Silvia Ciotti1, Fortunato Bianconi, Vincenzo Maria Saraceni, Maria Chiara Vulpiani, Giuseppe Rinonapoli, Auro Caraffa, Mauro Zampolini. 1. From the University of Roma "La Sapienza," Residency Program in Physical and Rehabilitation Medicine, Rome, Italy (SC); Independent Researcher, Perugia, Italy (FB); University of Roma "La Sapienza", Physical Medicine and Rehabilitation Division, Umberto I Hospital, Rome, Italy (VMS, MCV); Department of Orthopedics and Traumatology, University of Perugia, Perugia, Italy (GR, AC); and Department of Rehabilitation, USL Umbria 2, Umbria, Italy (MZ).
Abstract
OBJECTIVE: The aim of the study was to systematize the disability condition related to amyotrophic lateral sclerosis patients using the International Classification of Functioning, Disability and Health (ICF) and narrative medicine approach as a common tool to identify a patient's functional problems. Once identified, this can be used as the basis for an individual rehabilitation project. DESIGN: This is an observational study on patients residing in a central region of Italy with a diagnosis of amyotrophic lateral sclerosis. The narrative approach involved listening to the patients' stories while guiding them with a semistructured questionnaire of 19 ICF items taken from the WHO Disability Assessment Schedule. A score from 0 to 4 for capacity (C) and performance (P) was adopted to evaluate each patient's functioning in their daily living activities. RESULTS: The ICF questionnaire was able to discriminate among responders (P < 0.001). The disability areas were in daily activities and social life (capacity 3-4, performance 3-4), whereas the performance items using facilitators were in the areas of communication, movement, personal care, and interaction with people (capacity 3-4, performance 1-2). CONCLUSIONS: Narrative medicine using ICF in amyotrophic lateral sclerosis highlighted the main rehabilitation goals necessary to personalize a rehabilitation program, emphasizing the gap between capacity and performance. The environmental factors facilitating the areas of communication, movement, personal care, and interaction with people and not influencing daily activities and social life were identified.
OBJECTIVE: The aim of the study was to systematize the disability condition related to amyotrophic lateral sclerosispatients using the International Classification of Functioning, Disability and Health (ICF) and narrative medicine approach as a common tool to identify a patient's functional problems. Once identified, this can be used as the basis for an individual rehabilitation project. DESIGN: This is an observational study on patients residing in a central region of Italy with a diagnosis of amyotrophic lateral sclerosis. The narrative approach involved listening to the patients' stories while guiding them with a semistructured questionnaire of 19 ICF items taken from the WHO Disability Assessment Schedule. A score from 0 to 4 for capacity (C) and performance (P) was adopted to evaluate each patient's functioning in their daily living activities. RESULTS: The ICF questionnaire was able to discriminate among responders (P < 0.001). The disability areas were in daily activities and social life (capacity 3-4, performance 3-4), whereas the performance items using facilitators were in the areas of communication, movement, personal care, and interaction with people (capacity 3-4, performance 1-2). CONCLUSIONS: Narrative medicine using ICF in amyotrophic lateral sclerosis highlighted the main rehabilitation goals necessary to personalize a rehabilitation program, emphasizing the gap between capacity and performance. The environmental factors facilitating the areas of communication, movement, personal care, and interaction with people and not influencing daily activities and social life were identified.
Authors: Silvia Ciotti; Mary Micheli; Antonella Cometa; Claudia De Carlo; Giancarlo Martini; Andrea Marona; Laura Filippetti; Diego Carducci; Silvano Baratta; Mauro Zampolini; Francesco Corea Journal: Eur J Case Rep Intern Med Date: 2021-09-06