| Literature DB >> 29862160 |
Jiangjiang He1,2, Qi Kang1, Jiahao Hu3, Peipei Song1, Chunlin Jin1.
Abstract
Over the past few years, the Chinese Government has paid greater attention to rare diseases and it has incorporated rare diseases in national health strategy and planning. On May 22, 2018, the Chinese Government officially released its first list of rare diseases, which included 121 rare diseases. The list was published to facilitate greater societal awareness of rare diseases, to improve the ability of front-line medical staff to treat rare diseases, to introduce incentives for research and development of orphan drugs, and to increase the availability of medicines for rare diseases. This effort will enhance the management of rare diseases in China, raise the level of diagnosis and treatment for rare diseases, and safeguard the health-related rights and interests of patients with rare diseases. The classification of rare diseases is based on a common international standards, which will promote international cooperation in drug research and policymaking with regard to rare diseases.Entities:
Keywords: Rare diseases; disease classification; disease management; orphan drugs
Year: 2018 PMID: 29862160 PMCID: PMC5982625 DOI: 10.5582/irdr.2018.01056
Source DB: PubMed Journal: Intractable Rare Dis Res ISSN: 2186-3644