Literature DB >> 29785805

Fairness, severe intellectual disability, and the special case of transplantation.

Aaron Wightman1,2, Aviva Goldberg3, Douglas Diekema1,2.   

Abstract

Children with severe intellectual disability have historically been excluded from solid organ transplantation. The purpose of this article was to review the arguments for excluding this population, including claims of poorer recipient and graft survival, a lower QoL as pediatric recipients become adults, and poorer outcomes for other, more deserving pediatric transplant candidates, and make the case that these arguments are no longer persuasive. We will argue that pediatric transplant centers for reasons of social justice, value of relationships, power differential, and fairness should generally not consider intellectual ability or disability as a criterion when making decisions regarding organ transplant eligibility.
© 2018 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Entities:  

Keywords:  ethics; intellectual disability; transplant

Mesh:

Year:  2018        PMID: 29785805     DOI: 10.1111/petr.13228

Source DB:  PubMed          Journal:  Pediatr Transplant        ISSN: 1397-3142


  1 in total

1.  Renal Replacement Therapy in children with severe developmental disability: guiding questions for decision-making.

Authors:  Lore Willem; Noël Knops; Djalila Mekahli; Pierre Cochat; Alberto Edefonti; Enrico Verrina; Jaap Groothoff; Lieven Lagae; Jacques Pirenne; Fabienne Dobbels; Pascal Borry; Chris Van Geet; Elena Levtchenko
Journal:  Eur J Pediatr       Date:  2018-09-07       Impact factor: 3.183

  1 in total

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