Simon Dunne1, Laura Coffey2, Linda Sharp3, Aileen Timmons4, Deirdre Desmond2, Rachael Gooberman-Hill5, Eleanor O'Sullivan6, Ivan Keogh7, Conrad Timon8, Pamela Gallagher1. 1. School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland. 2. Department of Psychology, Maynooth University, Maynooth, Co. Kildare, Ireland. 3. Institute of Health and Society, Newcastle University, Newcastle, UK. 4. National Cancer Registry Ireland, Cork, Ireland. 5. School of Clinical Sciences, University of Bristol, Bristol, UK. 6. University College Cork Dental School and Hospital, Cork, Ireland. 7. Academic Department of Oto Rhino Laryngology, National University of Ireland Galway, Galway, Ireland. 8. Head and Neck Cancer Programme, St. James's Hospital, Dublin, Ireland.
Abstract
OBJECTIVE: Active self-management practices may help head and neck cancer (HNC) survivors to deal with challenges to their physical, functional, social, and psychological well-being presented by HNC and its treatment. This study investigates the factors perceived by HNC survivors to act as barriers to their active self-management following primary treatment. METHODS: In this qualitative study, 27 HNC survivors identified through 4 designated cancer centres in Ireland participated in face-to-face semistructured interviews. Interviews were audio-recorded, transcribed, and analysed using thematic analysis. RESULTS: Four themes (and associated subthemes) describing barriers to survivors' active self-management were identified: emotional barriers (eg, fear of recurrence), symptom-related barriers (eg, loss of taste), structural barriers (eg, access to appropriate health services), and self-evaluative barriers (eg, interpersonal self-evaluative concerns). CONCLUSIONS: This is the first study to describe HNC survivors' views about barriers to their active self-management after treatment. The findings have important implications for self-management research and intervention development concerning HNC survivorship.
OBJECTIVE: Active self-management practices may help head and neck cancer (HNC) survivors to deal with challenges to their physical, functional, social, and psychological well-being presented by HNC and its treatment. This study investigates the factors perceived by HNC survivors to act as barriers to their active self-management following primary treatment. METHODS: In this qualitative study, 27 HNC survivors identified through 4 designated cancer centres in Ireland participated in face-to-face semistructured interviews. Interviews were audio-recorded, transcribed, and analysed using thematic analysis. RESULTS: Four themes (and associated subthemes) describing barriers to survivors' active self-management were identified: emotional barriers (eg, fear of recurrence), symptom-related barriers (eg, loss of taste), structural barriers (eg, access to appropriate health services), and self-evaluative barriers (eg, interpersonal self-evaluative concerns). CONCLUSIONS: This is the first study to describe HNC survivors' views about barriers to their active self-management after treatment. The findings have important implications for self-management research and intervention development concerning HNC survivorship.
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