Literature DB >> 29783399

Is the UK public ready for genetic medicine?

Peter Finegold1,2,3, Kate Mathieson1,2, Leah Holmes1,2, Martin Boon4, Mark Cottle3, Dian Donnai1,2, Helen Middleton-Price1,2.   

Abstract

While discussion about the potential for personalized medicine persists, in the UK embedding pharmacogenetics in mainstream clinical practice will also depend on high levels of confidence and trust of citizens in the motives of stakeholders. The role of Government, regulators and the guidance offered by health practitioners will contribute to its acceptance or otherwise. Nowgen, a center for genetics in healthcare, is dedicated to exploring how health service research, practice and innovation, in relation to genetic medicine, are informed and perceived by the public. In 2006, Nowgen commissioned a national polling organization, ICM, to carry out a representative survey of UK public attitudes to key questions related to genetic medicine, in order to help inform its future activity. The survey indicated that the UK public is relatively well informed about the contribution made by genes to common and complex disease and that it is fairly optimistic about the role of genetics in the treatment of a range of medical conditions. A significant proportion of the population seem reticent to subscribe to genetic testing in order to personalize drug prescription, although the rationale for resistance is, as yet, unclear.

Keywords:  engagement; genetic; medicine; personalized; pharmacogenetics; policy; predictive; public; survey; testing

Year:  2008        PMID: 29783399     DOI: 10.2217/17410541.5.1.65

Source DB:  PubMed          Journal:  Per Med        ISSN: 1741-0541            Impact factor:   2.512


  2 in total

1.  Citizen engagement initiatives in precision health in the European Union member states: a scoping review.

Authors:  Angelo Maria Pezzullo; Michele Sassano; Ilda Hoxhaj; Roberta Pastorino; Stefania Boccia
Journal:  BMJ Open       Date:  2021-07-09       Impact factor: 2.692

2.  Innovating public engagement and patient involvement through strategic collaboration and practice.

Authors:  Leah Holmes; Katharine Cresswell; Susannah Williams; Suzanne Parsons; Annie Keane; Cassie Wilson; Safina Islam; Olivia Joseph; Jahanara Miah; Emily Robinson; Bella Starling
Journal:  Res Involv Engagem       Date:  2019-10-21
  2 in total

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