Literature DB >> 30001803

Parents' Need-related Experiences and Behaviors When Raising a Child With Autism Spectrum Disorder.

Lisa M Dieleman1, Tinneke Moyson2, Sarah S W De Pauw3, Peter Prinzie4, Bart Soenens5.   

Abstract

PURPOSE: Research suggests that parenting a child with autism spectrum disorder (ASD) brings about major challenges to parents' own psychological resources. Considered through the lens of Self-Determination Theory (Ryan & Deci, 2017), parents rearing a child with ASD particularly face challenges to their psychological needs for autonomy, competence, and relatedness. In turn, these challenges potentially jeopardize parents' capacity to attune to their child. This qualitative study aims to advance insight into (the interplay between) parents' experiences and parenting behaviors when raising a child with ASD, thereby using SDT as a framework to understand how these experiences and behaviors relate to the psychological needs for autonomy, relatedness and competence. DESIGN AND METHODS: Fifteen parents of children with ASD, aged 6 to 17, participated in an interview concerning their behaviors and experiences in raisin their child with ASD.
RESULTS: Four sets of parental behaviors and five sets of parental experiences were identified, with the majority being relevant to the psychological needs postulated by SDT.
CONCLUSIONS: The findings of this study provide (1) a deeper understanding of the threats and opportunities for the well-being of parents of children with ASD, (2) an in-depth insight into how these parents adjust their parenting behaviors to their child, and (3) an understanding of how parents' need-related experiences and parenting behaviors are dynamically intertwined. PRACTICAL IMPLICATIONS: By structuring how parents perceive threats and opportunities when raising a child with ASD within the SDT-framework, important targets for parent-support are identified.
Copyright © 2018 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Autism spectrum disorder; Need-related experiences; Parenting; Qualitative research; Self-determination theory

Mesh:

Year:  2018        PMID: 30001803     DOI: 10.1016/j.pedn.2018.06.005

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  3 in total

1.  Quality of Life among Mothers of High Functioning Autism Spectrum Disorder (HFASD)Adolescents.

Authors:  Nur Saadah Mohamad Aun; Siti Marziah Zakaria; Abdul Rahman Ahmad Badayai; Idayu Badilla Idris; Tuti Iryani Mohd Daud; Shima Dyana Mohd Fazree
Journal:  Int J Environ Res Public Health       Date:  2022-05-30       Impact factor: 4.614

2.  Mental Health and Coping in Parents of Children with Autism Spectrum Disorder (ASD) in Singapore: An Examination of Gender Role in Caring.

Authors:  Karen Qian Ping Ang; Pek Ru Loh
Journal:  J Autism Dev Disord       Date:  2019-05

3.  Diagnostic Yield and Economic Implications of Whole-Exome Sequencing for ASD Diagnosis in Israel.

Authors:  Rotem Tal-Ben Ishay; Apurba Shil; Shirley Solomon; Noa Sadigurschi; Hadeel Abu-Kaf; Gal Meiri; Hagit Flusser; Analya Michaelovski; Ilan Dinstein; Hava Golan; Nadav Davidovitch; Idan Menashe
Journal:  Genes (Basel)       Date:  2021-12-23       Impact factor: 4.096

  3 in total

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