Literature DB >> 29942634

Using social media for health research: Methodological and ethical considerations for recruitment and intervention delivery.

Danielle Arigo1,2, Sherry Pagoto3, Lisa Carter-Harris4,5, Sarah E Lillie6, Camille Nebeker7.   

Abstract

As the popularity and diversity of social media platforms increases so does their utility for health research. Using social media for recruitment into clinical studies and/or delivering health behavior interventions may increase reach to a broader audience. However, evidence supporting the efficacy of these approaches is limited, and key questions remain with respect to optimal benchmarks, intervention development and methodology, participant engagement, informed consent, privacy, and data management. Little methodological guidance is available to researchers interested in using social media for health research. In this Tutorial, we summarize the content of the 2017 Society for Behavioral Medicine Pre-Conference Course entitled 'Using Social Media for Research,' at which the authors presented their experiences with methodological and ethical issues relating to social media-enabled research recruitment and intervention delivery. We identify common pitfalls and provide recommendations for recruitment and intervention via social media. We also discuss the ethical and responsible conduct of research using social media for each of these purposes.

Entities:  

Keywords:  Digital health; Facebook; Twitter; health behavior change; research ethics; social media

Year:  2018        PMID: 29942634      PMCID: PMC6016568          DOI: 10.1177/2055207618771757

Source DB:  PubMed          Journal:  Digit Health        ISSN: 2055-2076


  53 in total

1.  Social sciences. Social media for large studies of behavior.

Authors:  Derek Ruths; Jürgen Pfeffer
Journal:  Science       Date:  2014-11-28       Impact factor: 47.728

2.  Varying social media post types differentially impacts engagement in a behavioral weight loss intervention.

Authors:  Sarah B Hales; Charis Davidson; Gabrielle M Turner-McGrievy
Journal:  Transl Behav Med       Date:  2014-12       Impact factor: 3.046

3.  Can I get a retweet please? Health research recruitment and the Twittersphere.

Authors:  Anita O'Connor; Leigh Jackson; Lesley Goldsmith; Heather Skirton
Journal:  J Adv Nurs       Date:  2013-08-04       Impact factor: 3.187

4.  Social media-delivered sexual health intervention: a cluster randomized controlled trial.

Authors:  Sheana S Bull; Deborah K Levine; Sandra R Black; Sarah J Schmiege; John Santelli
Journal:  Am J Prev Med       Date:  2012-11       Impact factor: 5.043

5.  Web-based recruiting for health research using a social networking site: an exploratory study.

Authors:  Yeshe Fenner; Suzanne M Garland; Elya E Moore; Yasmin Jayasinghe; Ashley Fletcher; Sepehr N Tabrizi; Bharathy Gunasekaran; John D Wark
Journal:  J Med Internet Res       Date:  2012-02-01       Impact factor: 5.428

6.  Terminated Trials in the ClinicalTrials.gov Results Database: Evaluation of Availability of Primary Outcome Data and Reasons for Termination.

Authors:  Rebecca J Williams; Tony Tse; Katelyn DiPiazza; Deborah A Zarin
Journal:  PLoS One       Date:  2015-05-26       Impact factor: 3.240

7.  Beyond Traditional Newspaper Advertisement: Leveraging Facebook-Targeted Advertisement to Recruit Long-Term Smokers for Research.

Authors:  Lisa Carter-Harris; Rebecca Bartlett Ellis; Adam Warrick; Susan Rawl
Journal:  J Med Internet Res       Date:  2016-06-15       Impact factor: 5.428

8.  Acceptance of Mobile Health in Communities Underrepresented in Biomedical Research: Barriers and Ethical Considerations for Scientists.

Authors:  Camille Nebeker; Kate Murray; Christina Holub; Jessica Haughton; Elva M Arredondo
Journal:  JMIR Mhealth Uhealth       Date:  2017-06-28       Impact factor: 4.773

9.  How effective and cost-effective was the national mass media smoking cessation campaign 'Stoptober'?

Authors:  Jamie Brown; Daniel Kotz; Susan Michie; John Stapleton; Matthew Walmsley; Robert West
Journal:  Drug Alcohol Depend       Date:  2013-11-20       Impact factor: 4.492

Review 10.  The use of social networking sites for public health practice and research: a systematic review.

Authors:  Daniel Capurro; Kate Cole; Maria I Echavarría; Jonathan Joe; Tina Neogi; Anne M Turner
Journal:  J Med Internet Res       Date:  2014-03-14       Impact factor: 5.428

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  50 in total

1.  Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants.

Authors:  Ananya Bhatia-Lin; Alexandra Boon-Dooley; Michelle K Roberts; Caroline Pronai; Dylan Fisher; Lea Parker; Allison Engstrom; Leah Ingraham; Doyanne Darnell
Journal:  Am J Bioeth       Date:  2019-06       Impact factor: 11.229

2.  Using Social Media to Enhance Provider Network for HIV and Harm Reduction Service Integration in Vietnam.

Authors:  Li Li; Chunqing Lin; Nan Feng; Tuan Anh Le; Julie Hsieh; Diep Bich Nguyen; Tuan Anh Nguyen
Journal:  AIDS Behav       Date:  2019-11

Review 3.  The CAN-DO-IT Model: a Process for Developing and Refining Online Recruitment in HIV/AIDS and Sexual Health Research.

Authors:  Kathryn Macapagal; Dennis H Li; Antonia Clifford; Krystal Madkins; Brian Mustanski
Journal:  Curr HIV/AIDS Rep       Date:  2020-06       Impact factor: 5.071

4.  Facebook Recruitment and the Protection of Human Subjects.

Authors:  Kendra Kamp; Kayla Herbell; William H Magginis; Donna Berry; Barbara Given
Journal:  West J Nurs Res       Date:  2019-02-07       Impact factor: 1.967

5.  Digital Technologies for Emotion-Regulation Assessment and Intervention: A Conceptual Review.

Authors:  Alexandra H Bettis; Taylor A Burke; Jacqueline Nesi; Richard T Liu
Journal:  Clin Psychol Sci       Date:  2021-06-03

6.  Revising Recruitment for Focus Groups to Meet Shifting Needs During COVID-19.

Authors:  Pearman D Parker; Jean C McSweeney; Kristie B Hadden; Kaycee G Hess
Journal:  Nurs Res       Date:  2022 Mar-Apr 01       Impact factor: 2.381

7.  Multiple approaches to enhancing cancer communication in the next decade: translating research into practice and policy.

Authors:  Claire C Conley; Amy K Otto; Glynnis A McDonnell; Kenneth P Tercyak
Journal:  Transl Behav Med       Date:  2021-11-30       Impact factor: 3.046

8.  Engaging Social Media Influencers to Recruit Hard-to-Reach Populations.

Authors:  Katherine Wentzell; Heather R Walker; Allyson S Hughes; Judith A Vessey
Journal:  Nurs Res       Date:  2021 Nov-Dec 01       Impact factor: 2.381

9.  Training Needs of Community Health Workers Facing the COVID-19 Pandemic in Texas: A Cross-Sectional Study.

Authors:  Courtney Byrd-Williams; Mollie Ewing; E Lee Rosenthal; Julie Ann St John; Paige Menking; Floribella Redondo; Stephanie Sieswerda
Journal:  Front Public Health       Date:  2021-06-14

Review 10.  The Use of Social Media for Health Research Purposes: Scoping Review.

Authors:  Charline Bour; Adrian Ahne; Susanne Schmitz; Camille Perchoux; Coralie Dessenne; Guy Fagherazzi
Journal:  J Med Internet Res       Date:  2021-05-27       Impact factor: 5.428

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