Literature DB >> 29884294

Personal health records, global policy and regulation review.

Yakov Flaumenhaft1, Ofir Ben-Assuli2.   

Abstract

Personal health records (PHR) have been endorsed as a promising tool for the self-management of an individual's medical information, affording benefits to both the individual patient and the healthcare system as a whole. Nevertheless, adoption rates have been relatively slow and widespread acceptance has yet to be achieved. A significant obstacle often cited as delaying the implementation of these systems has been concern regarding the ability to properly ensure the security and privacy of this sensitive information. This article reviews the current legislative landscape in various countries, examining the degree to which they address these issues and support the implementation of PHR's. This review compares in particular a number of prominent components of health data security and privacy across five different legislative jurisdictions in order to allow for a closer examination of regulatory approaches and measures. Of the legislation reviewed the EU's GDPR stands out as seemingly providing the most comprehensive and stringent protection measures, yet nonetheless appears to leave significant room for interpretation and a degree of ambiguity in key areas. The results of this comparison, demonstrate considerable variances with regards to legal terminology and the degree of compliance required from entities offering PHR services across various jurisdictions. The paper ends with a discussion of specific policy implications and recommendations stemming from the current legislative state of affairs.
Copyright © 2018 Elsevier B.V. All rights reserved.

Entities:  

Keywords:  Personal health records; Privacy; Regulation; Security

Mesh:

Year:  2018        PMID: 29884294     DOI: 10.1016/j.healthpol.2018.05.002

Source DB:  PubMed          Journal:  Health Policy        ISSN: 0168-8510            Impact factor:   2.980


  6 in total

1.  Developing a Feasible and Credible Method for Analyzing Healthcare Documents as Written Data.

Authors:  Tanja Moilanen; Mari Sivonen; Kirsi Hipp; Hanna Kallio; Oili Papinaho; Minna Stolt; Riitta Turjamaa; Arja Häggman-Laitila; Mari Kangasniemi
Journal:  Glob Qual Nurs Res       Date:  2022-07-07

2.  The Protection Mechanism of Personal Health Information in the Digital Economy Environment.

Authors:  Nan Liu; Shiyong Chen
Journal:  J Environ Public Health       Date:  2022-06-13

3.  Digital Diabetes Data and Artificial Intelligence: A Time for Humility Not Hubris.

Authors:  David Kerr; David C Klonoff
Journal:  J Diabetes Sci Technol       Date:  2018-09-05

4.  Data Science in Environmental Health Research.

Authors:  Christine Choirat; Danielle Braun; Marianthi-Anna Kioumourtzoglou
Journal:  Curr Epidemiol Rep       Date:  2019-07-15

5.  Integrated Care Programs for People with Multimorbidity in European Countries: eHealth Adoption in Health Systems.

Authors:  Maria Gabriella Melchiorre; Roberta Papa; Sabrina Quattrini; Giovanni Lamura; Francesco Barbabella
Journal:  Biomed Res Int       Date:  2020-04-08       Impact factor: 3.411

6.  Energy efficiency in software: A case study on sustainability in personal health records.

Authors:  José A García-Berná; José L Fernández-Alemán; Juan M Carrillo de Gea; Ambrosio Toval; Javier Mancebo; Coral Calero; Félix García
Journal:  J Clean Prod       Date:  2020-09-22       Impact factor: 9.297

  6 in total

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