Literature DB >> 30024848

Reflections From Co-Researchers With Intellectual Disability: Benefits to Inclusion in a Research Study Team.

Brittany St John1, Iulia Mihaila2, Katelyn Dorrance3, Leann Smith DaWalt3, Karla K Ausderau4.   

Abstract

Participatory action research methodologies may empower and protect marginalized individuals; however, they remain underutilized. Limited studies have investigated the impact of participatory action research, specifically on individuals with intellectual disability (ID). This study examines (1) the perspectives of co-researchers with ID on their involvement in the research process and (2) the feasibility of their inclusion based on perspectives of research staff (academic faculty and graduate students without ID). Three co-researchers with ID were interviewed regarding their research participation. Thematic analysis of interviews identified four themes: (1) Shared Experience of Disability, (2) Teaching and Guidance, (3) Acquisition of Skills and Knowledge, and (4) Value of Participation. Research staff reviewed field notes and identified benefits and challenges to feasibility of including co-researchers with ID. Inclusion of co-researchers with ID was found to be both meaningful and feasible.

Entities:  

Keywords:  co-researcher; inclusive research; intellectual disability; participatory methods

Mesh:

Year:  2018        PMID: 30024848      PMCID: PMC6348152          DOI: 10.1352/1934-9556-56.5.251

Source DB:  PubMed          Journal:  Intellect Dev Disabil        ISSN: 1934-9491


  4 in total

Review 1.  A Systematic Review of Health Promotion Programs to Improve Nutrition for People with Intellectual Disability.

Authors:  Sarah Dean; Josephine Marshall; Erin Whelan; Jo Watson; Christina Zorbas; Adrian J Cameron
Journal:  Curr Nutr Rep       Date:  2021-12-10

2.  "We are the stakeholders with the most at stake": scientific and autism community co-researchers reflect on their collaborative experience in the CONNECT project.

Authors:  Caroline Jose; Patricia George-Zwicker; Louise Tardif; Aaron Bouma; Darlene Pugsley; Luke Pugsley; Mathieu Bélanger; Jeffrey Gaudet; Marc Robichaud
Journal:  Res Involv Engagem       Date:  2020-09-27

Review 3.  Opening the door to university health research: recommendations for increasing accessibility for individuals with intellectual disability.

Authors:  Brittany M St John; Emily Hickey; Edward Kastern; Chad Russell; Tina Russell; Ashley Mathy; Brogan Peterson; Don Wigington; Casey Pellien; Allison Caudill; Libby Hladik; Karla K Ausderau
Journal:  Int J Equity Health       Date:  2022-09-10

4.  A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research.

Authors:  N E Conroy; K E McDonald; R S Olick
Journal:  J Intellect Disabil Res       Date:  2021-08-09
  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.