Literature DB >> 29854107

Eliciting Values of Patients with Multiple Chronic Conditions: Evaluation of a Patient-centered Framework.

Andrew B L Berry1, Catherine Lim2, Andrea L Hartzler1,2, Tad Hirsch1, Evette Ludman1,2, Edward H Wagner2, James D Ralston1,2.   

Abstract

Patients with multiple chronic conditions often face competing demands for care, and they often do not agree with physicians on priorities for care. Patients ' values shape their healthcare priorities, but existing methods for eliciting values do not necessarily meet patients ' care planning needs. We developed a patient-centered values framework based on a field study with patients and caregivers. In this paper we report on a survey to evaluate how the framework generalizes beyond field study participants, and how well the framework supports values elicitation. We found that respondents frame values in a way that is consistent with the framework, and that domains of the framework can be used to elicit a breadth of potential values individuals with MCC express. These findings demonstrate how a patient-centered perspective on values can expand on the domains considered in values clarification methods andfacilitate patient-provider communication in establishing shared care priorities.

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Year:  2018        PMID: 29854107      PMCID: PMC5977727     

Source DB:  PubMed          Journal:  AMIA Annu Symp Proc        ISSN: 1559-4076


  21 in total

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Authors:  E J Emanuel; L L Emanuel
Journal:  JAMA       Date:  1992 Apr 22-29       Impact factor: 56.272

2.  Patterns of prevalent major chronic disease among older adults in the United States.

Authors:  Carlos O Weiss; Cynthia M Boyd; Qilu Yu; Jennifer L Wolff; Bruce Leff
Journal:  JAMA       Date:  2007-09-12       Impact factor: 56.272

3.  "It just seems outside my health": How Patients with Chronic Conditions Perceive Communication Boundaries with Providers.

Authors:  Catherine Lim; Andrew B L Berry; Tad Hirsch; Andrea L Hartzler; Edward H Wagner; Evette Ludman; James D Ralston
Journal:  DIS (Des Interact Syst Conf)       Date:  2016-06

4.  The association of comorbid depression with mortality in patients with type 2 diabetes.

Authors:  Wayne J Katon; Carolyn Rutter; Greg Simon; Elizabeth H B Lin; Evette Ludman; Paul Ciechanowski; Leslie Kinder; Bessie Young; Michael Von Korff
Journal:  Diabetes Care       Date:  2005-11       Impact factor: 19.112

5.  Primary care visit preparation and communication for patients with poorly controlled diabetes: A qualitative study of patients and physicians.

Authors:  Richard William Grant; Andrea Altschuler; Connie Si Uratsu; Gabriela Sanchez; Julie Ann Schmittdiel; Alyce Sophia Adams; Michele Heisler
Journal:  Prim Care Diabetes       Date:  2016-12-01       Impact factor: 2.459

6.  Combining deliberation and intuition in patient decision support.

Authors:  Marieke de Vries; Angela Fagerlin; Holly O Witteman; Laura D Scherer
Journal:  Patient Educ Couns       Date:  2012-12-21

7.  Establishing visit priorities for complex patients: A summary of the literature and conceptual model to guide innovative interventions.

Authors:  Richard W Grant; Alyce S Adams; Elizabeth A Bayliss; Michele Heisler
Journal:  Healthc (Amst)       Date:  2013-12

8.  The design of a decision aid about diabetes medications for use during the consultation with patients with type 2 diabetes.

Authors:  Maggie Breslin; Rebecca J Mullan; Victor M Montori
Journal:  Patient Educ Couns       Date:  2008-09-03

Review 9.  A framework for crafting clinical practice guidelines that are relevant to the care and management of people with multimorbidity.

Authors:  Katrin Uhlig; Bruce Leff; David Kent; Sydney Dy; Klara Brunnhuber; Jako S Burgers; Sheldon Greenfield; Gordon Guyatt; Kevin High; Rosanne Leipzig; Cynthia Mulrow; Kenneth Schmader; Holger Schunemann; Louise C Walter; James Woodcock; Cynthia M Boyd
Journal:  J Gen Intern Med       Date:  2014-01-18       Impact factor: 5.128

Review 10.  Clarifying values: an updated review.

Authors:  Angela Fagerlin; Michael Pignone; Purva Abhyankar; Nananda Col; Deb Feldman-Stewart; Teresa Gavaruzzi; Jennifer Kryworuchko; Carrie A Levin; Arwen H Pieterse; Valerie Reyna; Anne Stiggelbout; Laura D Scherer; Celia Wills; Holly O Witteman
Journal:  BMC Med Inform Decis Mak       Date:  2013-11-29       Impact factor: 2.796

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  3 in total

1.  Understanding What Is Most Important to Individuals with Multiple Chronic Conditions: A Qualitative Study of Patients' Perspectives.

Authors:  Catherine Y Lim; Andrew B L Berry; Tad Hirsch; Andrea L Hartzler; Edward H Wagner; Evette J Ludman; James D Ralston
Journal:  J Gen Intern Med       Date:  2017-08-28       Impact factor: 5.128

2.  From Reflection to Action: Combining Machine Learning with Expert Knowledge for Nutrition Goal Recommendations.

Authors:  Elliot G Mitchell; Elizabeth M Heitkemper; Marissa Burgermaster; Matthew E Levine; Yishen Miao; Maria L Hwang; Pooja M Desai; Andrea Cassells; Jonathan N Tobin; Esteban G Tabak; David J Albers; Arlene M Smaldone; Lena Mamykina
Journal:  Proc SIGCHI Conf Hum Factor Comput Syst       Date:  2021-05-07

3.  Toward the Value Sensitive Design of eHealth Technologies to Support Self-management of Cardiovascular Diseases: Content Analysis.

Authors:  Roberto Rafael Cruz-Martínez; Jobke Wentzel; Britt Elise Bente; Robbert Sanderman; Julia Ewc van Gemert-Pijnen
Journal:  JMIR Cardio       Date:  2021-12-01
  3 in total

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