Literature DB >> 29938568

Gradually Disengaging: Parent-Health care Provider Relationships After a Child's Death in the Pediatric Intensive Care Unit.

Ashleigh E Butler1, Helen Hall2, Beverley Copnell3.   

Abstract

When a child dies in the intensive care unit, many bereaved parents want relationships with their child's health care staff to continue in the form of follow-up care. However, the nature of these relationships and how they change across the parents' bereavement journey is currently unknown. This article explores early and ongoing relationships between parents and health care staff when a child dies in intensive care. Constructivist grounded theory methods were used to recruit 26 bereaved parents from four Australian pediatric intensive care units into the study. Data were collected via audio-recorded, semistructured interviews and analyzed using the constant comparative methods and theoretical memoing. Findings show that these relationships focus on Gradually disengaging, commonly moving through three phases after the child dies: Saying goodbye, Going home, and Seeking supports. These findings provide guidance to health care staff on what families need as they leave the intensive care unit and move through bereavement.

Entities:  

Keywords:  death; grounded theory; parent–health care provider relationship; pediatric intensive care

Mesh:

Year:  2018        PMID: 29938568     DOI: 10.1177/1074840718783470

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  2 in total

1.  Bereaved parents' experiences of research participation.

Authors:  Ashleigh E Butler; Helen Hall; Beverley Copnell
Journal:  BMC Palliat Care       Date:  2018-11-07       Impact factor: 3.234

2.  Bereaved parents' perspectives on their child's end-of-life care: connecting a self-report questionnaire and interview data from the nationwide Paediatric End-of-LIfe CAre Needs in Switzerland (PELICAN) study.

Authors:  Karin Zimmermann; Katrin Marfurt-Russenberger; Eva Cignacco; Eva Bergstraesser
Journal:  BMC Palliat Care       Date:  2022-05-04       Impact factor: 3.113

  2 in total

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