Clare Villalba1, Anjali Jaiprakash2, Jared Donovan3, Jonathan Roberts1, Ross Crawford4. 1. Medical and Healthcare Robotics, Queensland University of Technology, Brisbane, QLD, Australia. 2. Medical and Healthcare Robotics, Queensland University of Technology, Brisbane, QLD, Australia. anjali.jaiprakash@qut.edu.au. 3. Design Lab, Creative Industries Faculty, Queensland University of Technology, Brisbane, QLD, Australia. 4. Medical and Healthcare Robotics, Prince Charles Hospital, Queensland University of Technology, Brisbane, QLD, Australia.
Abstract
BACKGROUND: A wealth of peer-reviewed data exists regarding people's health experience, yet practical ways of using the data to understand patients' experiences and to inform health co-design are needed. OBJECTIVE: This study aims to develop an applied and pragmatic method for using patient experience literature in co-design by transforming it into an accessible and creative co-design tool. METHOD: A scoping literature review of the CINAHL, MEDLINE, PsycINFO and PubMed electronic databases was conducted from January 2011 through August 2016. Qualitative publications regarding the experience of living with diabetes in Australia were selected. The Results section of each paper was extracted and affinity analysis was applied to identify insights into the health experience. These insights were developed into a card tool for use in health co-design activities. RESULTS: Thirteen relevant papers were identified from the review, and affinity analysis of the Results sections of these papers lead to the identification of 85 insights, from 'Shock of diagnosis' (Insight 1), to 'Delay seeking care' (Insight 9), to 'Assess the quality of care' (Insight 28), to 'Avoid or adapt habits' (Insight 78). Each insight was developed into an individual card, which included a high-level theme, insight, quote and a link back to the literature, together making up the Health Experience Insight Cards, Living with Diabetes Edition. CONCLUSIONS: This was the first study to develop a method for transforming existing patient experience literature into a creative tool for health improvement. The Health Experience Insight Cards collate the diverse experiences of over 300 people living with diabetes in Australia, from 13 studies. Health improvement teams can use the 'Living with Diabetes Edition' cards or they can follow this pragmatic method to create their own cards focused on other health experiences to facilitate person-focused health improvements.
BACKGROUND: A wealth of peer-reviewed data exists regarding people's health experience, yet practical ways of using the data to understand patients' experiences and to inform health co-design are needed. OBJECTIVE: This study aims to develop an applied and pragmatic method for using patient experience literature in co-design by transforming it into an accessible and creative co-design tool. METHOD: A scoping literature review of the CINAHL, MEDLINE, PsycINFO and PubMed electronic databases was conducted from January 2011 through August 2016. Qualitative publications regarding the experience of living with diabetes in Australia were selected. The Results section of each paper was extracted and affinity analysis was applied to identify insights into the health experience. These insights were developed into a card tool for use in health co-design activities. RESULTS: Thirteen relevant papers were identified from the review, and affinity analysis of the Results sections of these papers lead to the identification of 85 insights, from 'Shock of diagnosis' (Insight 1), to 'Delay seeking care' (Insight 9), to 'Assess the quality of care' (Insight 28), to 'Avoid or adapt habits' (Insight 78). Each insight was developed into an individual card, which included a high-level theme, insight, quote and a link back to the literature, together making up the Health Experience Insight Cards, Living with Diabetes Edition. CONCLUSIONS: This was the first study to develop a method for transforming existing patient experience literature into a creative tool for health improvement. The Health Experience Insight Cards collate the diverse experiences of over 300 people living with diabetes in Australia, from 13 studies. Health improvement teams can use the 'Living with Diabetes Edition' cards or they can follow this pragmatic method to create their own cards focused on other health experiences to facilitate person-focused health improvements.
Authors: Louise Locock; Glenn Robert; Annette Boaz; Sonia Vougioukalou; Caroline Shuldham; Jonathan Fielden; Sue Ziebland; Melanie Gager; Ruth Tollyfield; John Pearcey Journal: J Health Serv Res Policy Date: 2014-05-19
Authors: Leslie Kelly Hall; Breanne F Kunz; Elizabeth V Davis; Rose I Dawson; Ryan S Powers Journal: J Med Internet Res Date: 2015-05-28 Impact factor: 5.428