Utsana Tonmukayakul1, Sophy T F Shih2, Helen Bourke-Taylor3, Christine Imms4, Dinah Reddihough5, Liz Cox6, Rob Carter2. 1. Deakin University, Geelong, Centre for Population Health Research, Locked Bag 20000, Geelong, Victoria, 3220, Australia. Electronic address: utsana.tonmukayakul@deakin.edu.au. 2. Deakin University, Geelong, Centre for Population Health Research, Locked Bag 20000, Geelong, Victoria, 3220, Australia. 3. School of Primary and Allied Health Care, Faculty of Medicine Nursing and Health Sciences, Monash University, Building G, McMahons Road, Frankston, Victoria, 3199, Australia. 4. Centre for Disability and Development Research, Australian Catholic University, Level 2, Daniel Mannix Building, 11 Young Street, Fitzroy, Victoria, 3065, Australia. 5. Murdoch Children's Research Institute, The University of Melbourne, Royal Children's Hospital, Flemington Road, Parkville, Victoria, 3052, Australia. 6. Victoria Managed Insurance Authority, Level 10 South, 161 Collins Street, Melbourne, Victoria, 3000, Australia.
Abstract
BACKGROUND: Cerebral palsy (CP) and its associated conditions can pose a significant economic burden on families, the health care system and the general economy. The boundary for inclusion of costs in research can vary substantially across studies. AIMS: To summarize the evidence for burden of disease for CP including the impacts on the health system, the community and carers. METHODS: Literature was identified from Ovid Medline, Embase, CINHAL, PsyInfo, Econlit, Health Economic Evaluation Database (HEED) and NHS Economic Evaluation Database (NHS EED) in the Cochrane Library. The search was restricted to articles published in English between 1970 and April 2016. All costs were converted to $USD 2016 price. RESULTS: Twenty-two articles were included. Studies varied from snapshot cost descriptions to more complex lifetime estimates, from prevalence-based to incidence-based studies, and from inclusion to exclusion of non-medical costs. There was a strong positive relationship between CP severity and expenditure. Significant costs were incurred by families and the welfare system to facilitate school and community engagement. CONCLUSION: Facilitating participation for people with CP involves substantial expense. The size, nature and distribution of the economic burden emphasises the importance of finding effective strategies to reduce the risk and severity of CP, together with how it is financed. Crown
BACKGROUND:Cerebral palsy (CP) and its associated conditions can pose a significant economic burden on families, the health care system and the general economy. The boundary for inclusion of costs in research can vary substantially across studies. AIMS: To summarize the evidence for burden of disease for CP including the impacts on the health system, the community and carers. METHODS: Literature was identified from Ovid Medline, Embase, CINHAL, PsyInfo, Econlit, Health Economic Evaluation Database (HEED) and NHS Economic Evaluation Database (NHS EED) in the Cochrane Library. The search was restricted to articles published in English between 1970 and April 2016. All costs were converted to $USD 2016 price. RESULTS: Twenty-two articles were included. Studies varied from snapshot cost descriptions to more complex lifetime estimates, from prevalence-based to incidence-based studies, and from inclusion to exclusion of non-medical costs. There was a strong positive relationship between CP severity and expenditure. Significant costs were incurred by families and the welfare system to facilitate school and community engagement. CONCLUSION: Facilitating participation for people with CP involves substantial expense. The size, nature and distribution of the economic burden emphasises the importance of finding effective strategies to reduce the risk and severity of CP, together with how it is financed. Crown
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