Literature DB >> 29940079

Constructing citizen engagement in health research priority-setting to attend to dynamics of power and difference.

Bridget Pratt.   

Abstract

Engaging citizens is vital to achieving people-centred health research. This paper aims to put attention to dynamics of power and dynamics of difference back at the centre of citizen engagement in health research priority-setting. Without attention to power and difference, engagement can lead to presence without voice and voice without influence, particularly for disadvantaged and marginalised groups. By analysing six key bodies of literature, the paper first identifies the different components of engagement-who initiates, for what purpose, who participates, and how they participate-and the dynamics of power and dynamics of difference relevant to them. For each component of engagement, the ethical considerations relating to those dimensions of power and dimensions of difference are characterised for the research priority-setting context and preliminary guidance on how they might be addressed is provided. An initial framework comprised of a series of questions reflecting these ethical considerations has been developed for use by researchers and citizens when designing engagement processes for research projects. Where researchers and citizens attend to the framework's questions and then revise their priority-setting processes' design to better represent diversity and mitigate power disparities, more inclusive citizen engagement is promoted. Disadvantaged and marginalised groups are more likely to be present and heard, which, in turn, will help generate research projects with topics and questions that encompass and more accurately reflect their health needs.
© 2018 John Wiley & Sons Ltd.

Entities:  

Keywords:  engagement; ethics; health research; justice, power; priority-setting

Mesh:

Year:  2018        PMID: 29940079     DOI: 10.1111/dewb.12197

Source DB:  PubMed          Journal:  Dev World Bioeth        ISSN: 1471-8731            Impact factor:   2.294


  7 in total

Review 1.  Research for Health Justice: an ethical framework linking global health research to health equity.

Authors:  Bridget Pratt
Journal:  BMJ Glob Health       Date:  2021-02

2.  What Does "Good" Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research.

Authors:  Gary Hickey; Katie Porter; Doreen Tembo; Una Rennard; Martha Tholanah; Peter Beresford; David Chandler; Moses Chimbari; Tina Coldham; Lisa Dikomitis; Biggy Dziro; Peter O Ekiikina; Maria I Khattak; Cristian R Montenegro; Noni Mumba; Rosemary Musesengwa; Erica Nelson; Clement Nhunzvi; Caroline M Ramirez; Sophie Staniszewska
Journal:  Front Public Health       Date:  2022-01-27

3.  Community engagement in research in sub-Saharan Africa: approaches, barriers, facilitators, ethical considerations and the role of gender - a systematic review protocol.

Authors:  Luchuo Engelbert Bain; Alfred K Njamnshi; Claudine Akondeng; Wepnyu Y Njamnshi; Henshaw Eyambe Mandi; Valirie Ndip Agbor
Journal:  BMJ Open       Date:  2022-05-11       Impact factor: 3.006

4.  How is inclusiveness in health systems research priority-setting affected when community organizations lead the process?

Authors:  Bridget Pratt; Prashanth N Srinivas; Tanya Seshadri
Journal:  Health Policy Plan       Date:  2022-08-03       Impact factor: 3.547

5.  Developing an obesity research agenda with British Pakistani women living in deprived areas with involvement from multisectoral stakeholders: Research priority setting with a seldom heard group.

Authors:  Halima Iqbal; Jane West; Rosemary R C McEachan; Melanie Haith-Cooper
Journal:  Health Expect       Date:  2022-04-28       Impact factor: 3.318

6.  Sharing power in global health research: an ethical toolkit for designing priority-setting processes that meaningfully include communities.

Authors:  Bridget Pratt
Journal:  Int J Equity Health       Date:  2021-05-25

7.  Developing a toolkit for engagement practice: sharing power with communities in priority-setting for global health research projects.

Authors:  Bridget Pratt
Journal:  BMC Med Ethics       Date:  2020-03-14       Impact factor: 2.652

  7 in total

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