Sanne A H Giesbers1,2, Tess Tournier1,3, Lex Hendriks4, Richard P Hastings5,6, Andrew Jahoda7, Petri J C M Embregts1. 1. Tranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands. 2. Dichterbij Innovation and Science, Gennep, The Netherlands. 3. ASVZ, Sliedrecht, The Netherlands. 4. Faculty of Social Sciences, School of Pedagogical and Educational Science, Radboud University Nijmegen, Nijmegen, The Netherlands. 5. Centre for Educational Development, Appraisal and Research, University of Warwick, Coventry, UK. 6. Centre for Developmental Psychiatry and Psychology, Department of Psychiatry, School of Clinical Sciences at Monash Health, Monash University, Melbourne, Australia. 7. Psychological Medicine, University of Glasgow, Glasgow, UK.
Abstract
BACKGROUND: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. METHOD: The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts. RESULTS: By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability. CONCLUSIONS: The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability. 2018 The Authors. Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd.
BACKGROUND: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method - Intellectual Disability (FNM-ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. METHOD: The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts. RESULTS: By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM-ID can be analysed using social network analysis. Thereby, the FNM-ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability. CONCLUSIONS: The FNM-ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability. 2018 The Authors. Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd.
Authors: Judit Fullana; Gemma Díaz-Garolera; Carolina Puyaltó; Ana Rey; Rosario Fernández-Peña Journal: Int J Environ Res Public Health Date: 2021-11-11 Impact factor: 3.390
Authors: Sanne A H Giesbers; Alexander H C Hendriks; Richard P Hastings; Andrew Jahoda; Tess Tournier; Petri J C M Embregts Journal: Health Soc Care Community Date: 2021-05-12