Literature DB >> 29779057

Using patient-reported outcome measures to deliver enhanced supportive care to people with lung cancer: feasibility and acceptability of a nurse-led consultation model.

Grigorios Kotronoulas1, Constantina Papadopoulou2, Mhairi F Simpson3, John McPhelim3, Lynn Mack3, Roma Maguire4.   

Abstract

PURPOSE: Developing new supportive/palliative care services for lung cancer should encompass effective ways to promptly identify and address patients' healthcare needs. We examined whether an in-clinic, nurse-led consultation model, which was driven by use of a patient-reported outcomes (PRO) measure, was feasible and acceptable in the identification of unmet needs in patients with lung cancer.
METHODS: A two-part, repeated-measures, mixed-methods study was conducted. Part 1 employed literature reviews and stakeholder focus group interviews to inform selection of a population-appropriate needs assessment PRO measure. In Part 2, lung cancer nurse specialists (CNS) conducted three consecutive monthly consultations with patients. Recruitment/retention data, PRO data, and exit interview data were analysed.
RESULTS: The Sheffield Profile for Assessment and Referral to Care was the PRO measure selected based on Part 1 data. Twenty patients (response rate: 26%) participated in Part 2; 13 (65%) participated in all three consultations/assessments. The PRO measure helped patients to structure their thinking and prompted them to discuss previously underreported and/or sensitive issues, including such topics as family concerns, or death and dying. Lung CNS highlighted how PRO-measures-driven consultations differed from previous ones, in that their scope was broadened to allow nurses to offer personalised care. Small-to-moderate reductions in all domains of need were noted over time.
CONCLUSIONS: Nurse-led PRO-measures-driven consultations are acceptable and conditionally feasible to holistically identify and effectively manage patient needs in modern lung cancer care. PRO data should be systematically collected and audited to assist in the provision of supportive care to people with lung cancer.

Entities:  

Keywords:  Lung cancer; Needs assessment; Nurse specialist; Patient-reported outcome (PRO) measures; Supportive care; Unmet needs

Mesh:

Year:  2018        PMID: 29779057     DOI: 10.1007/s00520-018-4234-x

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  34 in total

1.  Patient reported outcome measures: a model-based classification system for research and clinical practice.

Authors:  Jose M Valderas; Jordi Alonso
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2.  Impact of lung cancer clinical nurse specialists on emergency admissions.

Authors:  Alison Leary; Jane Baxter
Journal:  Br J Nurs       Date:  2014 Sep 25-Oct 8

Review 3.  Patient-reported outcome measures for the identification of supportive care needs in people with lung cancer: are we there yet?

Authors:  Roma Maguire; Grigorios Kotronoulas; Constantina Papadopoulou; Mhairi F Simpson; John McPhelim; Lynn Irvine
Journal:  Cancer Nurs       Date:  2013 Jul-Aug       Impact factor: 2.592

4.  Is late diagnosis of lung cancer inevitable? Interview study of patients' recollections of symptoms before diagnosis.

Authors:  J Corner; J Hopkinson; D Fitzsimmons; S Barclay; M Muers
Journal:  Thorax       Date:  2005-04       Impact factor: 9.139

Review 5.  What is the value of the routine use of patient-reported outcome measures toward improvement of patient outcomes, processes of care, and health service outcomes in cancer care? A systematic review of controlled trials.

Authors:  Grigorios Kotronoulas; Nora Kearney; Roma Maguire; Alison Harrow; David Di Domenico; Suzanne Croy; Stephen MacGillivray
Journal:  J Clin Oncol       Date:  2014-04-07       Impact factor: 44.544

6.  Can routine collection of patient reported outcome data actually improve person-centered health?

Authors:  Doris Howell; Geoffrey Liu
Journal:  Healthc Pap       Date:  2011

Review 7.  A systematic review of supportive care needs of people living with lung cancer.

Authors:  Roma Maguire; Constantina Papadopoulou; Grigorios Kotronoulas; Mhairi F Simpson; John McPhelim; Lynn Irvine
Journal:  Eur J Oncol Nurs       Date:  2012-12-14       Impact factor: 2.398

8.  A qualitative study of clinical nurse specialists' views on depression in palliative care patients.

Authors:  Mari Lloyd Williams; Sheila Payne
Journal:  Palliat Med       Date:  2003-06       Impact factor: 4.762

Review 9.  Lung Cancer Statistics.

Authors:  Lindsey A Torre; Rebecca L Siegel; Ahmedin Jemal
Journal:  Adv Exp Med Biol       Date:  2016       Impact factor: 2.622

10.  Cancer incidence and mortality worldwide: sources, methods and major patterns in GLOBOCAN 2012.

Authors:  Jacques Ferlay; Isabelle Soerjomataram; Rajesh Dikshit; Sultan Eser; Colin Mathers; Marise Rebelo; Donald Maxwell Parkin; David Forman; Freddie Bray
Journal:  Int J Cancer       Date:  2014-10-09       Impact factor: 7.396

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4.  An Evidence-Based Theory About PRO Use in Kidney Care: A Realist Synthesis.

Authors:  Kara Schick-Makaroff; Adrienne Levay; Stephanie Thompson; Rachel Flynn; Richard Sawatzky; Onouma Thummapol; Scott Klarenbach; Mehri Karimi-Dehkordi; Joanne Greenhalgh
Journal:  Patient       Date:  2021-06-10       Impact factor: 3.883

5.  Factors Impacting Clinicians' Adoption of a Clinical Photo Documentation App and its Implications for Clinical Workflows and Quality of Care: Qualitative Case Study.

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Journal:  JMIR Mhealth Uhealth       Date:  2020-09-23       Impact factor: 4.773

  5 in total

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