Stephanie H Felgoise1, Richard Feinberg2, Helen E Stephens3, Paul Barkhaus4, Kevin Boylan5, James Caress6, Lora L Clawson7, Lauren Elman8, Stephen A Goutman9, Leo Mccluskey8, James Russell10, Ezgi Tiryaki11, Michael Weiss12, Zachary Simmons3. 1. Department of Psychology, Philadelphia College of Osteopathic Medicine, Philadelphia, Pennsylvania, USA. 2. National Board of Medical Examiners, Philadelphia, Pennsylvania, USA. 3. Department of Neurology, Penn State Hershey Medical Center, Department of Neurology, EC 037, P.O. Box 859, Hershey, Pennsylvania, 17033, USA. 4. Department of Neurology, Medical College of Wisconsin, Milwaukee, Wisconsin, USA. 5. Department of Neurology, Mayo Clinic Jacksonville, Jacksonville, Florida, USA. 6. Department of Neurology, Wake Forest University, Winston-Salem, North Carolina, USA. 7. Department of Neurology, The Johns Hopkins University School of Medicine, Baltimore, Maryland, USA. 8. Department of Neurology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. 9. Department of Neurology, University of Michigan, Ann Arbor, Michigan, USA. 10. Department of Neurology, Lahey Clinic, Burlington, Massachusetts, USA. 11. Department of Neurology, University of Minnesota, Minneapolis, Minnesota, USA. 12. Department of Neurology, University of Washington, Seattle, Washington, USA.
Abstract
INTRODUCTION: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve 58: 646-654, 2018.
INTRODUCTION: The Amyotrophic Lateral Sclerosis (ALS)-Specific Quality of Life instrument and its revised version (ALSSQOL and ALSSQOL-R) have strong psychometric properties, and have demonstrated research and clinical utility. In this study we aimed to develop a short form (ALSSQOL-SF) suitable for limited clinic time and patient stamina. METHODS: The ALSSQOL-SF was created using Item Response Theory and confirmatory factor analysis on 389 patients. A cross-validation sample of 162 patients assessed convergent, divergent, and construct validity of the ALSSQOL-SF compared with psychosocial and physical functioning measures. RESULTS: The ALSSQOL-SF consisted of 20 items. Compared with the ALSSQOL-R, optimal precision was retained, and completion time was reduced from 15-25 minutes to 2-4 minutes. Psychometric properties for the ALSSQOL-SF and its subscales were strong. DISCUSSION: The ALSSQOL-SF is a disease-specific global QOL instrument that has a short administration time suitable for clinical use, and can provide clinically useful, valid information about persons with ALS. Muscle Nerve 58: 646-654, 2018.
Authors: Maisa Vitória Gayoso; Flávia Seullner Domingues; Marcondes Cavalcante França Junior; Stephanie H Felgoise; Acary Souza Bulle Oliveira; Guilherme Antonio Moreira de Barros Journal: Qual Life Res Date: 2019-10-29 Impact factor: 4.147
Authors: Susan L Hartmaier; Thomas Rhodes; Suzanne F Cook; Courtney Schlusser; Chao Chen; Steve Han; Neta Zach; Venkatesha Murthy; Shreya Davé Journal: Health Qual Life Outcomes Date: 2022-01-21 Impact factor: 3.186