Literature DB >> 29769808

Decision-making around gastrostomy tube feeding in children with neurologic impairment: Engaging effectively with families.

Sanjay Mahant1, Eyal Cohen1, Katherine E Nelson1, Peter Rosenbaum1.   

Abstract

Children with neurologic impairment may not be able to feed safely or sufficiently by mouth to maintain an adequate nutritional state. Gastrostomy tube (G-tube) feeding is an important, often essential, intervention in such situations. However, many parents and families struggle with the decision to proceed with G-tube feeding. This practice point reviews common reasons for decisional conflict in parents and explores key aspects of life with G-tube feeding. A framework for shared decision-making and the International Classification of Functioning, Disability and Health (ICF) approach are highlighted. Practical recommendations for clinicians on engaging with families for decision-making around this life-changing intervention are provided.

Entities:  

Keywords:  G-tube; ICF; Shared decision-making

Year:  2018        PMID: 29769808      PMCID: PMC5951081          DOI: 10.1093/pch/pxx193

Source DB:  PubMed          Journal:  Paediatr Child Health        ISSN: 1205-7088            Impact factor:   2.253


  11 in total

Review 1.  Decision aids for people facing health treatment or screening decisions.

Authors:  Dawn Stacey; France Légaré; Krystina Lewis; Michael J Barry; Carol L Bennett; Karen B Eden; Margaret Holmes-Rovner; Hilary Llewellyn-Thomas; Anne Lyddiatt; Richard Thomson; Lyndal Trevena
Journal:  Cochrane Database Syst Rev       Date:  2017-04-12

Review 2.  Surgical intervention for feeding and nutrition difficulties in cerebral palsy: a systematic review.

Authors:  Elizabeth D Ferluga; Nila A Sathe; Shanthi Krishnaswami; Melissa L Mcpheeters
Journal:  Dev Med Child Neurol       Date:  2013-06-05       Impact factor: 5.449

Review 3.  Nutrition support for neurologically impaired children: a clinical report of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition.

Authors:  Valerie Marchand; Kathleen J Motil
Journal:  J Pediatr Gastroenterol Nutr       Date:  2006-07       Impact factor: 2.839

Review 4.  Decision-making around gastrostomy-feeding in children with neurologic disabilities.

Authors:  Sanjay Mahant; Vesna Jovcevska; Eyal Cohen
Journal:  Pediatrics       Date:  2011-05-29       Impact factor: 7.124

Review 5.  Family Experiences With Feeding Tubes in Neurologic Impairment: A Systematic Review.

Authors:  Katherine E Nelson; Ashley Lacombe-Duncan; Eyal Cohen; David B Nicholas; Laura C Rosella; Astrid Guttmann; Sanjay Mahant
Journal:  Pediatrics       Date:  2015-07       Impact factor: 7.124

6.  Impact of the Ottawa Decision Support Framework on the agreement and the difference between patients' and physicians' decisional conflict.

Authors:  France Légaré; Annette M O'Connor; Ian D Graham; Georges A Wells; Stéphane Tremblay
Journal:  Med Decis Making       Date:  2006 Jul-Aug       Impact factor: 2.583

Review 7.  Nonoral feeding for children and youth with developmental or acquired disabilities.

Authors:  Richard C Adams; Ellen Roy Elias
Journal:  Pediatrics       Date:  2014-12       Impact factor: 7.124

8.  A guide to the management of common gastrostomy and gastrojejunostomy tube problems.

Authors:  Joanna Soscia; Jeremy N Friedman
Journal:  Paediatr Child Health       Date:  2011-05       Impact factor: 2.253

9.  Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy.

Authors:  Peter B Sullivan; Edmund Juszczak; Allison M E Bachlet; Adrian G Thomas; Bridget Lambert; Angharad Vernon-Roberts; Hugh W Grant; Muftah Eltumi; Nicola Alder; Crispin Jenkinson
Journal:  Dev Med Child Neurol       Date:  2004-12       Impact factor: 5.449

10.  Tube feeding and quality of life in children with severe neurological impairment.

Authors:  S Mahant; J N Friedman; B Connolly; C Goia; C Macarthur
Journal:  Arch Dis Child       Date:  2009-05-12       Impact factor: 3.791

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  2 in total

1.  Translation, Cultural Adaptation, Reliability, and Validity Evidence of the Feeding/Swallowing Impact Survey (FS-IS) to Brazilian Portuguese.

Authors:  Cristiane G Rama; Fernanda B Bernardes; Maureen A Lefton-Greif; Deborah S Levy; Vera L Bosa
Journal:  Dysphagia       Date:  2021-11-15       Impact factor: 2.733

2.  The outcomes of fundoplication and gastrostomy in neurologically impaired children in a tertiary care hospital in Saudi Arabia.

Authors:  Mohammed K AlNamshan; Nawaf M AlKharashi; Stanley J Crankson; Saud A AlJadaan; Nasir U Khawaja; Shahad A AlSaif
Journal:  Saudi Med J       Date:  2019-08       Impact factor: 1.484

  2 in total

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