N Meunier-Beillard1, N Ponthier2, C Lepage3,4, A Gagnaire4, F Gheringuelli5,6, L Bengrine5, A Boudrant7, L Rambach6, V Quipourt8, H Devilliers3,9, Catherine Lejeune10,11. 1. Centres Georges Chevrier UMR 7366 CNRS-Univ. Bourgogne Franche-Comte, Dijon, France. 2. IREPS BFC, 21000, Dijon, France. 3. EPICAD LNC-UMR1231, Burgundy and Franche-Comte University, Dijon, France. 4. Department of Hepato-Gastroenterology and Digestive Oncology, Dijon University Hospital, BP 87900 21079 Dijon, EPICAD LNC-UMR1231, Burgundy and Franche-Comte University, Dijon, France. 5. Department of Medical Oncology, Center Georges Francois Leclerc Dijon, Dijon, France. 6. CADIR LNC-UMR1231, Burgundy and Franche-Comte University, Dijon, France. 7. Department of Hepato-gastroenterology, Wiliam Morey Hospital, Chalon-sur-Saône, France. 8. Hopital de jour gériatrique, centre de Champmaillot, CHU, Dijon, France. 9. Inserm CIC1432, Clinical Epidemiology Unit, Dijon University Hospital, 7 bd Jeanne d'Arc, BP 87900, 21079, Dijon Cedex, France. 10. EPICAD LNC-UMR1231, Burgundy and Franche-Comte University, Dijon, France. catherine.lejeune@u-bourgogne.fr. 11. Inserm CIC1432, Clinical Epidemiology Unit, Dijon University Hospital, 7 bd Jeanne d'Arc, BP 87900, 21079, Dijon Cedex, France. catherine.lejeune@u-bourgogne.fr.
Abstract
PURPOSE: Family caregivers play an important role in caring for patients with advanced cancer. To become competent, individuals must draw on and mobilise an adequate combination of resources. Our goal was to identify the skills developed by caregivers of patients with advanced cancer and the associated resources mobilised. We chose to do it with partners of patients with colon cancer. METHODS: The study used a cross-sectional qualitative design based on 20 individual interviews and a focus group. Partners were recruited from patients treated in three hospitals of France. Semi-structured interviews were conducted until data saturation was achieved. Each interview was transcribed verbatim, and thematic analyses were performed to extract significant themes and subthemes. RESULTS: Results from the individual and focus group interviews showed that the skills implemented by the partners (in domains of social relationships and health, domestic, organisational, emotional and well-being dimensions) were singular constructs, dependant on if resources (personal, external and schemes) may have been missing and insufficient. In addition, partners may have had these resources but not mobilised them. CONCLUSION: The identification of the skills and associated resources could allow healthcare professionals better identifying and understanding of the difficulties met by partners in taking care of patients. This could enable them to offer appropriate support to help the caregivers in their accompaniment.
PURPOSE: Family caregivers play an important role in caring for patients with advanced cancer. To become competent, individuals must draw on and mobilise an adequate combination of resources. Our goal was to identify the skills developed by caregivers of patients with advanced cancer and the associated resources mobilised. We chose to do it with partners of patients with colon cancer. METHODS: The study used a cross-sectional qualitative design based on 20 individual interviews and a focus group. Partners were recruited from patients treated in three hospitals of France. Semi-structured interviews were conducted until data saturation was achieved. Each interview was transcribed verbatim, and thematic analyses were performed to extract significant themes and subthemes. RESULTS: Results from the individual and focus group interviews showed that the skills implemented by the partners (in domains of social relationships and health, domestic, organisational, emotional and well-being dimensions) were singular constructs, dependant on if resources (personal, external and schemes) may have been missing and insufficient. In addition, partners may have had these resources but not mobilised them. CONCLUSION: The identification of the skills and associated resources could allow healthcare professionals better identifying and understanding of the difficulties met by partners in taking care of patients. This could enable them to offer appropriate support to help the caregivers in their accompaniment.
Authors: Hermann Brenner; Anne Marie Bouvier; Roberto Foschi; Monika Hackl; Inger Kristin Larsen; Valery Lemmens; Lucia Mangone; Silvia Francisci Journal: Int J Cancer Date: 2011-08-03 Impact factor: 7.396
Authors: Eleonora Pinto; Alessandro Fabbian; Rita Alfieri; Anna Da Roit; Salvatore Marano; Genny Mattara; Pierluigi Pilati; Carlo Castoro; Marco Cavarzan; Marta Silvia Dalla Riva; Luisa Orrù; Gian Piero Turchi Journal: Behav Sci (Basel) Date: 2022-04-09