Literature DB >> 30014621

Choreographing Death: A Social Phenomenology of Medical Aid-in-dying in the United States.

Mara Buchbinder1.   

Abstract

This article draws on ethnographic research on the implementation of Vermont's 2013 medical aid-in-dying (AID) law to explore a fundamental paradox: While public discourse characterizes AID as a mechanism for achieving an individually controlled autonomous death, the medico-legal framework that organizes it enlists social support and cultivates dependencies. Therefore, while patients pursuing AID may avoid certain types of dependency-such as those involved in bodily care-the process requires them to affirm and strengthen other bureaucratic, material, and affective forms. By tracing the social phenomenology of several AID deaths, I illustrate how AID results in distinctive forms of sociality and dependency that require terminally ill people and caregivers to embrace a collaborative stance toward choreographing death. I argue that assisted dying offers an opportunity to resist dominant U.S. cultural narratives that view dependency in purely negative terms and reimagine the relationships between disability, dependency, and care at the end of life.
© 2018 by the American Anthropological Association.

Entities:  

Keywords:  United States; care; death and dying; dependency; sociality

Mesh:

Year:  2018        PMID: 30014621     DOI: 10.1111/maq.12468

Source DB:  PubMed          Journal:  Med Anthropol Q        ISSN: 0745-5194


  4 in total

1.  Comparison of the experience of caregiving at end of life or in hastened death: a narrative synthesis review.

Authors:  Jane Lowers; Melissa Scardaville; Sean Hughes; Nancy J Preston
Journal:  BMC Palliat Care       Date:  2020-10-08       Impact factor: 3.234

2.  Practical and ethical complexities of MAiD: Examples from Quebec.

Authors:  Gitte Koksvik
Journal:  Wellcome Open Res       Date:  2020-11-23

3.  Travelling to die: views, attitudes and end-of-life preferences of Israeli considering receiving aid-in-dying in Switzerland.

Authors:  Daniel Sperling
Journal:  BMC Med Ethics       Date:  2022-04-30       Impact factor: 2.834

4.  Medicalisation, suffering and control at the end of life: The interplay of deep continuous palliative sedation and assisted dying.

Authors:  Gitte Hanssen Koksvik; Naomi Richards; Sheri Mila Gerson; Lars Johan Materstvedt; David Clark
Journal:  Health (London)       Date:  2020-12-11
  4 in total

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