Barry Dewitt1, David Feeny2, Baruch Fischhoff1, David Cella3, Ron D Hays4, Rachel Hess5, Paul A Pilkonis6, Dennis A Revicki7, Mark S Roberts8, Joel Tsevat9, Lan Yu6, Janel Hanmer6. 1. Carnegie Mellon University, Department of Engineering and Public Policy, Pittsburgh, PA, USA. 2. McMaster University Faculty of Social Sciences, Hamilton, ON, Canada. 3. Northwestern University Feinberg School of Medicine, Chicago, IL, USA. 4. University of California Los Angeles David Geffen School of Medicine, Los Angeles, CA, USA. 5. University of Utah, Salt Lake City, UT, USA. 6. University of Pittsburgh Medical Center, Pittsburgh, PA, USA. 7. Evidera Inc, Bethesda, MD, USA. 8. University of Pittsburgh Graduate School of Public Health, Pittsburgh, PA, USA. 9. University of Texas Health Science Center at San Antonio, San Antonio, TX, USA.
Abstract
BACKGROUND: Health-related quality of life (HRQL) preference-based scores are used to assess the health of populations and patients and for cost-effectiveness analyses. The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS®) consists of patient-reported outcome measures developed using item response theory. PROMIS is in need of a direct preference-based scoring system for assigning values to health states. OBJECTIVE: To produce societal preference-based scores for 7 PROMIS domains: Cognitive Function-Abilities, Depression, Fatigue, Pain Interference, Physical Function, Sleep Disturbance, and Ability to Participate in Social Roles and Activities. SETTING: Online survey of a US nationally representative sample ( n = 983). METHODS: Preferences for PROMIS health states were elicited with the standard gamble to obtain both single-attribute scoring functions for each of the 7 PROMIS domains and a multiplicative multiattribute utility (scoring) function. RESULTS: The 7 single-attribute scoring functions were fit using isotonic regression with linear interpolation. The multiplicative multiattribute summary function estimates utilities for PROMIS multiattribute health states on a scale where 0 is the utility of being dead and 1 the utility of "full health." The lowest possible score is -0.022 (for a state viewed as worse than dead), and the highest possible score is 1. LIMITATIONS: The online survey systematically excludes some subgroups, such as the visually impaired and illiterate. CONCLUSIONS: A generic societal preference-based scoring system is now available for all studies using these 7 PROMIS health domains.
BACKGROUND: Health-related quality of life (HRQL) preference-based scores are used to assess the health of populations and patients and for cost-effectiveness analyses. The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS®) consists of patient-reported outcome measures developed using item response theory. PROMIS is in need of a direct preference-based scoring system for assigning values to health states. OBJECTIVE: To produce societal preference-based scores for 7 PROMIS domains: Cognitive Function-Abilities, Depression, Fatigue, Pain Interference, Physical Function, Sleep Disturbance, and Ability to Participate in Social Roles and Activities. SETTING: Online survey of a US nationally representative sample ( n = 983). METHODS: Preferences for PROMIS health states were elicited with the standard gamble to obtain both single-attribute scoring functions for each of the 7 PROMIS domains and a multiplicative multiattribute utility (scoring) function. RESULTS: The 7 single-attribute scoring functions were fit using isotonic regression with linear interpolation. The multiplicative multiattribute summary function estimates utilities for PROMIS multiattribute health states on a scale where 0 is the utility of being dead and 1 the utility of "full health." The lowest possible score is -0.022 (for a state viewed as worse than dead), and the highest possible score is 1. LIMITATIONS: The online survey systematically excludes some subgroups, such as the visually impaired and illiterate. CONCLUSIONS: A generic societal preference-based scoring system is now available for all studies using these 7 PROMIS health domains.
Entities:
Keywords:
PROMIS; US general population; health utility; health-related quality of life
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