholson-Crotty
Journal:  Int J Equity Health       Date:  2020-10-20
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