Literature DB >> 29983089

Mothers' experiences of their work as healthcare assistants for their chronic disabled child.

Louise Ranehov1, Carita Håkansson2.   

Abstract

BACKGROUND: To the best of our knowledge, no research of the work situation of full-time, paid, parental HC assistants has been done. AIM: To examine how parents experienced their work as HC assistants for their chronic disabled child.
METHODS: Semi-structured interviews based on the Work Environment Impact Scale (WEIS-S) were done with nine mothers who had a child aged 8-17 years old with a cognitive or/and physical chronic disability. Content analysis was used with the Model Of Human Occupation as a framework.
RESULTS: The studied mothers always needed to be stand-by for their child, and they highlighted physical and psychological health problems caused by their work situation. There were several difficulties working in different environments because of the child's need of technical devices. Further they described the support from their employers as important and in general the participants perceived a lack of understanding about their work situation in the society.
CONCLUSION: The mothers in the present study had unclear job descriptions, they often worked more than full-time, and had low occupational balance. SIGNIFICANCE: Occupational therapists could improve the HC assistants' work place focusing on the physical and psycho-social work environment as well as on their occupational balance.

Entities:  

Keywords:  Care givers; home care agencies; home care services; occupational imbalance; work environment

Mesh:

Year:  2018        PMID: 29983089     DOI: 10.1080/11038128.2018.1483427

Source DB:  PubMed          Journal:  Scand J Occup Ther        ISSN: 1103-8128            Impact factor:   2.611


  3 in total

1.  Mothers Who Take Care of Children with Disabilities in Rural Areas of a Spanish Region.

Authors:  Pablo A Cantero-Garlito; Pedro Moruno-Miralles; Juan Antonio Flores-Martos
Journal:  Int J Environ Res Public Health       Date:  2020-04-23       Impact factor: 3.390

2.  Theoretical care model for children with congenital Zika virus syndrome in the family context.

Authors:  Gracimary Alves Teixeira; Aylla Nauana da Silva; Larissa Soares Mariz Vilar de Miranda; Marcela Paulino Moreira da Silva; Elisângela Franco de Oliveira Cavalcante; Bertha Cruz Enders
Journal:  Rev Lat Am Enfermagem       Date:  2021-06-28

3.  Fathers in the Care of Children with Disabilities: An Exploratory Qualitative Study.

Authors:  Brenda M Uribe-Morales; Pablo A Cantero-Garlito; Carmen Cipriano-Crespo
Journal:  Healthcare (Basel)       Date:  2021-12-22
  3 in total

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