Literature DB >> 29754546

The Googlization of health research: from disruptive innovation to disruptive ethics.

Tamar Sharon1.   

Abstract

Consumer-oriented mobile technologies offer new ways of capturing multidimensional health data, and are increasingly seen as facilitators of medical research. This has opened the way for large consumer tech companies, like Apple, Google, Amazon and Facebook, to enter the space of health research, offering new methods for collecting, storing and analyzing health data. While these developments are often portrayed as 'disrupting' research in beneficial ways, they also raise many ethical issues. These can be organized into three clusters: questions concerning the quality of research; privacy/informed consent; and new power asymmetries based on access to data and control over technological infrastructures. I argue that this last cluster, insofar as it may affect future research agendas, deserves more critical attention.

Entities:  

Keywords:  23andMe; Baseline Study; Google Genomics; ResearchKit; big data; data-intensive medicine; ethical issues; health apps; privacy

Year:  2016        PMID: 29754546     DOI: 10.2217/pme-2016-0057

Source DB:  PubMed          Journal:  Per Med        ISSN: 1741-0541            Impact factor:   2.512


  11 in total

1.  Biomolecular Prospecting, Informative Gaps, and the Cancer Clinic: A Qualitative Fieldwork and an Epistemological, Historical and Ethical Analysis of Informed Consent for Clinical Trials for Monoclonal Antibodies and Biobank Research.

Authors:  Flavio D'Abramo; Annemieke Bont; Lisa Nüßlein
Journal:  Front Genet       Date:  2022-06-13       Impact factor: 4.772

2.  Blind-sided by privacy? Digital contact tracing, the Apple/Google API and big tech's newfound role as global health policy makers.

Authors:  Tamar Sharon
Journal:  Ethics Inf Technol       Date:  2020-07-18

3.  Patienthood and participation in the digital era.

Authors:  Sonja Erikainen; Martyn Pickersgill; Sarah Cunningham-Burley; Sarah Chan
Journal:  Digit Health       Date:  2019-04-23

4.  Big Data, Big Waste? A Reflection on the Environmental Sustainability of Big Data Initiatives.

Authors:  Federica Lucivero
Journal:  Sci Eng Ethics       Date:  2019-12-23       Impact factor: 3.525

5.  Contact tracing apps: an ethical roadmap.

Authors:  Marjolein Lanzing
Journal:  Ethics Inf Technol       Date:  2020-09-29

6.  Responsible nudging for social good: new healthcare skills for AI-driven digital personal assistants.

Authors:  Marianna Capasso; Steven Umbrello
Journal:  Med Health Care Philos       Date:  2021-11-25

7.  Value Sensitive Design to Achieve the UN SDGs with AI: A Case of Elderly Care Robots.

Authors:  Steven Umbrello; Marianna Capasso; Maurizio Balistreri; Alberto Pirni; Federica Merenda
Journal:  Minds Mach (Dordr)       Date:  2021-05-31       Impact factor: 5.339

8.  SERIES: eHealth in primary care. Part 2: Exploring the ethical implications of its application in primary care practice.

Authors:  Sarah N Boers; Karin R Jongsma; Federica Lucivero; Jiska Aardoom; Frederike L Büchner; Martine de Vries; Persijn Honkoop; Elisa J F Houwink; Marise J Kasteleyn; Eline Meijer; Hilary Pinnock; Martina Teichert; Paul van der Boog; Sanne van Luenen; Rianne M J J van der Kleij; Niels H Chavannes
Journal:  Eur J Gen Pract       Date:  2019-10-30       Impact factor: 1.904

Review 9.  An Analysis of the Learning Health System in Its First Decade in Practice: Scoping Review.

Authors:  Jodyn E Platt; Minakshi Raj; Matthias Wienroth
Journal:  J Med Internet Res       Date:  2020-03-19       Impact factor: 5.428

10.  Investigator initiated research in times of COVID-19: Let's go digital!

Authors:  Jeroen M Schuitenmaker; Renske A B Oude Nijhuis; Annelien L Bredenoord; Paul Fockens; Albert J Bredenoord
Journal:  Neurogastroenterol Motil       Date:  2020-10-06       Impact factor: 3.598

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