Ana M Palmar-Santos1, Azucena Pedraz-Marcos1, Juan Zarco-Colón2, Milagros Ramasco-Gutiérrez3, Eva García-Perea4, Monserrat Pulido-Fuentes5. 1. 1 Department of Surgery, Universidad Autónoma de Madrid, Qualitative Health Research Group (GIQS-UAM), Spain. 2. 2 Department of Sociology, Universidad Autónoma de Madrid, Qualitative Health Research Group (GIQS-UAM), Spain. 3. 3 Department of Health Promotion, Regional Health Service of Madrid, Qualitative Health Research Group (GIQS-UAM), Spain. 4. 4 Department of Surgery, Universidad Autónoma de Madrid, Spain. 5. 5 Faculty of Nursing, University of Castilla-La Mancha, Talavera de la Reina, Spain.
Abstract
BACKGROUND: The technological advances of medicine, and specifically the techniques of organ transplants, have allowed crossing the border of life and death. This is especially relevant in the case of heart transplant, since its symbolism requires a redefinition not only of these traditional concepts, but also of the body or of one's own identity. AIMS: To explore the experiences of patients after receiving a heart from a donor. METHODS: A phenomenological qualitative approach, through Merleau Ponty and Levinas perspectives, was conducted to capture the subjective experiences of heart transplant patients. We conducted 22 in-depth interviews: 12 with heart transplant patients from two hospitals in Madrid (Spain), and 10 with relatives who lived with them. RESULTS: The line between life and death is erased for heart transplant patients. Three main themes arose from the analysis: towards death, the frontier between life and death, and towards life. The need to redefine the concepts of life and death is structured around issues such as the thought of facing one's own death and the concept of gift and resurrection. CONCLUSION: Organ transplant techniques open the door to a new definition of death, of the identity of the body and its parts and the limits of life. Considering the cultural, legal, psychological, social and symbolic elements involved in the heart transplant process, a qualitative approach provides new avenues of understanding the clinical process from the patients' perspective.
BACKGROUND: The technological advances of medicine, and specifically the techniques of organ transplants, have allowed crossing the border of life and death. This is especially relevant in the case of heart transplant, since its symbolism requires a redefinition not only of these traditional concepts, but also of the body or of one's own identity. AIMS: To explore the experiences of patients after receiving a heart from a donor. METHODS: A phenomenological qualitative approach, through Merleau Ponty and Levinas perspectives, was conducted to capture the subjective experiences of heart transplant patients. We conducted 22 in-depth interviews: 12 with heart transplant patients from two hospitals in Madrid (Spain), and 10 with relatives who lived with them. RESULTS: The line between life and death is erased for heart transplant patients. Three main themes arose from the analysis: towards death, the frontier between life and death, and towards life. The need to redefine the concepts of life and death is structured around issues such as the thought of facing one's own death and the concept of gift and resurrection. CONCLUSION: Organ transplant techniques open the door to a new definition of death, of the identity of the body and its parts and the limits of life. Considering the cultural, legal, psychological, social and symbolic elements involved in the heart transplant process, a qualitative approach provides new avenues of understanding the clinical process from the patients' perspective.
Authors: Catharina Lindberg; Matilda Almgren; Annette Lennerling; Anna Forsberg Journal: Int J Environ Res Public Health Date: 2020-07-28 Impact factor: 3.390