Literature DB >> 29847015

Lived experience researchers partnering with consumers and carers to improve mental health research: Reflections from an Australian initiative.

Michelle Banfield1, Rebecca Randall1, Mearon O'Brien1, Sophie Hope1, Amelia Gulliver1, Owen Forbes1, Alyssa R Morse1, Kathleen Griffiths1,2.   

Abstract

Consumer and carer involvement in mental health research is a growing and developing field. Whilst there has been policy and in-principle support for such involvement from governments around the world, lived experience researchers conducting academic research in partnership with other consumers and carers remains uncommon. ACACIA: The Australian Capital Territory Consumer and Carer Mental Health Research Unit is based at The Australian National University and employs academic researchers with lived experience to undertake research directly relevant to the needs of mental health consumers and carers with the aim of influencing policy and practice. In this study, we share our experience of developing and conducting research within ACACIA to provide a model for meaningfully engaging mental health consumers and carers throughout the research process.
© 2018 Australian College of Mental Health Nurses Inc.

Keywords:  carer involvement; consumer involvement; consumer-led research; lived experience; research partnership

Mesh:

Year:  2018        PMID: 29847015     DOI: 10.1111/inm.12482

Source DB:  PubMed          Journal:  Int J Ment Health Nurs        ISSN: 1445-8330            Impact factor:   3.503


  5 in total

1.  Contextual influences on the impact of a peer worker-led self-stigma program for people with mental health issues: protocol for an interventional implementation science study.

Authors:  Michelle Banfield; Alyssa R Morse; Amelia Gulliver
Journal:  Implement Sci Commun       Date:  2020-02-25

2.  A framework for involving coproduction partners in research about young people with type 1 diabetes.

Authors:  Jane Desborough; Anne Parkinson; Fiona Lewis; Harry Ebbeck; Michelle Banfield; Christine Phillips
Journal:  Health Expect       Date:  2021-12-10       Impact factor: 3.377

3.  Keeping the Agenda Current: Evolution of Australian Lived Experience Mental Health Research Priorities.

Authors:  Amelia Gulliver; Alyssa R Morse; Michelle Banfield
Journal:  Int J Environ Res Public Health       Date:  2022-07-01       Impact factor: 4.614

4.  Comparison of a co-produced mental health service to traditional services: A co-produced mixed-methods cross-sectional study.

Authors:  Raffaella Pocobello; Tarek El Sehity; Luca Negrogno; Carlo Minervini; Maddalena Guida; Cosimo Venerito
Journal:  Int J Ment Health Nurs       Date:  2019-12-09       Impact factor: 3.503

5.  Lived experience research as a resource for recovery: a mixed methods study.

Authors:  Anne Honey; Katherine M Boydell; Francesca Coniglio; Trang Thuy Do; Leonie Dunn; Katherine Gill; Helen Glover; Monique Hines; Justin Newton Scanlan; Barbara Tooth
Journal:  BMC Psychiatry       Date:  2020-09-21       Impact factor: 3.630

  5 in total

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