Literature DB >> 29953733

Preference Phenotypes in Support of Shared Decision-Making at Point-of-Care for Patients With Rheumatoid Arthritis: A Proof-of-Concept Study.

Betty Hsiao1, Pauline Binder-Finnema1, W Benjamin Nowell2, George Michel3, Carole Wiedmeyer2, Liana Fraenkel3.   

Abstract

OBJECTIVE: In this proof-of-concept study, we sought to evaluate whether a value clarification tool enabling patients to view a set of rheumatoid arthritis (RA) treatment preference phenotypes could be used to support shared decision-making at the point-of-care.
METHODS: We conducted a pretest/post test study. English-speaking patients with RA presenting to their scheduled outpatient visits were asked to participate. Visits for patients with active RA were transcribed. Shared decision-making components were measured using a quantitative coding scheme based on an established model of shared decision-making.
RESULTS: Forty-six visits were included in the pretest and 40 in the post test phases. Providers offered more disease-modifying antirheumatic drugs (DMARDs) (2 or more) in the post test visits (60%) compared to the pretest visits (47.8%). Overall, more patients vocalized their values and/or preferences in the post test visits compared to the pretest visits for treatment escalation decisions including a choice of 1 new DMARD (90.9% versus 56.3%), 2 or more new DMARDs (95.8% versus 86.4%), as well as prednisone (87.5% versus 66.7%). Providers were also more likely to base their recommendations on patients' values and/or preferences in the post test (100% of 6 visits) than the pretest (64.3% of 14 visits) phases during visits in which a recommendation was made. The mean ± SD length of the visit was 29.9 ± 11.6 minutes and 25.1 ± 10.7 minutes in the pretest and post test phases, respectively.
CONCLUSION: This study provides an early indication that a value clarification tool allowing patients to consider a set of preference phenotypes can support shared decision-making at the point-of-care without extending visit time.
© 2018, American College of Rheumatology.

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Year:  2019        PMID: 29953733      PMCID: PMC6310675          DOI: 10.1002/acr.23684

Source DB:  PubMed          Journal:  Arthritis Care Res (Hoboken)        ISSN: 2151-464X            Impact factor:   4.794


  22 in total

1.  Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model.

Authors:  C Charles; A Gafni; T Whelan
Journal:  Soc Sci Med       Date:  1999-09       Impact factor: 4.634

2.  Results from a pragmatic prospective cohort study: Shared decision making improves outcomes for children with asthma.

Authors:  Hazel Tapp; Lindsay Shade; Rohan Mahabaleshwarkar; Yhenneko J Taylor; Thomas Ludden; Michael F Dulin
Journal:  J Asthma       Date:  2016-11-04       Impact factor: 2.515

3.  Patients' participation in medical care: effects on blood sugar control and quality of life in diabetes.

Authors:  S Greenfield; S H Kaplan; J E Ware; E M Yano; H J Frank
Journal:  J Gen Intern Med       Date:  1988 Sep-Oct       Impact factor: 5.128

4.  Effect of a treatment strategy of tight control for rheumatoid arthritis (the TICORA study): a single-blind randomised controlled trial.

Authors:  Catriona Grigor; Hilary Capell; Anne Stirling; Alex D McMahon; Peter Lock; Ramsay Vallance; Wilma Kincaid; Duncan Porter
Journal:  Lancet       Date:  2004 Jul 17-23       Impact factor: 79.321

5.  Preference phenotypes to facilitate shared decision-making in rheumatoid arthritis.

Authors:  Liana Fraenkel; W Benjamin Nowell; George Michel; Carole Wiedmeyer
Journal:  Ann Rheum Dis       Date:  2017-12-15       Impact factor: 19.103

6.  Use of Low-Literacy Decision Aid to Enhance Knowledge and Reduce Decisional Conflict Among a Diverse Population of Adults With Rheumatoid Arthritis: Results of a Pilot Study.

Authors:  Jennifer L Barton; Laura Trupin; Dean Schillinger; Gina Evans-Young; John Imboden; Victor M Montori; Edward Yelin
Journal:  Arthritis Care Res (Hoboken)       Date:  2016-07       Impact factor: 4.794

7.  Barriers and facilitators to implementing shared decision-making in clinical practice: a systematic review of health professionals' perceptions.

Authors:  Karine Gravel; France Légaré; Ian D Graham
Journal:  Implement Sci       Date:  2006-08-09       Impact factor: 7.327

8.  Decision aids that really promote shared decision making: the pace quickens.

Authors:  Thomas Agoritsas; Anja Fog Heen; Linn Brandt; Pablo Alonso-Coello; Annette Kristiansen; Elie A Akl; Ignacio Neumann; Kari Ao Tikkinen; Trudy van der Weijden; Glyn Elwyn; Victor M Montori; Gordon H Guyatt; Per Olav Vandvik
Journal:  BMJ       Date:  2015-02-10

9.  Evaluation of a patient decision aid for initiating disease modifying anti-rheumatic drugs.

Authors:  Ingrid Nota; Constance H C Drossaert; Erik Taal; Harald E Vonkeman; Cees J Haagsma; Mart A F J van de Laar
Journal:  Arthritis Res Ther       Date:  2016-10-28       Impact factor: 5.156

10.  Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi).

Authors:  Glyn Elwyn; Annette M O'Connor; Carol Bennett; Robert G Newcombe; Mary Politi; Marie-Anne Durand; Elizabeth Drake; Natalie Joseph-Williams; Sara Khangura; Anton Saarimaki; Stephanie Sivell; Mareike Stiel; Steven J Bernstein; Nananda Col; Angela Coulter; Karen Eden; Martin Härter; Margaret Holmes Rovner; Nora Moumjid; Dawn Stacey; Richard Thomson; Tim Whelan; Trudy van der Weijden; Adrian Edwards
Journal:  PLoS One       Date:  2009-03-04       Impact factor: 3.240

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  3 in total

1.  Qualitative Exploration of Triangulated, Shared Decision-Making in Rheumatoid Arthritis.

Authors:  Pauline Binder-Finnema; Kathryn Dzurilla; Betty Hsiao; Liana Fraenkel
Journal:  Arthritis Care Res (Hoboken)       Date:  2019-12       Impact factor: 4.794

2.  Patient preferences on rheumatoid arthritis second-line treatment: a discrete choice experiment of Swedish patients.

Authors:  Karin Schölin Bywall; Ulrik Kihlbom; Mats Hansson; Marie Falahee; Karim Raza; Eva Baecklund; Jorien Veldwijk
Journal:  Arthritis Res Ther       Date:  2020-12-19       Impact factor: 5.156

Review 3.  New galaxies in the universe of shared decision-making and rheumatoid arthritis.

Authors:  Jennifer L Barton; Simon Décary
Journal:  Curr Opin Rheumatol       Date:  2020-05       Impact factor: 4.941

  3 in total

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