| Literature DB >> 29977433 |
Selina Chow1, Ronald Chow1, Angela Wan1, Helen R Lam1, Kate Taylor1, Katija Bonin1, Leigha Rowbottom1, Henry Lam1, Carlo DeAngelis1, Nathan Herrmann1.
Abstract
BACKGROUND: In order to provide appropriate care for the aging population, many countries are adopting a National Dementia Strategy (NDS). On June 22, 2017, Canada announced it will become the 30th country to launch a NDS. In light of this announcement and as Canada prepares to develop its own NDS, we conducted this review to examine and compare the NDSs of the other previous 29 countries with Canadian government's policies to date.Entities:
Keywords: dementia; government; national dementia strategy; policy
Year: 2018 PMID: 29977433 PMCID: PMC6028171 DOI: 10.5770/cgj.21.299
Source DB: PubMed Journal: Can Geriatr J ISSN: 1925-8348
Principles of population health policya
| 1 |
Include directives, plans, and courses of action documented in writing |
| 2 |
Prioritize early detection, treatment, and rehabilitation following disease among at-risk and symptomatic individuals |
| 3 |
Include political, economic, epidemiological, ethical, behavioral, and legal considerations when developing population health policy |
| 4 |
Population health needs vary among groups across different demographics and jurisdictions Population health policies need to balance standardization with customization of interventions |
| 5 |
When evaluating the effect of population health policy on outcomes, the social determinants of health must be taken into account |
| 6 |
To manage population health, align strategic planning with the management of human resources Identify population health needs through available health needs assessments and input from affected population members |
Adapted from Reference #2.
Summary of national dementia strategies
| 2015 – 2019 | i. Increase awareness and reduce risk | i.
Develop dementia-friendly communities Launch awareness campaigns Adopt collaborative evidence-based approach for awareness and risk reduction activities Promote healthy and physically active lifestyles |
Australian Health Ministers Advisory Council Individuals with dementia Caregivers Families Doctors Service providers |
National Health Medical and Research Council funds research $200 M over 5 years committed by Australian Government for dementia research ○ Includes $50 M to establish a National Institute for Dementia Research | Did not mention | |
| ii. Address need for timely diagnosis | ii.
Provide education and ongoing training for healthcare professionals Use multi-disciplinary approach for diagnosis | |||||
| iii. Access to care and support post diagnosis | iii.
Develop dementia-specific healthcare teams Provide education, training, and support for caregivers and families | |||||
| iv. Access to ongoing care and support | iv.
Provide support services and education programs for caregivers Provide access to advice, support, and respite services for patients and families Provide specialist medical and non-medical services in residential aged care facilities Provide mental health services for people with behavioral and psychological symptoms of dementia | |||||
| v. Access to care and support during and after hospital care | v.
Improve assessment of cognitive impairment and dementia on admission in the acute healthcare setting Develop evidence-based clinical care pathway for patients Develop standards to ensure consistency among care and admissions/discharges from the acute care setting | |||||
| vi. Access to end-of-life and palliative care | vi.
Promote advance care planning after diagnosis of dementia Provide training and education for advance care planning options and palliative approaches Develop care and referral pathways to enable seamless transition to palliative care | |||||
| vii. Promote research | vii.
Conduct dementia research into areas such as: causes, diagnosis, care, treatment, cure Explore opportunities for collaborative research with other National Health Priority Areas Improve hospital data collection of dementia | |||||
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| ||||||
| 2013 | i. Increase awareness and reduce risk | i.
Provide more education and information |
Cuban Section of Alzheimer National Directorate of Elderly | Did not mention |
Annual meetings will be held to discuss progress and implementation of national strategy National Directorate of Primary Health Care, the Department of the Elderly, Mental Health and Social Welfare will monitor and coordinate the Key Actions Cuban Section of Alzheimer, Scientific Societies, Universities, Research Centers and Relief will conduct dementia research Universities of Medical Sciences, along with the Departments of Geriatrics, Neurology, and Psychiatry in teaching hospitals, will train healthcare professionals involved with dementia care Cuban Institute of Radio and Television will develop and disseminate educational messages to the public | |
| ii. Develop dementia-friendly communities | ii.
Establish residential facilities specialized for caring for people with dementia Create support networks for caregivers Increase staff training for providers of dementia care | |||||
| iii. Promote prevention and early diagnosis | iii.
Did not mention | |||||
| iv. Implement “Guidelines for Good Clinical Practice” for dementia care | iv.
Use the guidelines in daily clinical practice | |||||
| v. Increase the availability of specialists in dementia care | v.
Provide geriatrics training for related specialties: general medicine, internal medicine, neurology, psychiatry, nurses, psychologists, social workers Offer graduate courses for students and refresher courses for healthcare professionals about dementia | |||||
| vi. Increase availability of treatments | vi.
Promote alternative treatment options: cognitive stimulating activities, physical exercise, etc. | |||||
| vii. Reduce stigma | vii.
Launch dementia campaigns, television and radio programs, and health promotion activities Develop and disseminate educational messages Establish annual dementia programs for “World Alzheimer’s Day” on September 21 | |||||
| viii. Promote patients’ rights | viii.
Provide training to healthcare professionals about laws and rights of people with dementia Require healthcare professionals to maintain complete medical history of patients, including neuropsychological tests Require healthcare professionals to be responsible for assessing mental competency of patients | |||||
| ix. Promote research | ix.
Conduct dementia research into areas such as: risk factors, incidence rates, diagnostic tools (e.g. genetic counseling, neuroimaging, biomarkers) | |||||
|
| ||||||
| 2016–2019 | i. Improve early diagnosis | i.
Adapt internationally accepted best practices for diagnosis of dementia Ensure public health insurance covers the costs for dementia care Include cognitive assessments in general medical examinations of seniors |
Ministry of Health Ministry of Labor and Social Affairs Czech Alzheimer’s Society Czech Neurological Society Czech Gerontological and Geriatric Society Psychiatric Society Czech Association of Nurses |
Ministry of Health Health insurance European Social fund European Structural and Investment funds National budget |
Strategy will be updated annually and progress on the implementation will be presented to the government The National Institute will implement dementia training programs for teachers | |
| ii. Standardize treatment methods | ii.
Establish standardized treatment methods for neurology, psychiatry, and geriatrics Prevent over-use of antipsychotic agents | |||||
| iii. Improve access to care | iii.
Promote the development of highly specialized interdisciplinary centers to care for atypical dementia patients Establish structured network of dementia centers | |||||
| iv. Increase support for caregivers | iv.
Establish a financial support system for caregivers Provide support for employed people who are informal caregivers Provide psychological support for caregivers Promote the development of peer support groups | |||||
| v. Educate informal caregivers | v.
Offer accredited educational courses | |||||
| vi. Train professionals | vi.
Provide accredited courses about dementia to professionals who work with these patients Provide training for healthcare professionals in neurology, psychiatry, geriatrics, long-term care, and palliative medicine | |||||
| vii. Increase awareness | vii.
Organize public information campaigns through the media Reduce stigma | |||||
| viii. Promote intergenerational solidarity in society | viii.
Did not mention | |||||
| ix. Educate public sector workers | ix.
Educate each profession in public sector about dementia Organize training programs for teachers Publish training materials online: | |||||
| x. Implement epidemiological surveillance and monitoring | x.
Collect data for statistical monitoring of prevalence of dementia Use this data to plan health and social services | |||||
| xi. Cooperate with other countries | xi.
Exchange experience, data, information, and best practices with other countries Participate in European and global dementia initiatives | |||||
| xii. Assess ability of patients to drive safely | xii.
Establish standardized rules for assessing the ability of elderly to drive safely | |||||
| xiii. Promote research | xiii.
Continue supporting basic and applied biomedical research Promote international cooperation in research | |||||
|
| ||||||
| 2009 | i. Increase awareness | i.
Launch public information campaigns Promote prevention methods and timely diagnosis and care Provide educational material to schools |
Department of Health Programme Board Department of Health Working Group External Reference Group Individuals with dementia Specific target groups of patients: ○ Younger people ○ People with learning disabilities ○ People from minority ethnic groups ○ People from rural and island communities ○ Prisoners ○ Caregivers |
Decisions on funding were made after results from the initial demonstrator sites and evaluation work are analyzed |
Led by the Department of Health Established regional support teams support local implementation Established a national baseline measurement of services Conducted annual reviews of current services Monitored progress of implementation over time | |
| ii. Establish memory services | ii.
Commission local memory services | |||||
| iii. Increase information available for patients and caregivers | iii.
Provide information and support services at diagnosis and throughout course of care for patients and caregivers | |||||
| iv. Provide continuity of support | iv.
Provide easy access to care, support, and advice following diagnosis Establish new role of a “dementia adviser” to serve as point of contact for patients and caregivers | |||||
| v. Promote peer support | v.
Develop structured peer support and learning networks | |||||
| vi. Improve community personal support services | vi.
Implement “Putting People First” personalization changes for people with dementia Establish effective specialist services to support patients living at home | |||||
| vii. Implement “Caregivers’ Strategy” | vii.
Ensure that needs of caregivers are met Promote development of breaks that benefit both patients and caregivers | |||||
| viii. Improve care in hospitals | viii.
Identify senior doctor to take the lead for quality improvement of dementia care Develop explicit care pathway for management and care of patients Commission specialist liaison older people’s mental health teams | |||||
| ix. Improve intermediate care | ix.
Include and address needs of people with dementia in the revision of the Department of Health’s 2001 guidance on intermediate care | |||||
| x. Improve housing for patients | x.
Develop housing support, housing-related services, assistive technology, and telecare for individuals with dementia | |||||
| xi. Improve care in dementia care homes | xi.
Identify senior staff member to take lead for quality improvement of dementia care Develop local strategy for management and care of patients Commission specialist in-reach services from older people’s community mental health teams Commission other in-reach services: primary care, pharmacy, dentistry | |||||
| xii. Improve end-of-life care | xii.
Initiate projects and evaluations to fill in current gap of definitive data in this area Improve pain relief and nursing support | |||||
| xiii. Promote workforce competencies, development, and training | xiii.
Establish effective basic training and continuous professional development in dementia | |||||
| xiv. Monitor performance and evaluate dementia services | xiv.
Conduct routine inspections for care homes and other service providers | |||||
| xv. Promote research | xv.
The Medical Research Council and Department of Health will convene a summit of parties interested in dementia research | |||||
|
| ||||||
| 2012–2020 | i. Promote brain health | i.
Develop indicators and produce more information about brain health and prevention of memory disorders Educate professionals in different sectors (e.g. sports) Educate students in all stages of schooling |
Finnish Ministry of Social Affairs and Health |
Finland’s National Development Programme for Social Welfare and Health Care and Finland’s Slot Machine Association will fund brain health promotion Development of dementia services will be funded by Finland’s Slot Machine Association, the Finnish Funding Agency for Technology and Innovation, and other parties that grant funds for research and development Research funding agencies will fund dementia research conducted at universities |
Finnish Ministry of Social Affairs and Health will coordinate brain health promotion National Institute for Health and Welfare, universities, and other research organizations will develop indicators and produce more information about brain health National Institute for Health and Welfare, the Finnish Institute of Occupational Health, and the Association of Finnish Local and Regional Authorities will support local authorities during implementation Joint municipal authorities in charge of hospital districts will update their healthcare provision plans to cover brain health National Institute for Health and Welfare will develop the online memory portal: | |
| ii. Increase dementia awareness | ii.
Launch public awareness campaign Develop online memory portal with information about memory loss | |||||
| iii. Ensure a good quality of life for patients and families | iii.
Establish regional outpatient clinics offering primary healthcare services Establish outpatient clinics offering specialist medical care in hospital districts and catchment areas Develop clinical pathways for dementia care Provide 24-hour care for patients | |||||
| iv. Improve dementia care | iv.
Investigate potential to establish national network of centres of expertise Develop national criteria and indicators for quality control and supervision of dementia services Develop national targets for prerequisite skills of professionals working with people with dementia | |||||
|
| ||||||
| 2008–2012 | i. Improve diagnosis | i.
Develop care pathway for the diagnosis and counselling of dementia Improve assessment and diagnosis services |
National Social and Medico-Social Evaluation Agency National Health Authority Directorate General for Social Action Directorate General for Health Assembly of French Departments National Employees’ Pension Fund France Alzheimer Medical specialists Representatives of social and healthcare services Representatives of local authorities Representatives of the research community and partner organizations |
Health insurance system National Fund for the Autonomy of Elderly and Disabled People Over 1.2 B Euros of funding in total ○ Includes 200 M Euros for improving healthcare ○ Includes 200 M Euros for research |
Led by Professors Michel Clanet, Joël Ankri and Etienne Hirsch Evaluated and reported progress to the President every 6 months | |
| ii. Improve treatment and support services | ii.
Appoint coordinators to facilitate connections between different healthcare professionals caring for patients Provide support to patients living at home Establish specific units for patients with behavioral problems Provide accommodations for younger patients Establish national reference centre for younger adults with dementia Develop and diversify respite structures Establish phone helpline and website providing information and advice | |||||
| iii. Promote research | iii.
Establish the “Foundation for Scientific Cooperation” to coordinate research Publicize and promote research across Europe | |||||
|
| ||||||
| 2015–2020 | i. Record and classify patients with dementia into different categories based on type of disease and specific needs | i.
Provide financial support for patients according to algorithm of disease and of families’ financial burdens |
Ministry of Health Local Administration Organizations Ministry of Education – Universities National School of Public Health Healthcare professionals Alzheimer’s Association Centers of Excellence for Dementia Charities Research institutions |
Ministry of Health National Organization for Rendering Health Services European Union Structural Funds Corporate Social Responsibility Charities Private groups |
Coordinators in hospitals will ensure that examination and hospitalization protocols are implemented | |
| ii. Increase awareness | ii.
Promote prevention methods | |||||
| iii. Support caregivers | iii.
Provide support services for caregivers | |||||
| iv. Improve dementia care | iv.
Integrate dementia services in primary care Coordinate services for dementia patients with co-morbidities and attend to Emergency Care Units Establish Memory and Cognitive Disorders Clinic in all regional hospitals Establish day care centers, long-term care facilities and end-of-life institutions for people with dementia Develop home care and telemedicine services for patients with limited access to health services | |||||
| v. Enhance patients’ and caregivers’ rights | v.
Change current legislations to include needs of patients and caregivers Adopt legislation aimed specifically at dementia | |||||
| vi. Enhance education | vi.
Offer clinical and research scholarships Establish “Centres of Excellence for Dementia” to provide education for specialized doctors | |||||
| vii. Promote research | vii.
Participate in international research | |||||
|
| ||||||
| 2016 | i. Improve dementia care | i.
Provide education and training programs for staff involved in dementia care |
Ministry of Home Affairs Ministry of Social Affairs Ministry of Health National Family Planning Coordinating Board Coordinating Ministry for People’s Welfare Ministry of Education and Culture Ministry of Finance Social insurance Institute of Sciences Academy of Sciences Directorate General of Higher Education |
State budget Local budget International agencies Non-governmental organizations Private sector Businesses |
Progress will be monitored by central and district governments, the Commission for the Elderly, universities, and non-governmental organizations | |
| ii. Promote good brain health for productive older adults | ii.
Promote dementia services Establish cognitive health program Launch public campaign to promote brain-healthy lifestyles | |||||
| iii. Manage cognitive disorders early to prevent dementia | iii.
Implement early detection, diagnosis and holistic management of cognitive disorders and dementia | |||||
|
| ||||||
| 2011–2016 | i. Increase awareness | i.
Educate public about healthy lifestyles and cardiovascular risk factors of dementia Implement “The National Physical Activity Plan” to promote regular physical activity Reduce stigma |
Caregivers Individuals with dementia Local authorities State agencies Service providers Working Group ○ Healthcare professionals ○ Researchers ○ Representatives of the Department of Health and the Health Service Executive |
105,000 Euros pledged by government to support the plan during the first year |
The Health Service Executive delegated responsibilities of implementation within its own facilities Senior doctor within each hospital led implementation | |
| ii. Provide timely diagnosis and intervention | ii.
Review existing dementia services Provide general practitioners with dementia-specific resources Develop guidance material about medication management for nursing homes | |||||
| iii. Provide integrated services, support and care | iii.
Review and identify gaps in existing social services for patients Optimize resources invested in home care and respite care Evaluate potential of assistive technology Provide information on advocacy and voluntary organizations to patients and families | |||||
| iv. Provide training and education | iv.
Provide dementia-specific training for healthcare professionals | |||||
| v. Establish leadership roles in dementia care | v.
Appoint healthcare professional in primary care services to coordinate each patient’s care Designate senior management of the Health Service Executive to respond to any concerns regarding dementia Establish a “Work Stream on Dementia Care” by The Clinical Strategy and Programmes Division | |||||
|
| ||||||
| 2013 | i. Increase awareness and reduce stigma | i.
Launch public education campaigns Disseminate culturally adapted information Increase awareness of patients’ and patient families’ rights |
Ministry of Health Ministry of Social Affairs and Social Services National Insurance Institute of Israel Ministry for Senior Citizens Alzheimer’s Society of Israel Melabev (a nonprofit organization for Alzheimer’s) Academia and Health System Myers-Joint Distribution Committee-Brookdale Institute of Gerontology Joint Distribution Committee-Eshel (The Association for the Planning and Development of Services for the Aged in Israel) | Did not mention |
National health insurance law will be responsible for creating the care package for patients Resources will be allocated, and legislative changes will be promoted as needed Priorities and goals will be set in every ministry, and a multi-year plan will be formulated | |
| ii. Improve community health services | ii.
Establish program to promote prevention of dementia Develop care package for patients Expand use of drug therapy Increase referrals to non-medical treatments Create new role of “nurse coordinator” to ensure continuity of care Improve treatment of advanced dementia at end-of-life | |||||
| iii. Improve community social services | iii.
Provide more intensive care for patients requiring supervision Prioritize cognitive deterioration when assessing patients’ independence Establish additional daycare centres and expand its operating hours | |||||
| iv. Improve support for caregivers | iv.
Increase wages for caregivers Establish information and consultation centres accessible by phone Establish respite care within daycare facilities Increase awareness of families’ legal rights Develop auxiliary technologies | |||||
| v. Adapt long-term care services to the changing needs of patients | v.
Increase availability of beds to meet the needs in different regions Project future needs and monitor increases in supply Develop models for institutional care | |||||
| vi. Expand training resources | vi.
Expand clinical professionals’ scope of study Provide training for general practitioners on the diagnosis and management of dementia care | |||||
| vii. Promote research | vii.
Define outcome measures Develop agenda for research Consider establishing national register on incidence and prevalence of dementia Fund research | |||||
|
| ||||||
| 2014 | i. Promote public actions and policies to address dementia | i.
Map dementia services at national and regional level Update guidelines and consensus documents to include dementia care |
Ministry of Health Health and social sectors National Institute of Health 3 major national patients/ caregivers associations Alzheimer Uniti Onlus Italy Regional health authorities Local city councils Families |
Ministry of Health | Did not mention | |
| ii. Promote integrated approach to dementia care | ii.
Involve caregivers in every phase of diagnosis and treatment Create national dementia information system | |||||
| iii. Promote appropriateness and quality of care | iii.
Train specialists Provide evidence-based care through continuous monitoring | |||||
| iv. Improve quality of life for patients and families | iv.
Promote social inclusion Reduce stigma | |||||
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| ||||||
| 2015 | i. Coordinate medical care and long-term care | i.
Establish support team for patients with early-stage dementia Provide training programs for healthcare professionals Create role of “dementia coordinator” to coordinate dementia care |
Ministry of Health, Labour and Welfare Local citizens Long-term care service providers Doctors |
Ministry of Health, Labour and Welfare funds community support projects Long-term Care Insurance funds home, community and institutional care | Did not mention | |
| ii. Promote research around prevention and cure | ii.
Promote prevention strategies Promote research towards finding a cure through the “Project for Psychiatric and Neurological Disorders” | |||||
| iii. Develop dementia-friendly communities | iii.
Increase number of “dementia supporters” (individuals who have completed an accredited program to learn how to support patients and families) from 5.8 M to 8 M Establish neighbourhood “watch networks” to help patients who wander | |||||
|
| ||||||
| 2010 | i. Improve early diagnosis and treatment | i.
Establish public health center to provide dementia care to entire population Establish specialized hospital providing national dementia care Establish dementia clinics in 4 regional hospitals |
Individuals with dementia Families Caregivers Dementia specialists Korean government Alzheimer’s Association of Korea Neurologist/psychiatrist associations Ministry of Health and Welfare Nurse’s Associations | Did not mention | Did not mention | |
| ii. Increase the number of trained dementia specialists | ii.
Increase number of dementia specialists to 6000 by 2012 | |||||
| iii. Alleviate caregiver burden | iii.
Increase eligibility for long-term care insurance by raising recipient income limit by $20,000 per year | |||||
|
| ||||||
| 2013 | i. Improve the quality of life of patients and informal caregivers | i.
Promote prevention and early diagnosis Support families Establish system to help patients and families with decision-making Review training for healthcare professionals |
Ministry of Family and Integration Ministry of Health Senior Club Ministry of Social Security Families Healthcare professionals Government officials Representatives of various associations, politicians, and civil society | Did not mention | Did not mention | |
| ii. Increase awareness | ii.
Increase awareness of the elderly’s rights Promote social inclusion of patients | |||||
|
| ||||||
| 2015–2023 | i. Increase awareness | i.
Reduce stigma Provide information on risk factors for dementia Provide guidance for patients and caregivers |
Malta Dementia Society | Did not mention |
Will assess priorities and determine a plan of action, timeframes and key players Will monitor progress and achievements | |
| ii. Improve timely diagnosis and intervention | ii.
Promote early diagnosis and timely care | |||||
| iii. Provide workforce development | iii.
Ensure healthcare professionals have required qualifications to work with dementia patients Recruit trained staff to work in various areas of dementia management and care | |||||
| iv. Improve dementia care | iv.
Provide pharmacological and non-pharmacological treatments Develop individualized care pathways Provide easy access to community services Provide long-term and palliative care | |||||
| v. Ensure ethical approach for dementia care | v.
Provide resources to help patients and families with decision-making | |||||
| vi. Promote research | vi.
Did not mention | |||||
|
| ||||||
| 2014 | i. Promote mental health and prevention of dementia | i.
Increase awareness of dementia Strengthen prevention campaigns Engage civil society, private institutions, and industries in the fight against dementia |
National Institute of Geriatrics National Institute of Public Health National Institute of Neurology and Neurosurgery Mexican Alzheimer Federation National Institute of Older Adults | Did not mention |
Created an advisory group to monitor progress | |
| ii. Provide easy access to services | ii.
Provide comprehensive medical care Establish daycare centers for patients | |||||
| iii. Improve diagnosis and treatment | iii.
Provide catalogue of resources to patients and caregivers Reduce burden on patients and families | |||||
| iv. Increase geriatric training | iv.
Increase number of dementia-specialists Include geriatrics training in undergraduate and graduate curricula for healthcare professionals | |||||
| v. Promote patients’ and caregivers’ rights | v.
Ensure patients are aware of their own rights and the services available for them Provide support to caregivers | |||||
| vi. Improve end-of life-care | vi.
Establish training programs in palliative care for patients’ families and healthcare professionals Provide information on end-of-life documents and legal, social and financial assistance | |||||
| vii. Promote research | vii.
Promote applied research studies Collaborate with scientific groups and Public Health | |||||
|
| ||||||
| 2013–2020 | i. Improve healthcare to ensure good quality of life | i.
Support patients to live at home as long as possible |
Deltaplan Dementia Organizations from healthcare, education, science, public, and professional services |
85 M Euros has already been spent on dementia plan | Did not mention | |
| ii. Create dementia-friendly communities | ii.
Increase awareness | |||||
| iii. Promote research | iii.
Pursue scientific and social research | |||||
|
| ||||||
| 2016 – 2020 | i. Encourage patient and caregiver involvement in decision-making | i.
Establish educational programs for patients Develop quality indicators to improve consistency of care Conduct patient surveys to assess quality of services |
Norwegian government Directorate of Health County governors State Housing Bank |
Government grants provided to municipalities State Housing Bank will fund assisted living facilities |
Directorate of Health will provide leadership County governors will guide municipalities to make appropriate changes to dementia care services National survey of dementia services will be circulated every 4 years | |
| ii. Improve dementia prevention | ii.
Conduct home visits for older adults to promote dementia prevention Reduce number of hip fractures in older adults and people with dementia | |||||
| iii. Provide timely diagnosis and follow-up | iii.
Assign “service coordinators” to patients Create individual plans for patients | |||||
| iv. Enable people with dementia to live active lives and provide support to caregivers | iv.
Propose amendment to Social Services Act: municipalities need to offer day programs to people living at home with dementia by January 2020 Establish flexible respite services Strengthen cooperation with voluntary sector | |||||
| v. Ensure people with dementia have good quality of life and access to assisted living facilities | v.
Develop and evaluate models for home care services Establish modern nursing homes and assisted living facilities with continuous care for patients Improve end-of-life care | |||||
| vi. Strengthen research, knowledge and competence | vi.
Launch information campaigns Develop training programs for relevant sectors Develop practice methods of working in milieu therapy (psychotherapy involving therapeutic environmental changes) Promote research Provide dementia training for people with minority backgrounds or languages Encourage municipalities to develop local dementia plans | |||||
|
| ||||||
| 2011 | i. Reduce risk or delay onset of dementia | i.
Promote prevention and healthy lifestyles Encourage primary care professionals to offer lifestyle advice and early diagnosis Develop protocols for referral to specialists |
Department of Health, Social Services, and Public Safety Health and Social Care Board Public Health Agency Health and Social Care Trusts Dementia Services Development Centre Regulation and Quality Improvement Authority Local commissioning groups | Did not mention | Did not mention | |
| ii. Increase awareness | ii.
Develop educational resources for general population | |||||
| iii. Promote early assessment and diagnosis | iii.
Ensure memory clinics offer a minimum range of services Assess effectiveness of memory services | |||||
| iv. Increase support for patients | iv.
Create individual care plans for patients Audit all dementia services and facilities Establish framework for palliative and end-of-life care Develop care pathways for younger people with dementia and patients with learning disabilities | |||||
| v. Support caregivers | v.
Encourage caregiver involvement in patient discharge and home care planning | |||||
| vi. Initiate legislation changes | vi.
Develop legislation protecting patients’ rights | |||||
| vii. Promote research | vii.
Continue to support dementia research | |||||
|
| ||||||
| 2015–2025 | i. Initiate public policy | i.
Create public policy to guarantee access to services for patients and caregivers Assess current laws to ensure the needs of patients and caregivers are met Develop protocol about elder abuse, specifically for those with dementia |
Task Force appointed by Secretary of Health Puerto Rico Department of Health Secretariat for Health Promotion Chronic Disease Prevention and Control Division | Did not mention | Did not mention | |
| ii. Initiate public health efforts and epidemiological surveillance | ii.
Promote research and surveillance of patients Increase reporting of dementia by doctors and hospitals by 50% Increase surveillance of elder abuse and mistreatment | |||||
| iii. Improve home and community caregiving services | iii.
Improve access to home and community services Create service directory Conduct needs-based assessment to identify barriers to access | |||||
| iv. Improve education and training | iv.
Increase awareness via health promotion, education and communication Host annual educational events Collaborate with academia to integrate dementia awareness into associated curricula | |||||
| v. Improve diagnosis and treatment | v.
Increase access to early diagnosis Train healthcare professionals on importance of timely diagnosis, detection and treatment Conduct needs-based assessment to identify barriers to diagnosis and treatment | |||||
| vi. Improve long-term care services | vi.
Increase awareness of patients’ needs Promote inclusion of patients when creating public policy for long-term care Encourage more long-term care facilities to use intervention protocols for patients | |||||
| vii. Improve long-term care financing | vii.
Increase access to long-term care Improve availability of insurance coverage Reduce financial burden on caregivers via tax incentives | |||||
|
| ||||||
| 2017–2020 | i. Support patient autonomy | i.
Improve delivery of post-diagnostic services Evaluate relocation of post-diagnostic dementia services to primary care locations |
Scottish Government Minister for Mental Health Alzheimer’s Scotland Convention of Local Scottish Authorities Scottish Dementia Working Group National Dementia Carers Action Network | Did not mention |
Will establish a national governing structure to oversee implementation | |
| ii. Improve access to quality, individualized care | iii.
Offer all newly diagnosed patients minimum of 1-year post-diagnostic support | |||||
| iii. Enable individuals to live at home safely | iii.
Establish more therapeutic home care services Implement assistive technologies for home living | |||||
| iv. Improve access to palliative and end-of-life care | iv.
Evaluate “Alzheimer Scotland’s Advanced Care Dementia Palliative and End-of-Life Care Model” Identify improvements in delivery and access to care | |||||
| v. Support caregivers | v.
Continue to build partnerships with caregivers and community organizations | |||||
| vi. Ensure right to quality care for all patients | vi.
Support clinical and non-clinical research Implement “Promoting Excellence” framework in both health and social sector workforces Ensure all patients and caregivers have access to assistive technology for independent living | |||||
| vii. Promote dementia-friendly communities | vii. Encourage and support individuals with dementia to participate in community | |||||
|
| ||||||
| 2014–2017 | i. Increase awareness | i.
Host public educational activities Create information materials for those who interact with individuals with dementia Provide personalized information and counselling for patients |
Federal Office of Public Health Swiss Conference of Guidelines Cantonal Directors of Health | Did not mention |
Led by a coordination committee | |
| ii. Provide needs-appropriate services | ii.
Establish accessible network of diagnostic services Promote use of interdisciplinary care teams to provide individualized care Establish and expand respite services for both day and overnight care Ensure care in both acute hospitals and long-term care facilities is catered to meet patients’ needs | |||||
| iii. Promote quality and professional skills | iii.
Provide quality and ethical care to patients Expand education of healthcare professionals, volunteers, and caregivers to include necessary skills to care for dementia patients | |||||
| iv. Promote data and knowledge transfer | iv.
Determine feasibility of a care monitoring system to be included in health statistics Continue scientific evaluation of new treatment and care Establish online network to allow for knowledge translation and dissemination | |||||
|
| ||||||
| 2013 | i. Increase awareness | i.
Promote public knowledge to lower the risk of dementia and facilitate early referral and assessment Launch educational initiatives to reduce stigma and promote dementia-friendly communities |
Ministry of Health and Welfare | Did not mention | Did not mention | |
| ii. Establish comprehensive community care network | ii.
Provide multi-disciplinary care Establish community network to support patients and caregivers Develop early intervention programs and social interaction to delay functional deterioration | |||||
| iii. Improve prevention and healthcare services | iii.
Increase healthcare professionals’ competency in dementia evaluation Increase access to diagnosis and treatment services | |||||
| iv. Provide training for healthcare professionals and volunteers | iv.
Provide education regarding dementia prevention, treatment and care | |||||
| v. Promote cooperation between healthcare professionals and resource integration | v.
Improve prevention, treatment and early diagnosis | |||||
| vi. Promote patients’ and caregivers’ rights | vi.
Review and update policy regarding individuals with dementia Build policy in conjunction with patients and families Develop quality benchmarks to ensure good provision of service Involve non-government stakeholders in decision-making | |||||
| vii. Promote research | vii.
Monitor population at national and community levels for policy and advocating initiatives Support national and international research | |||||
|
| ||||||
| 2012–2025 | i. Prevent and effectively treat dementia by 2025 | i.
Identify research opportunities for prevention and treatment Host research summits with national and international scientists Disseminate research to promote uptake into practice, to inform research initiatives, and to educate public |
Department of Health and Human Services Advisory Council on Alzheimer’s Research, Care, and Services |
156 M USD from the Obama administration ○ 130 M USD for research 26 M USD for supporting patients and their families, as well as to develop education for public and healthcare professionals |
Will be led by the Secretary of the Department of Health and Human Services and the Advisory Council on Alzheimer’s Research, Care, and Services Strategy to be updated annually | |
| ii. Improve quality and efficiency of dementia care | ii.
Educate healthcare professionals with knowledge and necessary skills Encourage healthcare professionals to pursue geriatric specialities Promote diagnostic services to the public Disseminate diagnostic assessment tools among healthcare professionals | |||||
| iii. Increase support for patients and families | iii.
Educate healthcare professionals about long-term services and supports Improve support for caregivers | |||||
| iv. Increase awareness | iv.
Develop national initiatives | |||||
| v. Track progress of strategy to drive improvements | v.
Identify areas for improvement in major policies and public health data collection | |||||
|
| ||||||
| 2011 | i. Improve service provision | i.
Employ dementia clinical coordinators to support patients Improve care for patients in hospital wards Establish a new service for younger patients |
Welsh Assembly Government Alzheimer’s Society Local government Volunteer sector National Health Service Wales |
1.5 M Pounds per year in additional funding |
Led by the Mental Health Programme Board | |
| ii. Increase information available for patients and caregivers | ii.
Ensure bilingual provision of services Establish dementia care helpline Include dementia care in the Welsh Government Prescription Scheme | |||||
| iii. Increase awareness | iii.
Launch health campaigns | |||||
| iv. Improve training for service providers of dementia care | iv.
Provide dementia training for healthcare professionals and social care workers Create resources to help caregivers | |||||
| v. Promote research | v.
Offer funding to support dementia research | |||||
The Standing Senate Committee’s recommendations for Canada’s national dementia strategya
| 1 |
Establish the Canadian Partnership to Address Dementia Include a mandate to create and implement a National Dementia Strategy |
| 2 |
Model the Canadian Partnership to Address Dementia after the approach taken in the Canadian Partnership Against Cancer Include the following stakeholders in the new dementia partnership ○ Federal, provincial, and territorial governments ○ Dementia and other health-related organizations ○ Individuals with dementia ○ Caregivers ○ Healthcare professionals ○ Housing organizations ○ Researchers ○ Indigenous community Evaluate, report on, and update the National Dementia Strategy annually Federal government funding of at least $30 M annually for the Canadian Partnership to Address Dementia |
| 3 |
Adjust the annual government funding provided to the Canadian Partnership to Address Dementia according to annual evaluations and strategy updates |
| 4 |
Use the following documents when creating the National Dementia Strategy: ○ |
| 5 |
Federal government funding of approximately $100 M annually for the Canadian Institutes of Health Research’s Dementia Research Strategy |
| 6 |
Develop a public awareness campaign that promotes the following items ○ Dementia Friends Canada website ○ Prevention ○ Early diagnosis ○ Symptom recognition ○ Quality of life ○ Services ○ Supports |
| 7 |
Develop public awareness campaigns on healthy eating and active lifestyles |
| 8 |
Adequate federal government funding for the Canadian Chronic Disease Surveillance Program Aim to provide robust, timely and accessible dementia surveillance data beginning in 2017 |
| 9 |
Encourage the implementation of the Alzheimer Society of Canada’s First Link® early intervention program |
| 10 |
Federal government should explore fiscal options to alleviate the financial burden on informal caregivers Possible options: ○ Expand the Employment Insurance compassionate care benefit beyond palliative care Amend the Caregiver Tax Credit and the Family Caregiver Tax Credit to make them refundable |
| 11 |
Promote workplace best practices to support employees who are caregivers |
| 12 |
Provide the following additional supports for caregivers ○ Education and training ○ Respite services ○ Online portal with information about dementia programs and initiatives |
| 13 |
Federal government funding of $3 B over 4 years for a comprehensive package of home care services |
| 14 |
Routinely evaluate and report on the use of government funding for home care services Provide annual, success-based adjustments to funding |
| 15 |
Assess the need for home care funding beyond the initial 4-year period |
| 16 |
Promote innovative technologies and the Home-Care-Plus model (integrates specialists in dementia care into home care) |
| 17 |
Assess the fiscal barriers preventing the integration of health and social services Implement the changes needed to successfully integrate health and social services |
| 18 |
Establish targets for implementing electronic health and prescription drug systems Promote the use of electronic databases by healthcare professionals Report on the progress of implementing these electronic systems |
| 19 |
Promote models of dementia care that integrate healthcare delivery (e.g. Dementia-plus Care Model) Integrate social services into dementia care Promote advance care planning for palliative and end-of-life care |
| 20 |
Federal government funding of $450 M to develop more continuing care infrastructure |
| 21 |
Examine and update as necessary the staffing, care, and accommodation standards in seniors’ residences Improve access to seniors’ housing |
| 22 |
Assess and promote models of dementia care for rural and remote communities |
| 23 |
Expedite federal government funding for rural and remote communities |
| 24 |
Support the Home and Community Care Program by Health Canada’s First Nations and Inuit Health Branch |
| 25 |
Develop standards of care for acute-care hospitals |
| 26 |
Provide dementia care training and professional development for healthcare professionals |
| 27 |
Develop a Best Practices Portal for providers of dementia care |
| 28 |
Consider the programs and practices listed in the report for inclusion in the Best Practices Portal |
| 29 |
Include individuals with dementia in all aspects of the Canadian Partnership to Address Dementia |
Adapted from Reference #54.