Literature DB >> 29977433

National Dementia Strategies: What Should Canada Learn?

Selina Chow1, Ronald Chow1, Angela Wan1, Helen R Lam1, Kate Taylor1, Katija Bonin1, Leigha Rowbottom1, Henry Lam1, Carlo DeAngelis1, Nathan Herrmann1.   

Abstract

BACKGROUND: In order to provide appropriate care for the aging population, many countries are adopting a National Dementia Strategy (NDS). On June 22, 2017, Canada announced it will become the 30th country to launch a NDS. In light of this announcement and as Canada prepares to develop its own NDS, we conducted this review to examine and compare the NDSs of the other previous 29 countries with Canadian government's policies to date.
METHODS: NDSs were compared according to their major priorities. The primary endpoints were the framework conditions and key actions outlined in the strategies. Secondary endpoints included the years active, involvement of stakeholders, funding, and implementation.
RESULTS: We were able to review and compare 25 of the 29 published NDSs. While the NDSs of each country varied, several major priorities were common among the strategies-increasing awareness of dementia, reducing its stigma, identifying support services, improving the quality of care, as well as improving training and education and promoting research.
CONCLUSIONS: This review comprehensively lists and compares the NDSs of different countries. The results should be of great interest to policy-makers, health-care professionals and other key stakeholders involved in developing Canada's forthcoming NDS. We hope that policy-makers in Canada can review other NDSs, learn from their example, and develop an effective NDS for our country.

Entities:  

Keywords:  dementia; government; national dementia strategy; policy

Year:  2018        PMID: 29977433      PMCID: PMC6028171          DOI: 10.5770/cgj.21.299

Source DB:  PubMed          Journal:  Can Geriatr J        ISSN: 1925-8348


INTRODUCTION

In 2015, approximately 46.8 million people worldwide had dementia, and this figure will almost double every 20 years—75 million in 2030 and 131.5 million by 2050. With the medical advances and improved health care over the last century, the expected lifespan of individuals is increasing, accompanied by a rise in the number of people living with dementia.( As a result of the increasing prevalence of dementia, the significant economic impact from this illness will only continue to grow. In 2015, the total estimated global cost of dementia was 818 billion USD, which accounted for 1.09% of the world’s GDP. However, these costs underestimate the true economic impact of dementia, as it is limited to caring for diagnosed patients, which is estimated to account for only one-quarter of all patients who suffer from dementia.( As the awareness and knowledge of dementia increases in the near-future, more cases of dementia will likely be diagnosed; along with the projected increase in dementia among the aging population, health-care costs will only trend upwards. In order to address this changing demographic, many countries are adopting a National Dementia Strategy (NDS) as a comprehensive government plan to provide appropriate medical care for people with dementia. A government dementia plan is a policy whereby the national government holds itself accountable to carry out its stated specific objectives and policy changes, although objectives can be accomplished with non-governmental collaborators. Recommendations on the process of public policy creation have been published, and are listed in Table 1.( Created using input from various stakeholders (i.e., government agencies, legislators, residential and community care providers, professional and family carers, researchers, physicians, and people with dementia), the NDS is tailored specifically to the unique culture and demographics of each country to address a range of issues. Common priorities for NDSs include: raising awareness of the disease, combating stigma, identifying support services, quantifying the number of individuals with dementia, assessing and improving the quality of dementia care, and assessing the availability and access to diagnostic services. These strategies have been well-received and reported as the single most powerful tool to transform dementia care and support within a country.(
TABLE 1

Principles of population health policya

RecommendationPrinciple
1

Include directives, plans, and courses of action documented in writing

2

Prioritize early detection, treatment, and rehabilitation following disease among at-risk and symptomatic individuals

3

Include political, economic, epidemiological, ethical, behavioral, and legal considerations when developing population health policy

4

Population health needs vary among groups across different demographics and jurisdictions

Population health policies need to balance standardization with customization of interventions

5

When evaluating the effect of population health policy on outcomes, the social determinants of health must be taken into account

6

To manage population health, align strategic planning with the management of human resources

Identify population health needs through available health needs assessments and input from affected population members

Adapted from Reference #2.

On June 22, 2017, Canada announced it will become the 30th country to launch a National Dementia Strategy.( The timing of this announcement was curious in view of the fact that, at the G8 Dementia Summit in London on December 11, 2013, the G8 Health Ministers met to discuss how to shape an effective international response to dementia. They committed to carry out 12 dementia public health policy actions, with Canada and France co-leading this initiative.( Subsequent to this, on September 11, 2014, at a meeting with leading researchers and dementia industry experts in Ottawa, the Federal Health Minister acknowledged that Canada was the only G7 nation without a NDS. As such, the government began planning a new National Dementia Research and Prevention Plan.( Canada’s laggard response to NDS development can only be a matter of speculation. In light of the recent news that Canada is now finally developing a NDS, we conducted this review with the purpose of examining and comparing the NDSs across the 29 prior countries with Canadian government policies to date. This information could provide valuable insight for clinicians, researchers, and policy-makers about pre-existing policies in other countries, to potentially aid in the development of a comprehensive and effective strategy for Canada.

METHODS

Selection Criteria

All the NDSs were retrieved from Alzheimer’s Disease International.( For countries that have published several NDSs over time, only the current or most recent strategy was included, to allow for cross-country comparison. For strategies published in foreign languages, online translation services were employed. Strategies that were not publicly available from its corresponding country were excluded.

Data Extraction and Endpoints

The 29 countries are defined according to Alzheimer’s Disease International.( NDSs of countries were compared according to their major priorities. The primary endpoints were the framework conditions and key actions outlined in the strategy. Secondary endpoints included the years active, involvement of stakeholders, funding, and implementation. Data extraction from the 29 national strategies was delegated among the authors, who worked in pairs. For each national strategy, one author extracted endpoints and another author verified the extracted data to ensure accuracy and consistency in the results.

RESULTS

Of the 29 countries identified as having a NDS, 25 were published in English or in a language/medium that could be readily translated to English using online translation services. ( The literature published by the countries of Argentina,( Costa Rica,( Macau, and Slovenia( were not publicly available online and/or could not be translated to English for inclusion in our review. A summary of each NDS is provided in Table 2. While the NDSs of each country varied, several major priorities were common among most of the strategies: increasing awareness of dementia, reducing the stigma surrounding the illness, identifying support services, improving the quality of care, as well as improving training and education and promoting research. Several NDSs also specified the funding received to carry out the strategy, along with how the strategy will be implemented.
TABLE 2

Summary of national dementia strategies

CountryYears ActiveFramework ConditionsKey ActionsInvolvement of StakeholdersFundingImplementation
Australia(7)2015 – 2019i. Increase awareness and reduce riski.

Develop dementia-friendly communities

Launch awareness campaigns

Adopt collaborative evidence-based approach for awareness and risk reduction activities

Promote healthy and physically active lifestyles

Australian Health Ministers Advisory Council

Individuals with dementia

Caregivers

Families

Doctors

Service providers

National Health Medical and Research Council funds research

$200 M over 5 years committed by Australian Government for dementia research

○ Includes $50 M to establish a National Institute for Dementia Research

Did not mention
ii. Address need for timely diagnosisii.

Provide education and ongoing training for healthcare professionals

Use multi-disciplinary approach for diagnosis

iii. Access to care and support post diagnosisiii.

Develop dementia-specific healthcare teams

Provide education, training, and support for caregivers and families

iv. Access to ongoing care and supportiv.

Provide support services and education programs for caregivers

Provide access to advice, support, and respite services for patients and families

Provide specialist medical and non-medical services in residential aged care facilities

Provide mental health services for people with behavioral and psychological symptoms of dementia

v. Access to care and support during and after hospital carev.

Improve assessment of cognitive impairment and dementia on admission in the acute healthcare setting

Develop evidence-based clinical care pathway for patients

Develop standards to ensure consistency among care and admissions/discharges from the acute care setting

vi. Access to end-of-life and palliative carevi.

Promote advance care planning after diagnosis of dementia

Provide training and education for advance care planning options and palliative approaches

Develop care and referral pathways to enable seamless transition to palliative care

vii. Promote researchvii.

Conduct dementia research into areas such as: causes, diagnosis, care, treatment, cure

Explore opportunities for collaborative research with other National Health Priority Areas

Improve hospital data collection of dementia


Cuba(8) (Unofficial English translation)2013i. Increase awareness and reduce riski.

Provide more education and information

Cuban Section of Alzheimer

National Directorate of Elderly

Did not mention

Annual meetings will be held to discuss progress and implementation of national strategy

National Directorate of Primary Health Care, the Department of the Elderly, Mental Health and Social Welfare will monitor and coordinate the Key Actions

Cuban Section of Alzheimer, Scientific Societies, Universities, Research Centers and Relief will conduct dementia research

Universities of Medical Sciences, along with the Departments of Geriatrics, Neurology, and Psychiatry in teaching hospitals, will train healthcare professionals involved with dementia care

Cuban Institute of Radio and Television will develop and disseminate educational messages to the public

ii. Develop dementia-friendly communitiesii.

Establish residential facilities specialized for caring for people with dementia

Create support networks for caregivers

Increase staff training for providers of dementia care

iii. Promote prevention and early diagnosisiii.

Did not mention

iv. Implement “Guidelines for Good Clinical Practice” for dementia careiv.

Use the guidelines in daily clinical practice

v. Increase the availability of specialists in dementia carev.

Provide geriatrics training for related specialties: general medicine, internal medicine, neurology, psychiatry, nurses, psychologists, social workers

Offer graduate courses for students and refresher courses for healthcare professionals about dementia

vi. Increase availability of treatmentsvi.

Promote alternative treatment options: cognitive stimulating activities, physical exercise, etc.

vii. Reduce stigmavii.

Launch dementia campaigns, television and radio programs, and health promotion activities

Develop and disseminate educational messages

Establish annual dementia programs for “World Alzheimer’s Day” on September 21

viii. Promote patients’ rightsviii.

Provide training to healthcare professionals about laws and rights of people with dementia

Require healthcare professionals to maintain complete medical history of patients, including neuropsychological tests

Require healthcare professionals to be responsible for assessing mental competency of patients

ix. Promote researchix.

Conduct dementia research into areas such as: risk factors, incidence rates, diagnostic tools (e.g. genetic counseling, neuroimaging, biomarkers)


Czech Republic(9) (Online translation service used)2016–2019i. Improve early diagnosisi.

Adapt internationally accepted best practices for diagnosis of dementia

Ensure public health insurance covers the costs for dementia care

Include cognitive assessments in general medical examinations of seniors

Ministry of Health

Ministry of Labor and Social Affairs

Czech Alzheimer’s Society

Czech Neurological Society

Czech Gerontological and Geriatric Society

Psychiatric Society

Czech Association of Nurses

Ministry of Health

Health insurance

European Social fund

European Structural and Investment funds

National budget

Strategy will be updated annually and progress on the implementation will be presented to the government

The National Institute will implement dementia training programs for teachers

ii. Standardize treatment methodsii.

Establish standardized treatment methods for neurology, psychiatry, and geriatrics

Prevent over-use of antipsychotic agents

iii. Improve access to careiii.

Promote the development of highly specialized interdisciplinary centers to care for atypical dementia patients

Establish structured network of dementia centers

iv. Increase support for caregiversiv.

Establish a financial support system for caregivers

Provide support for employed people who are informal caregivers

Provide psychological support for caregivers

Promote the development of peer support groups

v. Educate informal caregiversv.

Offer accredited educational courses

vi. Train professionalsvi.

Provide accredited courses about dementia to professionals who work with these patients

Provide training for healthcare professionals in neurology, psychiatry, geriatrics, long-term care, and palliative medicine

vii. Increase awarenessvii.

Organize public information campaigns through the media

Reduce stigma

viii. Promote intergenerational solidarity in societyviii.

Did not mention

ix. Educate public sector workersix.

Educate each profession in public sector about dementia

Organize training programs for teachers

Publish training materials online: www.rvp.cz

x. Implement epidemiological surveillance and monitoringx.

Collect data for statistical monitoring of prevalence of dementia

Use this data to plan health and social services

xi. Cooperate with other countriesxi.

Exchange experience, data, information, and best practices with other countries

Participate in European and global dementia initiatives

xii. Assess ability of patients to drive safelyxii.

Establish standardized rules for assessing the ability of elderly to drive safely

xiii. Promote researchxiii.

Continue supporting basic and applied biomedical research

Promote international cooperation in research


England(10)2009i. Increase awarenessi.

Launch public information campaigns

Promote prevention methods and timely diagnosis and care

Provide educational material to schools

Department of Health Programme Board

Department of Health Working Group

External Reference Group

Individuals with dementia

Specific target groups of patients:

○ Younger people

○ People with learning disabilities

○ People from minority ethnic groups

○ People from rural and island communities

○ Prisoners

○ Caregivers

Decisions on funding were made after results from the initial demonstrator sites and evaluation work are analyzed

Led by the Department of Health

Established regional support teams support local implementation

Established a national baseline measurement of services

Conducted annual reviews of current services

Monitored progress of implementation over time

ii. Establish memory servicesii.

Commission local memory services

iii. Increase information available for patients and caregiversiii.

Provide information and support services at diagnosis and throughout course of care for patients and caregivers

iv. Provide continuity of supportiv.

Provide easy access to care, support, and advice following diagnosis

Establish new role of a “dementia adviser” to serve as point of contact for patients and caregivers

v. Promote peer supportv.

Develop structured peer support and learning networks

vi. Improve community personal support servicesvi.

Implement “Putting People First” personalization changes for people with dementia

Establish effective specialist services to support patients living at home

vii. Implement “Caregivers’ Strategy”vii.

Ensure that needs of caregivers are met

Promote development of breaks that benefit both patients and caregivers

viii. Improve care in hospitalsviii.

Identify senior doctor to take the lead for quality improvement of dementia care

Develop explicit care pathway for management and care of patients

Commission specialist liaison older people’s mental health teams

ix. Improve intermediate careix.

Include and address needs of people with dementia in the revision of the Department of Health’s 2001 guidance on intermediate care

x. Improve housing for patientsx.

Develop housing support, housing-related services, assistive technology, and telecare for individuals with dementia

xi. Improve care in dementia care homesxi.

Identify senior staff member to take lead for quality improvement of dementia care

Develop local strategy for management and care of patients

Commission specialist in-reach services from older people’s community mental health teams

Commission other in-reach services: primary care, pharmacy, dentistry

xii. Improve end-of-life carexii.

Initiate projects and evaluations to fill in current gap of definitive data in this area

Improve pain relief and nursing support

xiii. Promote workforce competencies, development, and trainingxiii.

Establish effective basic training and continuous professional development in dementia

xiv. Monitor performance and evaluate dementia servicesxiv.

Conduct routine inspections for care homes and other service providers

xv. Promote researchxv.

The Medical Research Council and Department of Health will convene a summit of parties interested in dementia research


Finland(11)2012–2020i. Promote brain healthi.

Develop indicators and produce more information about brain health and prevention of memory disorders

Educate professionals in different sectors (e.g. sports)

Educate students in all stages of schooling

Finnish Ministry of Social Affairs and Health

Finland’s National Development Programme for Social Welfare and Health Care and Finland’s Slot Machine Association will fund brain health promotion

Development of dementia services will be funded by Finland’s Slot Machine Association, the Finnish Funding Agency for Technology and Innovation, and other parties that grant funds for research and development

Research funding agencies will fund dementia research conducted at universities

Finnish Ministry of Social Affairs and Health will coordinate brain health promotion

National Institute for Health and Welfare, universities, and other research organizations will develop indicators and produce more information about brain health

National Institute for Health and Welfare, the Finnish Institute of Occupational Health, and the Association of Finnish Local and Regional Authorities will support local authorities during implementation

Joint municipal authorities in charge of hospital districts will update their healthcare provision plans to cover brain health

National Institute for Health and Welfare will develop the online memory portal: www.muisti.fi

ii. Increase dementia awarenessii.

Launch public awareness campaign

Develop online memory portal with information about memory loss

iii. Ensure a good quality of life for patients and familiesiii.

Establish regional outpatient clinics offering primary healthcare services

Establish outpatient clinics offering specialist medical care in hospital districts and catchment areas

Develop clinical pathways for dementia care

Provide 24-hour care for patients

iv. Improve dementia careiv.

Investigate potential to establish national network of centres of expertise

Develop national criteria and indicators for quality control and supervision of dementia services

Develop national targets for prerequisite skills of professionals working with people with dementia


France(12)2008–2012i. Improve diagnosisi.

Develop care pathway for the diagnosis and counselling of dementia

Improve assessment and diagnosis services

National Social and Medico-Social Evaluation Agency

National Health Authority

Directorate General for Social Action

Directorate General for Health

Assembly of French Departments

National Employees’ Pension Fund

France Alzheimer

Medical specialists

Representatives of social and healthcare services

Representatives of local authorities

Representatives of the research community and partner organizations

Health insurance system

National Fund for the Autonomy of Elderly and Disabled People

Over 1.2 B Euros of funding in total

○ Includes 200 M Euros for improving healthcare

○ Includes 200 M Euros for research

Led by Professors Michel Clanet, Joël Ankri and Etienne Hirsch

Evaluated and reported progress to the President every 6 months

ii. Improve treatment and support servicesii.

Appoint coordinators to facilitate connections between different healthcare professionals caring for patients

Provide support to patients living at home

Establish specific units for patients with behavioral problems

Provide accommodations for younger patients

Establish national reference centre for younger adults with dementia

Develop and diversify respite structures

Establish phone helpline and website providing information and advice

iii. Promote researchiii.

Establish the “Foundation for Scientific Cooperation” to coordinate research

Publicize and promote research across Europe


Greece(13)2015–2020i. Record and classify patients with dementia into different categories based on type of disease and specific needsi.

Provide financial support for patients according to algorithm of disease and of families’ financial burdens

Ministry of Health

Local Administration Organizations

Ministry of Education – Universities

National School of Public Health

Healthcare professionals

Alzheimer’s Association

Centers of Excellence for Dementia

Charities

Research institutions

Ministry of Health

National Organization for Rendering Health Services

European Union Structural Funds

Corporate Social Responsibility

Charities

Private groups

Coordinators in hospitals will ensure that examination and hospitalization protocols are implemented

ii. Increase awarenessii.

Promote prevention methods

iii. Support caregiversiii.

Provide support services for caregivers

iv. Improve dementia careiv.

Integrate dementia services in primary care

Coordinate services for dementia patients with co-morbidities and attend to Emergency Care Units

Establish Memory and Cognitive Disorders Clinic in all regional hospitals

Establish day care centers, long-term care facilities and end-of-life institutions for people with dementia

Develop home care and telemedicine services for patients with limited access to health services

v. Enhance patients’ and caregivers’ rightsv.

Change current legislations to include needs of patients and caregivers

Adopt legislation aimed specifically at dementia

vi. Enhance educationvi.

Offer clinical and research scholarships

Establish “Centres of Excellence for Dementia” to provide education for specialized doctors

vii. Promote researchvii.

Participate in international research


Indonesia(14)2016i. Improve dementia carei.

Provide education and training programs for staff involved in dementia care

Ministry of Home Affairs

Ministry of Social Affairs

Ministry of Health

National Family Planning Coordinating Board

Coordinating Ministry for People’s Welfare

Ministry of Education and Culture

Ministry of Finance

Social insurance

Institute of Sciences

Academy of Sciences

Directorate General of Higher Education

State budget

Local budget

International agencies

Non-governmental organizations

Private sector

Businesses

Progress will be monitored by central and district governments, the Commission for the Elderly, universities, and non-governmental organizations

ii. Promote good brain health for productive older adultsii.

Promote dementia services

Establish cognitive health program

Launch public campaign to promote brain-healthy lifestyles

iii. Manage cognitive disorders early to prevent dementiaiii.

Implement early detection, diagnosis and holistic management of cognitive disorders and dementia


Ireland(15)2011–2016i. Increase awarenessi.

Educate public about healthy lifestyles and cardiovascular risk factors of dementia

Implement “The National Physical Activity Plan” to promote regular physical activity

Reduce stigma

Caregivers

Individuals with dementia

Local authorities

State agencies

Service providers

Working Group

○ Healthcare professionals

○ Researchers

○ Representatives of the Department of Health and the Health Service Executive

105,000 Euros pledged by government to support the plan during the first year

The Health Service Executive delegated responsibilities of implementation within its own facilities

Senior doctor within each hospital led implementation

ii. Provide timely diagnosis and interventionii.

Review existing dementia services

Provide general practitioners with dementia-specific resources

Develop guidance material about medication management for nursing homes

iii. Provide integrated services, support and careiii.

Review and identify gaps in existing social services for patients

Optimize resources invested in home care and respite care

Evaluate potential of assistive technology

Provide information on advocacy and voluntary organizations to patients and families

iv. Provide training and educationiv.

Provide dementia-specific training for healthcare professionals

v. Establish leadership roles in dementia carev.

Appoint healthcare professional in primary care services to coordinate each patient’s care

Designate senior management of the Health Service Executive to respond to any concerns regarding dementia

Establish a “Work Stream on Dementia Care” by The Clinical Strategy and Programmes Division


Israel(16)2013i. Increase awareness and reduce stigmai.

Launch public education campaigns

Disseminate culturally adapted information

Increase awareness of patients’ and patient families’ rights

Ministry of Health

Ministry of Social Affairs and Social Services

National Insurance Institute of Israel

Ministry for Senior Citizens

Alzheimer’s Society of Israel

Melabev (a nonprofit organization for Alzheimer’s)

Academia and Health System

Myers-Joint Distribution Committee-Brookdale Institute of Gerontology

Joint Distribution Committee-Eshel (The Association for the Planning and Development of Services for the Aged in Israel)

Did not mention

National health insurance law will be responsible for creating the care package for patients

Resources will be allocated, and legislative changes will be promoted as needed

Priorities and goals will be set in every ministry, and a multi-year plan will be formulated

ii. Improve community health servicesii.

Establish program to promote prevention of dementia

Develop care package for patients

Expand use of drug therapy

Increase referrals to non-medical treatments

Create new role of “nurse coordinator” to ensure continuity of care

Improve treatment of advanced dementia at end-of-life

iii. Improve community social servicesiii.

Provide more intensive care for patients requiring supervision

Prioritize cognitive deterioration when assessing patients’ independence

Establish additional daycare centres and expand its operating hours

iv. Improve support for caregiversiv.

Increase wages for caregivers

Establish information and consultation centres accessible by phone

Establish respite care within daycare facilities

Increase awareness of families’ legal rights

Develop auxiliary technologies

v. Adapt long-term care services to the changing needs of patientsv.

Increase availability of beds to meet the needs in different regions

Project future needs and monitor increases in supply

Develop models for institutional care

vi. Expand training resourcesvi.

Expand clinical professionals’ scope of study

Provide training for general practitioners on the diagnosis and management of dementia care

vii. Promote researchvii.

Define outcome measures

Develop agenda for research

Consider establishing national register on incidence and prevalence of dementia

Fund research


Italy(1719)2014i. Promote public actions and policies to address dementiai.

Map dementia services at national and regional level

Update guidelines and consensus documents to include dementia care

Ministry of Health

Health and social sectors

National Institute of Health

3 major national patients/ caregivers associations

Alzheimer Uniti Onlus Italy

Regional health authorities

Local city councils

Families

Ministry of Health

Did not mention
ii. Promote integrated approach to dementia careii.

Involve caregivers in every phase of diagnosis and treatment

Create national dementia information system

iii. Promote appropriateness and quality of careiii.

Train specialists

Provide evidence-based care through continuous monitoring

iv. Improve quality of life for patients and familiesiv.

Promote social inclusion

Reduce stigma


Japan(2022)2015i. Coordinate medical care and long-term carei.

Establish support team for patients with early-stage dementia

Provide training programs for healthcare professionals

Create role of “dementia coordinator” to coordinate dementia care

Ministry of Health, Labour and Welfare

Local citizens

Long-term care service providers

Doctors

Ministry of Health, Labour and Welfare funds community support projects

Long-term Care Insurance funds home, community and institutional care

Did not mention
ii. Promote research around prevention and cureii.

Promote prevention strategies

Promote research towards finding a cure through the “Project for Psychiatric and Neurological Disorders”

iii. Develop dementia-friendly communitiesiii.

Increase number of “dementia supporters” (individuals who have completed an accredited program to learn how to support patients and families) from 5.8 M to 8 M

Establish neighbourhood “watch networks” to help patients who wander


Republic of Korea(2324)2010i. Improve early diagnosis and treatmenti.

Establish public health center to provide dementia care to entire population

Establish specialized hospital providing national dementia care

Establish dementia clinics in 4 regional hospitals

Individuals with dementia

Families

Caregivers

Dementia specialists

Korean government

Alzheimer’s Association of Korea

Neurologist/psychiatrist associations

Ministry of Health and Welfare

Nurse’s Associations

Did not mentionDid not mention
ii. Increase the number of trained dementia specialistsii.

Increase number of dementia specialists to 6000 by 2012

iii. Alleviate caregiver burdeniii.

Increase eligibility for long-term care insurance by raising recipient income limit by $20,000 per year


Luxembourg(25) (Unofficial English translation)2013i. Improve the quality of life of patients and informal caregiversi.

Promote prevention and early diagnosis

Support families

Establish system to help patients and families with decision-making

Review training for healthcare professionals

Ministry of Family and Integration

Ministry of Health

Senior Club

Ministry of Social Security

Families

Healthcare professionals

Government officials

Representatives of various associations, politicians, and civil society

Did not mentionDid not mention
ii. Increase awarenessii.

Increase awareness of the elderly’s rights

Promote social inclusion of patients


Malta(26)2015–2023i. Increase awarenessi.

Reduce stigma

Provide information on risk factors for dementia

Provide guidance for patients and caregivers

Malta Dementia Society

Did not mention

Will assess priorities and determine a plan of action, timeframes and key players

Will monitor progress and achievements

ii. Improve timely diagnosis and interventionii.

Promote early diagnosis and timely care

iii. Provide workforce developmentiii.

Ensure healthcare professionals have required qualifications to work with dementia patients

Recruit trained staff to work in various areas of dementia management and care

iv. Improve dementia careiv.

Provide pharmacological and non-pharmacological treatments

Develop individualized care pathways

Provide easy access to community services

Provide long-term and palliative care

v. Ensure ethical approach for dementia carev.

Provide resources to help patients and families with decision-making

vi. Promote researchvi.

Did not mention


Mexico(27) (Unofficial English translation)2014i. Promote mental health and prevention of dementiai.

Increase awareness of dementia

Strengthen prevention campaigns

Engage civil society, private institutions, and industries in the fight against dementia

National Institute of Geriatrics

National Institute of Public Health

National Institute of Neurology and Neurosurgery

Mexican Alzheimer Federation

National Institute of Older Adults

Did not mention

Created an advisory group to monitor progress

ii. Provide easy access to servicesii.

Provide comprehensive medical care

Establish daycare centers for patients

iii. Improve diagnosis and treatmentiii.

Provide catalogue of resources to patients and caregivers

Reduce burden on patients and families

iv. Increase geriatric trainingiv.

Increase number of dementia-specialists

Include geriatrics training in undergraduate and graduate curricula for healthcare professionals

v. Promote patients’ and caregivers’ rightsv.

Ensure patients are aware of their own rights and the services available for them

Provide support to caregivers

vi. Improve end-of life-carevi.

Establish training programs in palliative care for patients’ families and healthcare professionals

Provide information on end-of-life documents and legal, social and financial assistance

vii. Promote researchvii.

Promote applied research studies

Collaborate with scientific groups and Public Health


The Netherlands(28)2013–2020i. Improve healthcare to ensure good quality of lifei.

Support patients to live at home as long as possible

Deltaplan Dementia

Organizations from healthcare, education, science, public, and professional services

85 M Euros has already been spent on dementia plan

Did not mention
ii. Create dementia-friendly communitiesii.

Increase awareness

iii. Promote researchiii.

Pursue scientific and social research


Norway(29)2016 – 2020i. Encourage patient and caregiver involvement in decision-makingi.

Establish educational programs for patients

Develop quality indicators to improve consistency of care

Conduct patient surveys to assess quality of services

Norwegian government

Directorate of Health

County governors

State Housing Bank

Government grants provided to municipalities

State Housing Bank will fund assisted living facilities

Directorate of Health will provide leadership

County governors will guide municipalities to make appropriate changes to dementia care services

National survey of dementia services will be circulated every 4 years

ii. Improve dementia preventionii.

Conduct home visits for older adults to promote dementia prevention

Reduce number of hip fractures in older adults and people with dementia

iii. Provide timely diagnosis and follow-upiii.

Assign “service coordinators” to patients

Create individual plans for patients

iv. Enable people with dementia to live active lives and provide support to caregiversiv.

Propose amendment to Social Services Act: municipalities need to offer day programs to people living at home with dementia by January 2020

Establish flexible respite services

Strengthen cooperation with voluntary sector

v. Ensure people with dementia have good quality of life and access to assisted living facilitiesv.

Develop and evaluate models for home care services

Establish modern nursing homes and assisted living facilities with continuous care for patients

Improve end-of-life care

vi. Strengthen research, knowledge and competencevi.

Launch information campaigns

Develop training programs for relevant sectors

Develop practice methods of working in milieu therapy (psychotherapy involving therapeutic environmental changes)

Promote research

Provide dementia training for people with minority backgrounds or languages

Encourage municipalities to develop local dementia plans


Northern Ireland(30)2011i. Reduce risk or delay onset of dementiai.

Promote prevention and healthy lifestyles

Encourage primary care professionals to offer lifestyle advice and early diagnosis

Develop protocols for referral to specialists

Department of Health, Social Services, and Public Safety

Health and Social Care Board

Public Health Agency

Health and Social Care Trusts

Dementia Services Development Centre

Regulation and Quality Improvement Authority

Local commissioning groups

Did not mentionDid not mention
ii. Increase awarenessii.

Develop educational resources for general population

iii. Promote early assessment and diagnosisiii.

Ensure memory clinics offer a minimum range of services

Assess effectiveness of memory services

iv. Increase support for patientsiv.

Create individual care plans for patients

Audit all dementia services and facilities

Establish framework for palliative and end-of-life care

Develop care pathways for younger people with dementia and patients with learning disabilities

v. Support caregiversv.

Encourage caregiver involvement in patient discharge and home care planning

vi. Initiate legislation changesvi.

Develop legislation protecting patients’ rights

vii. Promote researchvii.

Continue to support dementia research


Puerto Rico(31) (English Executive Summary used)2015–2025i. Initiate public policyi.

Create public policy to guarantee access to services for patients and caregivers

Assess current laws to ensure the needs of patients and caregivers are met

Develop protocol about elder abuse, specifically for those with dementia

Task Force appointed by Secretary of Health

Puerto Rico Department of Health

Secretariat for Health Promotion

Chronic Disease Prevention and Control Division

Did not mentionDid not mention
ii. Initiate public health efforts and epidemiological surveillanceii.

Promote research and surveillance of patients

Increase reporting of dementia by doctors and hospitals by 50%

Increase surveillance of elder abuse and mistreatment

iii. Improve home and community caregiving servicesiii.

Improve access to home and community services

Create service directory

Conduct needs-based assessment to identify barriers to access

iv. Improve education and trainingiv.

Increase awareness via health promotion, education and communication

Host annual educational events

Collaborate with academia to integrate dementia awareness into associated curricula

v. Improve diagnosis and treatmentv.

Increase access to early diagnosis

Train healthcare professionals on importance of timely diagnosis, detection and treatment

Conduct needs-based assessment to identify barriers to diagnosis and treatment

vi. Improve long-term care servicesvi.

Increase awareness of patients’ needs

Promote inclusion of patients when creating public policy for long-term care

Encourage more long-term care facilities to use intervention protocols for patients

vii. Improve long-term care financingvii.

Increase access to long-term care

Improve availability of insurance coverage

Reduce financial burden on caregivers via tax incentives


Scotland(32)2017–2020i. Support patient autonomyi.

Improve delivery of post-diagnostic services

Evaluate relocation of post-diagnostic dementia services to primary care locations

Scottish Government

Minister for Mental Health

Alzheimer’s Scotland

Convention of Local Scottish Authorities

Scottish Dementia Working Group

National Dementia Carers Action Network

Did not mention

Will establish a national governing structure to oversee implementation

ii. Improve access to quality, individualized careiii.

Offer all newly diagnosed patients minimum of 1-year post-diagnostic support

iii. Enable individuals to live at home safelyiii.

Establish more therapeutic home care services

Implement assistive technologies for home living

iv. Improve access to palliative and end-of-life careiv.

Evaluate “Alzheimer Scotland’s Advanced Care Dementia Palliative and End-of-Life Care Model”

Identify improvements in delivery and access to care

v. Support caregiversv.

Continue to build partnerships with caregivers and community organizations

vi. Ensure right to quality care for all patientsvi.

Support clinical and non-clinical research

Implement “Promoting Excellence” framework in both health and social sector workforces

Ensure all patients and caregivers have access to assistive technology for independent living

vii. Promote dementia-friendly communitiesvii. Encourage and support individuals with dementia to participate in community

Switzerland(33)2014–2017i. Increase awarenessi.

Host public educational activities

Create information materials for those who interact with individuals with dementia

Provide personalized information and counselling for patients

Federal Office of Public Health

Swiss Conference of Guidelines

Cantonal Directors of Health

Did not mention

Led by a coordination committee

ii. Provide needs-appropriate servicesii.

Establish accessible network of diagnostic services

Promote use of interdisciplinary care teams to provide individualized care

Establish and expand respite services for both day and overnight care

Ensure care in both acute hospitals and long-term care facilities is catered to meet patients’ needs

iii. Promote quality and professional skillsiii.

Provide quality and ethical care to patients

Expand education of healthcare professionals, volunteers, and caregivers to include necessary skills to care for dementia patients

iv. Promote data and knowledge transferiv.

Determine feasibility of a care monitoring system to be included in health statistics

Continue scientific evaluation of new treatment and care

Establish online network to allow for knowledge translation and dissemination


Taiwan(34) (English summary used)2013i. Increase awarenessi.

Promote public knowledge to lower the risk of dementia and facilitate early referral and assessment

Launch educational initiatives to reduce stigma and promote dementia-friendly communities

Ministry of Health and Welfare

Did not mentionDid not mention
ii. Establish comprehensive community care networkii.

Provide multi-disciplinary care

Establish community network to support patients and caregivers

Develop early intervention programs and social interaction to delay functional deterioration

iii. Improve prevention and healthcare servicesiii.

Increase healthcare professionals’ competency in dementia evaluation

Increase access to diagnosis and treatment services

iv. Provide training for healthcare professionals and volunteersiv.

Provide education regarding dementia prevention, treatment and care

v. Promote cooperation between healthcare professionals and resource integrationv.

Improve prevention, treatment and early diagnosis

vi. Promote patients’ and caregivers’ rightsvi.

Review and update policy regarding individuals with dementia

Build policy in conjunction with patients and families

Develop quality benchmarks to ensure good provision of service

Involve non-government stakeholders in decision-making

vii. Promote researchvii.

Monitor population at national and community levels for policy and advocating initiatives

Support national and international research


United States of America(35)2012–2025i. Prevent and effectively treat dementia by 2025i.

Identify research opportunities for prevention and treatment

Host research summits with national and international scientists

Disseminate research to promote uptake into practice, to inform research initiatives, and to educate public

Department of Health and Human Services

Advisory Council on Alzheimer’s Research, Care, and Services

156 M USD from the Obama administration

○ 130 M USD for research

26 M USD for supporting patients and their families, as well as to develop education for public and healthcare professionals

Will be led by the Secretary of the Department of Health and Human Services and the Advisory Council on Alzheimer’s Research, Care, and Services

Strategy to be updated annually

ii. Improve quality and efficiency of dementia careii.

Educate healthcare professionals with knowledge and necessary skills

Encourage healthcare professionals to pursue geriatric specialities

Promote diagnostic services to the public

Disseminate diagnostic assessment tools among healthcare professionals

iii. Increase support for patients and familiesiii.

Educate healthcare professionals about long-term services and supports

Improve support for caregivers

iv. Increase awarenessiv.

Develop national initiatives

v. Track progress of strategy to drive improvementsv.

Identify areas for improvement in major policies and public health data collection


Wales(36)2011i. Improve service provisioni.

Employ dementia clinical coordinators to support patients

Improve care for patients in hospital wards

Establish a new service for younger patients

Welsh Assembly Government

Alzheimer’s Society

Local government

Volunteer sector

National Health Service Wales

1.5 M Pounds per year in additional funding

Led by the Mental Health Programme Board

ii. Increase information available for patients and caregiversii.

Ensure bilingual provision of services

Establish dementia care helpline

Include dementia care in the Welsh Government Prescription Scheme

iii. Increase awarenessiii.

Launch health campaigns

iv. Improve training for service providers of dementia careiv.

Provide dementia training for healthcare professionals and social care workers

Create resources to help caregivers

v. Promote researchv.

Offer funding to support dementia research

Increase Awareness

The NDS of 18 countries (Australia, Czech Republic, England, Finland, Greece, Indonesia, Ireland, Israel, Luxembourg, Malta, Mexico, The Netherlands, Northern Ireland, Puerto Rico, Switzerland, Taiwan, USA, Wales) aimed to increase awareness of dementia by providing more education and information to families and the community. Some countries also planned to launch awareness campaigns and create dementia-friendly communities, thereby promoting prevention and allowing for facilitation of early referral and assessment. In particular, Finland and Ireland had unique actions by which they hoped to raise awareness of dementia. Finland developed an online portal with information about memory loss (www.muisti.fi), while Ireland implemented “The National Physical Activity Plan” to promote healthy lifestyles involving regular physical activity.

Reduce Stigma

Six countries (Cuba, Czech Republic, Ireland, Israel, Italy, Malta) aimed to reduce the stigma surrounding dementia through awareness campaigns. For example, Cuba planned to launch dementia campaigns, television and radio programs, and health-promotion activities, along with establishing annual events for “World Alzheimer’s Day” on September 21.

Identify Support Services

Identifying and establishing support services for patients and caregivers was a common priority among 14 countries (Australia, Cuba, Czech Republic, England, France, Greece, Israel, Japan, Luxembourg, Northern Ireland, Norway, Scotland, USA, Wales). These countries planned to provide psychological support to caregivers by creating support networks and promoting peer support. In addition, France, Israel, and Wales established telephone helplines for caregivers, while France also created a website containing information and advice. The Czech Republic is the only country that also included in its NDS the need to provide financial support to caregivers, by establishing a financial support system for all caregivers, as well as providing support for employed people who are informal caregivers. In terms of providing support services for patients, countries had varying means of achieving this goal. Several countries appointed a professional to support patients throughout the disease trajectory—England established the new role of a “dementia adviser” to serve as a point of contact for patients and caregivers; France appointed coordinators to facilitate connections between health-care professionals (HCPs) caring for patients; Wales employed “dementia clinical coordinators” to support patients. Japan approached this priority from a different angle by encouraging the public to become involved in supporting individuals with dementia. 5.8 million Japanese volunteers, known as “dementia supporters”, had already completed an accredited program to learn how to support patients and families, and the Japanese NDS aimed to increase the number of “dementia supporters” to 8 million people. Japan also established neighbourhood “watch networks” to help patients who wander. Meanwhile, France, Northern Ireland, and Wales all prioritized increasing support for younger adults with dementia, while France and Northern Ireland also focused on patients with behavioural problems and learning disabilities, respectively. Scotland planned to improve support for all newly diagnosed patients by offering a minimum of one-year, post-diagnostic support. Norway hoped to better support people with dementia living at home, and thus proposed an amendment to the Social Services Act to mandate all municipalities to offer day programs to these patients by 2020. Norway is also the only country that aimed to establish educational programs specifically for patients.

Improve Care

Improving dementia care is also a notable framework condition listed by all of the countries, although details varied slightly by country. In general, improving the quality of care included promoting multi-disciplinary care for patients, and assessing and increasing the ease of access to services via dementia-friendly communities and guidance resources. The NDSs of Australia, Cuba, Czech Republic, England, Finland, and France wanted to standardize care by implementing clinical guidelines and/or developing explicit care pathways for the management and care of patients. Additionally, Finland planned to provide 24-hour care to patients. Australia and England aimed to improve care in hospitals by establishing dementia-specific health-care teams. Likewise, several countries (England, Ireland, Israel, Japan, Norway) appointed a specialized HCP to lead quality improvement of services and coordinate dementia care for patients. Finally, Australia, Czech Republic, and Norway had unique processes to improve dementia care. Australia aims to improve access to end-of-life and palliative care by promoting advance care planning after diagnosis of dementia. Interestingly, Czech Republic is the only NDS to establish standardized rules for assessing the ability of dementia patients to drive safely. Finally, Norway’s priority is to conduct home visits for older adults to promote dementia prevention.

Improve Training and Education for HCPs

Improving training and education for HCPs was a priority in 16 countries’ NDSs (Australia, Cuba, Czech Republic, England, Greece, Indonesia, Ireland, Israel, Italy, Korea, Malta, Mexico, Puerto Rico, Switzerland, USA, Wales). Cuba, Czech Republic, Mexico, Korea, and USA specified an aim to increase the number of dementia specialists by including geriatrics training in undergraduate and graduate curricula for related specialties. In particular, Korea set a goal of increasing the number of HCPs specialized in caring for dementia patients to 6,000 by 2012. While the aforementioned NDSs focused on offering courses for those training to be HCPs, Cuba also aimed to offer refresher courses about dementia for HCPs, while Greece offered clinical and research scholarships. In contrast, Ireland and Israel focused on training general practitioners on the diagnosis and management of dementia care.

Promote Research

The NDSs of 17 countries (Australia, Cuba, Czech Republic, England, France, Greece, Israel, Japan, Malta, Mexico, The Netherlands, Northern Ireland, Norway, Scotland, Taiwan, USA, Wales) also aimed to promote dementia research, to better identify risk factors and develop diagnostic tools. In addition, Australia and Cuba specified the following topics as areas of interest for dementia research: causes, incidence rates, diagnosis, treatment, and a cure. The United States also included the goal of effectively treating dementia by 2025. Finally, England and the USA planned to host research summits with national and international scientists involved in dementia research.

Funding for NDS

Funding for the NDS was specified by 13 of the 25 countries (52%) (Australia, Czech Republic, Finland, France, Greece, Indonesia, Ireland, Italy, Japan, The Netherlands, Norway, USA, Wales); however, only six (Australia, France, Ireland, The Netherlands, USA, Wales) of these countries disclosed the amount of funding received. The United States received 156 million USD from the Obama administration (prior to 2017) for their NDS, of which 130 million USD is devoted to research and the remaining 26 million USD for supporting patients, families, and HCPs. Australia has specified that they have a 200 million AUD budget provided by the national government for their NDS, which includes 50 million AUD to establish a National Institute for Dementia Research. France has received a total of 1.2 billion Euros of funding from the health insurance system and the National Fund for the Autonomy of Elderly and Disabled People, including 200 million Euros for improving health care and another 200 million Euros for research. Other European countries have supported the NDS to the magnitude of 105,000 Euros for Ireland in the first year of the strategy, 85 million Euros for The Netherlands, and additional funding of 1.5 million Pounds annually for Wales.

Implementation of NDS

The following 16 countries specified in the NDS how their strategy will be implemented: Cuba, Czech Republic, England, Finland, France, Greece, Indonesia, Ireland, Israel, Malta, Mexico, Norway, Scotland, Switzerland, USA, Wales. Most of the plans for implementation were vague, with the exceptions of Cuba and Finland, which both included very well-structured and detailed plans. In Cuba, the National Directorate of Primary Health Care and the Department of the Elderly, Mental Health, and Social Welfare were responsible for the overall coordination of the key actions outlined in the NDS. Specific key actions of research, training HCPs, and developing public educational messages were further delegated to related organizations listed in Table 2. Likewise, a number of governmental agencies and non-governmental organizations in Finland were assigned relevant responsibilities for implementing the NDS. In addition, France committed to monitor and report the progress of its NDS every six months, while Cuba, Czech Republic, England, and the USA tracked their progress on an annual basis.

DISCUSSION

This review comprehensively lists the components of 25 of the 29 countries with a NDS, and reports the overarching themes that present across all strategies. To our knowledge, this is the first review to summarize and synthesize all of these NDSs in a single report. The results within, especially the similarities between the strategies, may be of great interest to policy-makers, HCPs, and other key stakeholders involved with Canada’s forthcoming NDS. Most NDSs had five major framework conditions: increasing awareness of dementia, identifying support services, improving the quality of dementia care, as well as improving training and education and promoting research. While not a component of the majority of NDSs, another common theme was reducing stigma. Some countries explicitly described the actions they will take to accomplish these objectives (i.e., England), while others list vague actions (i.e., Indonesia). Unfortunately, only a few countries have had follow-up studies evaluating the effectiveness of their NDS, while discussing ways to improve the strategy.( When establishing Canada’s NDS, we would recommend investigating the efficacy of the NDSs of other countries further, and looking into which of, and under what circumstances, the aforementioned major framework conditions are effective. However, successes in other countries may or may not apply in Canada, given differences in health-care systems. In particular, because health care in Canada is primarily a provincial and territorial responsibility, Canada’s NDS will require extraordinary cooperation across governments. Notably, all G7 countries have disclosed that they have dedicated tremendous financial resources towards their NDSs, ranging from 156 million USD by the United States of America to 1.2 billion Euros by France. It would be interesting to study the effectiveness of these NDSs to determine if there is a positive correlation between financial resources and efficacy. It is, however, important to note that France offers a universal health-care system, while the United States does not. Hence, the French government likely needs to take on a greater financial burden. Nevertheless, Canada should be prepared to dedicate significant resources towards an NDS, as a country that also has a universal health-care system. Some might argue that since health care is a provincial responsibility, each Canadian province should have their own local strategies, and indeed all ten provinces have already developed, or are currently developing, their own dementia strategies—British Columbia,( Newfoundland and Labrador,( Nova Scotia,( Manitoba,( Prince Edward Island,( New Brunswick,( Quebec,( Alberta,( Saskatchewan,( and most recently Ontario.( Unfortunately, the delivery of health-care services to dementia patients and their caregivers is only one component of a comprehensive dementia strategy, and many other components including education, awareness, and de-stigmatization would clearly benefit from a national approach in contrast to a local patchwork of strategies. Canada, in particular, must also pay special attention to dementia in Indigenous communities, a problem which crosses provincial boundaries, and which has been a remarkably understudied area of research.( Another key lesson to be learned from a review of these NDSs is the process of NDS development and, in particular, the identification of key stakeholders. These include all appropriate federal government ministries (e.g., Health; Employment, Workforce Development, and Labour; Finance; Canadian Heritage; Indigenous Services), provincial representatives, Canadian Institute of Health Research, Alzheimer’s Society of Canada, Canadian Medical Association, specialist physician groups (Neurology, Psychiatry, Geriatric Psychiatry, Geriatric Medicine, Palliative Care), Canadian Nurses Association, and individual patients and caregivers, where appropriate. This list is far from complete and consideration should also be given to the inclusion of other potentially valuable contributors, including, for example, pharmacists, home care service providers, occupational therapists, physiotherapists, insurance agency representatives, and pension plan mangers. We strongly support the inclusion of specific milestones and a pre-determined evaluation process. A Canadian NDS can take advantage of established organizations to provide research into the strategy’s effectiveness, including the Canadian Institute for Health Information, the Institute for Clinical Evaluative Sciences, and the Canadian Consortium on Neurodegeneration in Aging. In 2016, the Canadian government authorized the Standing Senate Committee on Social Affairs, Science and Technology to assess and report on the current issue of dementia in Canada. Within the report, the need for a National Dementia Strategy was emphasized. As noted by the Alzheimer Society of Canada, “…we are far behind other countries in our approach to [the issue of dementia], being one of only two G7 countries (along with Germany) that do not have a comprehensive national dementia strategy”. The Senate Standing Committee, therefore, made 29 recommendations for a National Dementia Strategy, as summarized in Table 3.( Reassuringly, many of the initiatives and themes discussed above, including important process issues (e.g., appropriate stakeholder involvement, specified funding) and priorities (e.g., public awareness), were mentioned in this document, though many specific details were lacking.
TABLE 3

The Standing Senate Committee’s recommendations for Canada’s national dementia strategya

RecommendationAction Item
1

Establish the Canadian Partnership to Address Dementia

Include a mandate to create and implement a National Dementia Strategy

2

Model the Canadian Partnership to Address Dementia after the approach taken in the Canadian Partnership Against Cancer

Include the following stakeholders in the new dementia partnership

○ Federal, provincial, and territorial governments

○ Dementia and other health-related organizations

○ Individuals with dementia

○ Caregivers

○ Healthcare professionals

○ Housing organizations

○ Researchers

○ Indigenous community

Evaluate, report on, and update the National Dementia Strategy annually

Federal government funding of at least $30 M annually for the Canadian Partnership to Address Dementia

3

Adjust the annual government funding provided to the Canadian Partnership to Address Dementia according to annual evaluations and strategy updates

4

Use the following documents when creating the National Dementia Strategy:

The Canadian Alzheimer’s Disease and Dementia Partnership: Strategic Objectives (Alzheimer Society of Canada)

Improving Dementia Care Worldwide: Ideas and Advice on Developing and Implementing a National Dementia Plan (Alzheimer’s Disease International)

5

Federal government funding of approximately $100 M annually for the Canadian Institutes of Health Research’s Dementia Research Strategy

6

Develop a public awareness campaign that promotes the following items

○ Dementia Friends Canada website

○ Prevention

○ Early diagnosis

○ Symptom recognition

○ Quality of life

○ Services

○ Supports

7

Develop public awareness campaigns on healthy eating and active lifestyles

8

Adequate federal government funding for the Canadian Chronic Disease Surveillance Program

Aim to provide robust, timely and accessible dementia surveillance data beginning in 2017

9

Encourage the implementation of the Alzheimer Society of Canada’s First Link® early intervention program

10

Federal government should explore fiscal options to alleviate the financial burden on informal caregivers

Possible options:

○ Expand the Employment Insurance compassionate care benefit beyond palliative care

Amend the Caregiver Tax Credit and the Family Caregiver Tax Credit to make them refundable

11

Promote workplace best practices to support employees who are caregivers

12

Provide the following additional supports for caregivers

○ Education and training

○ Respite services

○ Online portal with information about dementia programs and initiatives

13

Federal government funding of $3 B over 4 years for a comprehensive package of home care services

14

Routinely evaluate and report on the use of government funding for home care services

Provide annual, success-based adjustments to funding

15

Assess the need for home care funding beyond the initial 4-year period

16

Promote innovative technologies and the Home-Care-Plus model (integrates specialists in dementia care into home care)

17

Assess the fiscal barriers preventing the integration of health and social services

Implement the changes needed to successfully integrate health and social services

18

Establish targets for implementing electronic health and prescription drug systems

Promote the use of electronic databases by healthcare professionals

Report on the progress of implementing these electronic systems

19

Promote models of dementia care that integrate healthcare delivery (e.g. Dementia-plus Care Model)

Integrate social services into dementia care

Promote advance care planning for palliative and end-of-life care

20

Federal government funding of $450 M to develop more continuing care infrastructure

21

Examine and update as necessary the staffing, care, and accommodation standards in seniors’ residences

Improve access to seniors’ housing

22

Assess and promote models of dementia care for rural and remote communities

23

Expedite federal government funding for rural and remote communities

24

Support the Home and Community Care Program by Health Canada’s First Nations and Inuit Health Branch

25

Develop standards of care for acute-care hospitals

26

Provide dementia care training and professional development for healthcare professionals

27

Develop a Best Practices Portal for providers of dementia care

28

Consider the programs and practices listed in the report for inclusion in the Best Practices Portal

29

Include individuals with dementia in all aspects of the Canadian Partnership to Address Dementia

Adapted from Reference #54.

As noted in the Introduction, it is not clear why it has taken Canada so long to develop a NDS. As with all public policy development, there are always competing interests and other political considerations, especially when considerable financial resources are involved. We have already discussed the provincial/territorial jurisdictional issues. Finally, it is possible that ageism and stigma have also played a role in Canada’s delayed response. A limitation of this review is that some of the listed 29 countries did not have an easily accessible document that could be translated into English for inclusion in this review. For the NDSs included in our review that were translated from a foreign language, the unofficial English translations used may not accurately represent the original NDS.

CONCLUSION

Our review was able to comprehensively list and compare 25 of the 29 countries with National Dementia Strategies. The results suggest five major priorities that are covered by most NDSs: increasing awareness, establishing support services, improving standard of care, improving training and education for HCPs, and promoting research. We hope that policy-makers in Canada will review these NDSs, learn from their examples, and develop an effective NDS for our country.
  5 in total

1.  Dementia strategy Korea.

Authors:  Sunghee Lee
Journal:  Int J Geriatr Psychiatry       Date:  2010-09       Impact factor: 3.485

2.  The emergence of dementia as a health concern among First Nations populations in Alberta, Canada.

Authors:  Kristen M Jacklin; Jennifer D Walker; Marjory Shawande
Journal:  Can J Public Health       Date:  2012-11-08

3.  Canada releases national dementia plan.

Authors:  Lauren Vogel
Journal:  CMAJ       Date:  2014-09-15       Impact factor: 8.262

4.  The Italian Dementia National Plan. Commentary.

Authors:  Teresa Di Fiandra; Marco Canevelli; Alessandra Di Pucchio; Nicola Vanacore
Journal:  Ann Ist Super Sanita       Date:  2015       Impact factor: 1.663

5.  Seven Foundational Principles of Population Health Policy.

Authors:  Dru Bhattacharya; Jay Bhatt
Journal:  Popul Health Manag       Date:  2017-02-13       Impact factor: 2.459

  5 in total
  11 in total

1. 

Authors:  Mélanie Le Berre; Isabelle Vedel
Journal:  Can Fam Physician       Date:  2020-04       Impact factor: 3.275

2.  Diversity considerations in Alzheimer disease and related disorders: How can our national and provincial strategies be inclusive of sexual minorities?

Authors:  Mélanie Le Berre; Isabelle Vedel
Journal:  Can Fam Physician       Date:  2020-04       Impact factor: 3.275

3.  Annual Trends in the Incidence and Prevalence of Alzheimer's Disease in South Korea: A Nationwide Cohort Study.

Authors:  Min Seok Baek; Han-Kyeol Kim; Kyungdo Han; Hyuk-Sung Kwon; Han Kyu Na; Chul Hyoung Lyoo; Hanna Cho
Journal:  Front Neurol       Date:  2022-05-19       Impact factor: 4.086

4.  Ensuring Canada's first dementia strategy is not shelved and forgotten.

Authors:  Nathan M Stall; Pauline Tardif; Samir K Sinha
Journal:  CMAJ       Date:  2019-08-06       Impact factor: 8.262

5.  Joint impact of dementia and frailty on healthcare utilisation and outcomes: a retrospective cohort study of long-stay home care recipients.

Authors:  Colleen J Maxwell; Luke Mondor; David B Hogan; Michael A Campitelli; Susan E Bronskill; Dallas P Seitz; Walter P Wodchis
Journal:  BMJ Open       Date:  2019-06-21       Impact factor: 2.692

6.  Health care transitions for persons living with dementia and their caregivers.

Authors:  Jessica Ashbourne; Veronique Boscart; Samantha Meyer; Catherine E Tong; Paul Stolee
Journal:  BMC Geriatr       Date:  2021-04-29       Impact factor: 3.921

7.  Preferences of newly qualified healthcare professionals for working with people with dementia: a qualitative study.

Authors:  Molly Hebditch; Sube Banerjee; Juliet Wright; Stephanie Daley
Journal:  Age Ageing       Date:  2022-01-06       Impact factor: 10.668

8.  The Impact of Dementia's Affiliate Stigma on the Mental Health of Relatives: A Cross Section Survey.

Authors:  Pauline Van den Bossche; Birgitte Schoenmakers
Journal:  Front Psychol       Date:  2022-01-20

9.  Research on the care of people with dementia in acute care hospital settings : Opportunities, challenges and limitations.

Authors:  B Teichmann; J M Bauer; K Beyreuther; A Kruse
Journal:  Z Gerontol Geriatr       Date:  2019-11       Impact factor: 1.281

10.  Perceptions and attitudes towards dementia among university students in Malaysia.

Authors:  Alys Wyn Griffiths; Wing Loong Cheong; Pui San Saw; Sahdia Parveen
Journal:  BMC Med Educ       Date:  2020-03-20       Impact factor: 2.463

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.