Momcilo Jankovic1, Riccardo Haupt2, John J Spinetta3, Joern D Beck4,5, Julianne Byrne6, Gabriele Calaminus7, Herwig Lackner8, Andrea Biondi9, Kevin Oeffinger10, Melissa Hudson11, Roderick Skinner12, Gregory Reaman13, Helena van der Pal14, Leontien Kremer14,15, Jaap den Hartogh16, Gisela Michel17, Eva Frey18, Edit Bardi19,20, Michael Hawkins21, Katie Rizvi22, Monica Terenziani23, Maria Grazia Valsecchi24, Gerlind Bode25, Meriel Jenney26, Florent de Vathaire27, Stanislaw Garwicz28, Gill A Levitt29, Desiree Grabow30, Claudia E Kuehni31, Martin Schrappe32, Lars Hjorth28. 1. Department of Pediatrics, University of Milano-Bicocca/Foundation MBBM, Hospital San Gerardo, Via Pergolesi 33, 20900, Monza, Monza and Brianza, Italy. m.jankovic@asst-monza.it. 2. Epidemiology and Biostatistics Section, IRCCS Institute Giannina Gaslini, Genoa, Italy. 3. Department of Psychology, San Diego State University, San Diego, CA, USA. 4. Hospital for Children and Adolescents, University of Erlangen-Nürnberg, Erlangen, Germany. 5. LESS Group, Hospital for Children and Adolescents, University of Lübeck, Lübeck, Germany. 6. Boyne Research Institute, Drogheda, Ireland. 7. Department of Pediatric Hematology and Oncology, University Children's Hospital, Bonn, Germany. 8. Department of Pediatrics and Adolescent Medicine, Division of Pediatric Haematology/Oncology, Medical University of Graz, Graz, Austria. 9. Department of Pediatrics, University of Milano-Bicocca/Foundation MBBM, Hospital San Gerardo, Via Pergolesi 33, 20900, Monza, Monza and Brianza, Italy. 10. Department of Medicine, Duke Cancer Institute, Durham, NC, USA. 11. St. Jude Children's Research Hospital, Memphis, TN, USA. 12. Department of Paediatric and Adolescent Haematology and Oncology, and Children's BMT Unit, Great North Children's Hospital, Royal Victoria Infirmary, and Northern Institute of Cancer Research, Newcastle University, Newcastle upon Tyne, UK. 13. Center for Cancer and Blood Disorders, Children's National Medical Center, The George Washington University School of Medicine and Health Sciences, Washington, D.C., USA. 14. Department of Pediatric Oncology, Academic Medical Center-Emma Children's Hospital, Amsterdam, The Netherlands. 15. The Princess Maxima Center for Pediatric Oncology in Utrecht, Utrecht, The Netherlands. 16. Dutch Childhood Cancer Parent Organisation (VOKK), Nieuwegein, The Netherlands. 17. Department of Health Sciences and Health Policy, Universität Luzern, Luzern, Switzerland. 18. St. Anna Kinderspital, Wien, Austria. 19. 2nd Department of Pediatrics, Semmelweis University, Budapest, Hungary. 20. Kepler Universitätsklinikum, Linz, Austria. 21. Centre for Childhood Cancer Survivor Studies, Institute of Applied Health Research, University of Birmingham, Birmingham, UK. 22. Youth Cancer Europe, Vilnius, Lithuania. 23. Pediatric Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori, Milan, Italy. 24. School of Medicine and Surgery, University of Milano-Bicocca, Monza, Italy. 25. Childhood Cancer International (CCI), Nieuwegein, The Netherlands. 26. Department of Paediatric Oncology, Children's Hospital for Wales, Heath Park, Cardiff, UK. 27. Cancer and Radiation, Unit 1018 INSERM, University of Paris-Saclay, Gustave Roussy, 39, rue Camille Desmoulins, 94805, Villejuif CEDEX, France. 28. Department of Clinical Sciences, Pediatrics, Skane University Hospital, Lund University, Lund, Sweden. 29. Department of Paediatric Oncology, Great Ormond Street Hospital for Children, NHS Foundation Trust, London, UK. 30. German Childhood Cancer Registry (GCCR), Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center, Mainz, Germany. 31. Swiss Childhood Cancer Registry, Institute of Social and Preventive Medicine, University of Bern, Finkenhubelweg 11, 3012, Bern, Switzerland. 32. Klinik für Kinder und Jugendmedizin, Universitätsklinikum Schleswig-Holstein, Campus Kiel, Kiel, Germany.
Abstract
PURPOSE: The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and who have entered adulthood is increasing over time, and former patients will become aging citizens. METHODS: Ten years ago, an expert panel met in Erice, Italy, to produce a set of principles concerning the cure and care of survivors of childhood and adolescent cancer. The result was the Erice Statement (Haupt et al. Eur J Cancer 43(12):1778-80, 2007) that was translated into nine languages. Ten years on, it was timely to review, and possibly revise, the Erice Statement in view of the changes in paediatric oncology and the number and results of international follow-up studies conducted during the intervening years. RESULTS: The long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adult with optimal health-related quality of life, accepted in society at the same level as his/her age peers. "Cure" refers to cure from the original cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. The care of a child with cancer should include complete and honest information for parents and the child. CONCLUSIONS AND IMPLICATION FOR CANCER SURVIVORS: Some members of the previous expert panel, as well as new invited experts, met again in Erice to review the Erice Statement, producing a revised version including update and integration of each of the ten points. In addition, a declaration has been prepared, by the Childhood Cancer International Survivors Network in Dublin on October 2016 (see Annex 1).
PURPOSE: The number of persons who have successfully completed treatment for a cancer diagnosed during childhood and who have entered adulthood is increasing over time, and former patients will become aging citizens. METHODS: Ten years ago, an expert panel met in Erice, Italy, to produce a set of principles concerning the cure and care of survivors of childhood and adolescent cancer. The result was the Erice Statement (Haupt et al. Eur J Cancer 43(12):1778-80, 2007) that was translated into nine languages. Ten years on, it was timely to review, and possibly revise, the Erice Statement in view of the changes in paediatric oncology and the number and results of international follow-up studies conducted during the intervening years. RESULTS: The long-term goal of the cure and care of a child with cancer is that he/she becomes a resilient and autonomous adult with optimal health-related quality of life, accepted in society at the same level as his/her age peers. "Cure" refers to cure from the original cancer, regardless of any potential for, or presence of, remaining disabilities or side effects of treatment. The care of a child with cancer should include complete and honest information for parents and the child. CONCLUSIONS AND IMPLICATION FOR CANCER SURVIVORS: Some members of the previous expert panel, as well as new invited experts, met again in Erice to review the Erice Statement, producing a revised version including update and integration of each of the ten points. In addition, a declaration has been prepared, by the Childhood Cancer International Survivors Network in Dublin on October 2016 (see Annex 1).
Entities:
Keywords:
Childhood care; Childhood cure; Health; Quality of life
Authors: Riccardo Haupt; John J Spinetta; Irina Ban; Ronald D Barr; Joern D Beck; Julianne Byrne; Gabriele Calaminus; Eva Coenen; Mark Chesler; Giulio J D'Angio; Christine Eiser; Andreas Feldges; Faith Gibson; Herwig Lackner; Giuseppe Masera; Luisa Massimo; Edina Magyarosy; Jacques Otten; Gregory Reaman; Maria Grazia Valsecchi; Anjo J P Veerman; Anthony Penn; Anne Thorvildsen; Cor van den Bos; Momcilo Jankovic Journal: Eur J Cancer Date: 2007-05-31 Impact factor: 9.162
Authors: Gisela Michel; Renée L Mulder; Helena J H van der Pal; Roderick Skinner; Edit Bárdi; Morven C Brown; Janine Vetsch; Eva Frey; Rachael Windsor; Leontien C M Kremer; Gill Levitt Journal: J Cancer Surviv Date: 2019-08-08 Impact factor: 4.442
Authors: Mareike Ernst; Ana N Tibubos; Josef Unterrainer; Juliane Burghardt; Elmar Brähler; Philipp S Wild; Claus Jünger; Jörg Faber; Astrid Schneider; Manfred E Beutel Journal: Sci Rep Date: 2019-05-13 Impact factor: 4.379